My Experience on Evenity

Posted by arlene7 @arlene7, Jul 7 10:19am

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, “if everyone only thought about the side effects of the drugs, no one would be taking them”.
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I’m hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Liked by lioness

@arlene7. Thank you so much for sharing your experience with Evenity. I noted the statement about "everything" has side effects. I think that is true and the challenge becomes to make sure Evenity or other bone medications don't have an interaction with our current drugs or treatments. I also have an allergy to sulfa drugs…..so you did have and now it is possible that you will not have an allergic reaction to sulfa. No more rolling on the carpet naked to take care of the itching. Now that I have the neuropathic itch, I don't need anything else.

Arlene, there is one question about Evenity, I think many of us would like to hear. How long do you take Evenity? 2 years? And then what? I always want to know what comes next to protect the bone that is developed.

You have my good wishes for a helpful outcome. Please check in with us as you begin this journey. You have persevered beautifully. Now all you have to do is share …….. not a bad deal.

Be safe and protected from inner and outer harm.
Chris

REPLY

Evenity is for 12 months only. Once the new scans are reviewed (after a year of taking Evenity) the maintenance plan will then be discussed with Endocronologist.
In regards to the sulfa allgery. I had an allergic reaction to an antibiotic about 40 years ago. The Hydrochlorothiazide is a bit different than an antibiotic, so it may be ok to take, however I want to make sure before taking, that is why I have chosen to see an allergist first.

REPLY

Thanks @arlene7 for giving this overview of your experience. I also want to link to the "companion" discussion here:
– Anyone taken Evenity (romosozumab) for Osteoporosis? https://connect.mayoclinic.org/discussion/evenity-osteoporosis/

I'd appreciate your returning to this discussion to provide an update as you continue to receive injections of the next year. Did you ultimately get approval from your insurance to cover this drug?

Liked by lioness

REPLY

Yes, I finally received approval.

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