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159 total results

Comments (135)

@rans Foamy urine is a rather complex issue, but it is a sign of various diseases....

https://connect.mayoclinic.org/comment/238249/

mutate into Fukuyama (FKTN) Limb Girdle Muscular ... Dystrophy, which makes it a sure mark

Discussion: foamy urine.

Support Group: Kidney & Bladder

Posted: May 28, 2020

@challie, @contentandwell Hi again. Interesting how many things you hear that are different and I wonder...

https://connect.mayoclinic.org/comment/105067/

wheelchair due to my rare form of muscular ... dystrophy to check on the TKR's, now

Discussion: After knee replacement surgery

Support Group: Joint Replacements

Posted: Jul 23, 2017

Has e ever had a sleep study done? RSBD - rem behavior sleep disorder is very...

https://connect.mayoclinic.org/comment/628026/

Plus I have muscular dystrophy which

Discussion: Speech, movement, sleeping with LBD..Ideas?

Support Group: Caregivers: Dementia

Posted: Aug 19, 2021

Hello @ditamontoya and welcome to Connect. We do have some members who have discussed muscular dystrophy...

https://connect.mayoclinic.org/comment/729683/

have some members who have discussed muscular ... dystrophy problems. ... neurology_neurosurgery/centers_clinics/muscular_dystrophy ... /conditions/limb_girdle_muscular_dystrophy.html ... dystrophies (LGMD) comprise at least

Discussion: Limb Girdle Muscular Dystrophy

Support Group: Bones, Joints & Muscles

Posted: Jul 22, 2022

@so1frustrated...You sound like me, but I have finally figured out what my problem. I have both...

https://connect.mayoclinic.org/comment/334475/

Amyloidosis) and FKTN (Fukutin Limb Girdle Muscular ... Dystrophy, a ready partner of Gelsolin

Discussion: Almost pure blood and blood clots in urine

Support Group: Kidney & Bladder

Posted: Feb 21, 2021

It is so bizarre.So at the very beginning I could not swallow at all.The specialists were...

https://connect.mayoclinic.org/comment/1069339/

It is like ALS/Muscular Dystrophy and

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 17, 2024

I am so glad to know you yet I wish we never had to meet, considering...

https://connect.mayoclinic.org/comment/1162746/

more than people with HIV/AIDS, MS, Muscular ... Dystrophy, Parkinsons and ALS combined

Discussion: Discouraged with lymphedema: How do you cope?

Support Group: Breast Cancer

Posted: Oct 25, 2024

@sofrustrated You are so correct. Our medical system is so frustrating. My son went for a...

https://connect.mayoclinic.org/comment/592125/

Amyloidosis and Fukatin Limb Girdle Muscular ... Dystrophy, and some lesser damaging

Discussion: Almost pure blood and blood clots in urine

Support Group: Kidney & Bladder

Posted: Apr 5, 2021

Stumpjumper, I do not have the package you have but a vastly different mess. I have...

https://connect.mayoclinic.org/comment/239855/

But I also have Fukutin Limb Muscular ... Dystrophy, and about 50 more genes

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Jan 20, 2021

Gosh, this all sounds so familiar, and the answers should be so easy. However, we live...

https://connect.mayoclinic.org/comment/716999/

, Gelsolin, as well as some neuro-muscular ... diseases such as muscular dystrophy

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jun 13, 2022

Hi, Colleen. Awfully good to hear from you. Things are moving along. Thankfully, I realize that...

https://connect.mayoclinic.org/comment/947563/

real toughie right now is Limb Girdle Muscular ... Dystrophy, type r23.

Discussion: He's driving me away from wanting to take care of him

Support Group: Caregivers: Dementia

Posted: Oct 14, 2023

Hi Colleen, our son Eric was promoted to Heaven November 4, 2014. It was literally the...

https://connect.mayoclinic.org/comment/683917/

his terminal illness called Duchenne Muscular ... Dystrophy but the other side never

Discussion: Recent, totally sudden, traumatic loss of our daughter, 45.

Support Group: Loss & Grief

Posted: Feb 23, 2022

78 yo male. Dx Bronchiectasis at age 20 (1966)COPD. Dx bi lat diaphragm paralysis about 10...

https://connect.mayoclinic.org/comment/966658/

Late life dx of FSHD Muscular Dystrophy

Discussion: Elevated diaphragm causing COPD type symptoms

Support Group: Lung Health

Posted: Nov 17, 2023

@jwillits8 Yes, sometimes it seems that Mayo and most similar orgs are only helpful for the...

https://connect.mayoclinic.org/comment/635742/

would by a Congenital Limb Girdle Muscular ... Dystrophy {LGMD}, a Neuro-Muscular

Discussion: Autonomic nervous system malfunction: 2 yrs, yet no diagnosis or help

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 15, 2021

@rt061069 I hope you and the others on this line have all had appropriate clinical grade...

https://connect.mayoclinic.org/comment/619062/

cardiomyopathy, Fukatin and FKRP Limb Girdle Muscular ... Dystrophy, Clarkson's Disease,

Discussion: Living with pain

Support Group: Chronic Pain

Posted: Jul 23, 2021

@jackpine , The cath I use is made by Convatec Limited. The first address I have...

https://connect.mayoclinic.org/comment/317759/

Gelsolin, plus Fukutin Limb Girdle Muscular ... Dystrophy Type 4.

Discussion: Bladder ureteral obstruction/stricture

Support Group: Kidney & Bladder

Posted: Mar 28, 2021

@maartensk Hi, friend. This is a simple one to answer. In my experience, my genes clump...

https://connect.mayoclinic.org/comment/750203/

neuromuscular stuff, is called Limb Girdle Muscular ... Dystrophy r23.

Discussion: Can you have combined autoimmune disorders? I need a second opinion

Support Group: Autoimmune Diseases

Posted: Sep 16, 2022

I have a family history of PN going back at least four generations. They said it...

https://connect.mayoclinic.org/comment/317874/

tests all the genes known to cause Muscular ... Dystrophy.

Discussion: Is it worth trying to resolve peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 24, 2020

@stumpjumper , my friend. You sound a little frazzled; but with good reason. Let me throw...

https://connect.mayoclinic.org/comment/741505/

example, and that triggers some form of Muscular ... Dystrophy, and that triggers additional

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Aug 25, 2022

I would add just a little to my previous statement. I have the same symptoms, and...

https://connect.mayoclinic.org/comment/717645/

often a partner disease to Limb Girdle Muscular ... Dystrophy R23, or also using labels

Discussion: Right Cheek Swelling

Support Group: Autoimmune Diseases

Posted: Jun 15, 2022