To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
354 total results
Comments (321)
Yes, my heart just sank when I felt a tiny hard lump on my bony chest...
They removed the tumor and a bit of ... of a rare pre-existing hereditary neuropathy ... said chemo would leave me in constant pain ... forever and I can’t even take pain ... No visible tumors at the moment and
Hello @lym, I also have small fiber PN but I only have numbness and some tingling,...
have numbness and some tingling, no pain ... I do take turmeric capsules daily, one ... /surprising-natural-pain-killers ... following discussion: -- Small Fiber Neuropathy ... connect.mayoclinic.org/discussion/small-fiber-neuropathy
Support Group: Neuropathy
Posted: Jun 13, 2024
@spongybob , 61 years old here... After 6 months (12 rounds) of Folfirinox, my Whipple and...
medium/partial, on a scale from 1-3) of tumor ... 4.5 months after Whipple revealed tumor ... CIPN (chemotherapy-induced peripheral neuropathy ... Neuropathy never got past grade 2 (moderate ... , but not painful or debilitating).
Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...
GRIN (Global registry for inherited neuropathies ... For some unknown reason all my pain ... I was pain free and symptom free for ... are given to people with pituitary tumors ... or carcinoid tumors.
@ginny100 I've been taking Kisqali (CDK 4/6 inhibitor) and Letrozole (AI) for 3+ years now due...
I had the chest wall tumor removed ( ... year 1), low BP/heart rate, increased pain ... from my pre-existing neuropathy. ... Letrozole has caused joint pain and
Support Group: Breast Cancer
Posted: Apr 8, 2024
My name is Marissa and was diagnosed with metastatic malignant pancreatic cancer stage III. I went...
I went to ED with tolerable pain in ... Before this pain, I did not have any ... with no plans for surgery because the tumor ... In the last CT, the tumor decreased ... I have not experienced any neuropathy
So, I feel comfortable with the treatment I received once diagnosed with De novo stage 4...
I had pain and could not sleep on my ... It did not and I had a painful MRI. ... I have been pain free ever since. ... treatment which shrunk the metastases tumors ... No Neuropathy, no elevated enzymes -
I too have a negative response to solanine and/or chaconine. I can ignore the mild joint...
I can ignore the mild joint pain, and ... mild neuropathy in my fingertips and ... After numerous doctor visits, I gave ... , and reduced the intensity of the neuropathy ... the active form (P5P) stopped the neuropathy
Posted: Jan 24, 2024
Hello, Gardener Bob! (@gardnererbob) I want to welcome you to Connect and to the neuropathy forum....
welcome you to Connect and to the neuropathy ... I’m hardly a long-timer. ... diagnosed with idiopathic peripheral neuropathy ... work. :-) A closing note on my neuropathy ... : I’m fortunate in that I have no pain
Support Group: Neuropathy
Posted: Jan 11, 2024
Hi I am a 64 year old male living in Sydney Australia. In May 2023 I...
metastasis throughout my liver with numerous ... longer having big work lunches, back pain ... for 2 rounds when I started getting neuropathy
This is not intended to be medical advice for your situation. I am a dentist and...
dentist and also a person who has had numerous ... issues including radiation induced neuropathy ... Like a neuropathy. ... and pain. ... For the pain in the back of the tongue
Posted: Dec 31, 2023
History -60 year old male 2 major back surgeries age 26 and 28. L4-L5, L5-S1. Ruptured...
Ten years later Nueropathy from spine ... pain in both legs . ... Pain persistant. ... Laying down flat inceases nueropathy ... Have never been addicted to any of numerous
Support Group: Neuropathy
Posted: Nov 1, 2023
I just joined Connect. I really know nothing how it works. Was reading some posts &...
The did cardiac workup and numerous ... The neurosurgeon removed a benign tumor ... What I do have is a neuropathy type ... Pain is back to 7-10. Tremors. ... My pain meds have been raised.
Support Group: Spine Health
Posted: Oct 1, 2023
Good evening @irr4et.......This is sort of amazing.....I am doing the very same process to get off...
affected by brain function and given me numerous ... tinctures and topicals very helpful for neuropathic ... pain. ... I am choosing brain over pain, so to
Support Group: Neuropathy
Posted: Sep 25, 2023
I too have the vibrations. I have been to the ER countless times (retired RN with...
psych consult when I explained to the numerous ... and this can cause a lot of nerve pain ... nerve fiber disease like peripheral neuropathies ... have lost 25 pounds, have abdominal pain
Posted: Sep 1, 2023
I am suffering from chronic pain since I was diagnosed with Conn syndrome. I am based...
I am suffering from chronic pain since ... The pain is mostly in my tummy and much ... Numerous scans show nothing amiss.Blood ... and hardly able to do much without pain ... Or is it a form of neuropathy?
Support Group: Fibromyalgia
Posted: Jul 18, 2023
EMO-Two neurologists, one at Brown Neurology in RI, and a second opinion consultant at Mass. General...
General surmised after numerous tests ... , that my poly neuropathy was probably ... Pain has calmed down over time, too. ... connection between autoimmune causes of neuropathy
Support Group: Neuropathy
Posted: Jul 13, 2023
Understood. It is truly a long haul . I’m 2 1/2 in to this... BUT fighting...
boxes from medical schools that call neuropathy ... neuropathy and fatigue fatigue. ... Numerous research articles have suggested ... legs, bottom of feet (awful) BUT no pain ... tendinitis- onset post Covid (horribly painful
Posted: Jun 27, 2023
@windyshores @annkitz @auntieoakley @vivi1 I was just looking up my BC details again from 2013, looking...
IDC ER/PR+ HER2-, medium grade 7 mm tumor ... wall an inch from the original deep tumor ... #39;t have chemo because of my pre-x neuropathy ... (would be in pain forever and can&#39 ... ;t take pain meds) and he doubts it
Support Group: Breast Cancer
Posted: May 17, 2023
Right now I'm in severe pain from my head to my feet. There is so much...
Right now I'm in severe pain from ... Recently had benign tumors removed from ... Pain from my back to my legs down to ... And neuropathy as well. ... I sleep constantly to not feel the pain
Support Group: Chronic Pain
Posted: May 5, 2023