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219 total results

Comments (208)

Hi @bac10, I'm so sorry to hear about your daughter and all that your family is...

https://connect.mayoclinic.org/comment/200995/

and @lotsostufffailing talked about CVID ... /connect.mayoclinic.org/discussion/cvid

Discussion: 18 month old with recurrent viral infections

Support Group: About Kids & Teens

Posted: May 23, 2018

I went looking for the current research for ET/JAK2 and found this: https://www.bing.com/search?q=how%27s%20the%20treatment%20research%20doing%20for%20etjak2%20gene&qs=n&form=QBRE&sp=-1&ghc=1&lq=0&pq=how%27s%20the%20treatment%20research%20doing%20for%20etjak2%20gene&sc=12-50&sk=&cvid=5ED8703EEE4B4EC98686389E6090F7D1

https://connect.mayoclinic.org/comment/1588661/

20etjak2%20gene&sc=12-50&sk=&cvid

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jun 1 8:26pm

It looks like calcium and Vit D supplements may be a double-edged sword. Increasing the risk...

https://connect.mayoclinic.org/comment/1035110/

ocid=msedgdhp&pc=U531&cvid=d81aebf578af4a0bbd7cbaa6623b7df8&

Discussion: What supplements help Osteopenia, Osteoporosis?

Support Group: Osteoporosis & Bone Health

Posted: Mar 17, 2024

@sb4ca Well, first off, what has your doctor said about the lymph nodes? There are many...

https://connect.mayoclinic.org/comment/1062867/

you’ve recently been diagnosed with CVID—that

Discussion: Inadvertent finding of cervical lymphadenopathy

Support Group: Cancer

Posted: May 5, 2024

Immunglobulin G is infused via IV into your blood stream. Mine is done at a cancer...

https://connect.mayoclinic.org/comment/240450/

can better inform you about IgG and CVID

Discussion: Low levels of IgG IgA IgM

Support Group: Autoimmune Diseases

Posted: Jan 29, 2019

I also have SFN with autonomic dysfunction. Have you been tested for rheumatology issues? You may...

https://connect.mayoclinic.org/comment/929254/

found I have RA, Sjogren's, and CVID

Discussion: Chronic Fatigue Syndrome and Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Sep 13, 2023

@colleenyoung The oncologist said that she did not believe that it was related to lymphedema. I...

https://connect.mayoclinic.org/comment/1484125/

I have a primary immune disease CVID

Discussion: Breast Lymphedema and Hand Cellulitis - Anyone else experience this?

Support Group: Breast Cancer

Posted: Jan 16 4:35pm

I also have an immune deficiency currently labeled CVID but more likely Hyper IgM. Getting right...

https://connect.mayoclinic.org/comment/234496/

immune deficiency currently labeled CVID

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Dec 20, 2019

@gussie - I understand about the walking... keeps the entire body lubricated. and wow- I've never...

https://connect.mayoclinic.org/comment/1567468/

wow- I've never heard of that CVID

Discussion: Left hip pain

Support Group: Bones, Joints & Muscles

Posted: May 5 4:07pm

I understand! I have 2 rare diseases (CVID🦓 & Autoimmune Encephalitis🦓🦓) plus a cluster of other...

https://connect.mayoclinic.org/comment/1295305/

I have 2 rare diseases (CVID&#x1f993

Discussion: Prolia dangers for those with autoimmune disease

Support Group: Bones, Joints & Muscles

Posted: May 2, 2025

I have but I had to use Lomotil as well. I was diagnosed with CVID 30...

https://connect.mayoclinic.org/comment/838966/

I was diagnosed with CVID 30 years ago

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 6, 2023

windwalker here is a link that briefly explains CVID. I get immuniglobulins every 3 weeks like...

https://connect.mayoclinic.org/comment/65530/

here is a link that briefly explains CVID

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2018

I'm 84 my husband is 80. He still runs his own commercial real estate firm. I...

https://connect.mayoclinic.org/comment/1451423/

I have a rare disease called CVID or

Discussion: Please Share 3 Things You Appreciate about Being Old

Support Group: Aging Well

Posted: Dec 2, 2025

I have IBS-D and am gluten free. When I drink cold water I may as well...

https://connect.mayoclinic.org/comment/1112689/

fact that I have something called CVID

Discussion: Sensitive guts

Support Group: Digestive Health

Posted: Jul 27, 2024

Yes, I have the coughing asthma. However, at times, I do wheeze, but for the most...

https://connect.mayoclinic.org/comment/1413006/

shortness of breath, Immune Deficiency-CVID

Discussion: Anyone have "cough variant" asthma? Vocal cord dysfunction?

Support Group: Asthma & Allergy

Posted: Oct 10, 2025

https://connect.mayoclinic.org/comment/1316392/

CVID explains why I am sero-negative

Discussion: Has anyone been diagnosed with this disorder?

Support Group: Autoimmune Diseases

Posted: May 30, 2025

I am so sorry. I also have CVID. (Boy in the Bubble Disease). I don't make...

https://connect.mayoclinic.org/comment/1055970/

I also have CVID.

Discussion: How do you manage daily life with IBS-D?

Support Group: Digestive Health

Posted: Apr 23, 2024

Hello- I am so sorry that u r going thru all of this. My lungs are...

https://connect.mayoclinic.org/comment/234490/

CVID can also cause osteoporosis...sigh

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Jan 9, 2019

My situation is identical with elevated numbers on the sweat test run at NJH. I have...

https://connect.mayoclinic.org/comment/1594129/

already receive IgG infusions because of CVID

Discussion: Anyone been tested for Cystic Fibrosis since Bronchiectasis diagnosis?

Support Group: MAC & Bronchiectasis

Posted: Jun 9 8:13am

I have a condition called CVID or Common Variable Immuno Deficiency. My body doesn't fight viruses...

https://connect.mayoclinic.org/comment/1555300/

I have a condition called CVID or Common

Discussion: I have a hip plant and now I have a 70% torn, gluteal, minimus tendon

Support Group: Bones, Joints & Muscles

Posted: Apr 20 12:14pm