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1,134 total results

Comments (1,026)

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

no answers on how to deal with the CLL ... progressing as I get older and I think the CLL ... here I am again, no treatment for the CLL

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

I’m 78, and I, too, wonder how much time I have left, and what lies down...

https://connect.mayoclinic.org/comment/1078593/

diagnosed with psoriatic arthritis and CLL

Discussion: How do you deal with aging?

Support Group: Aging Well

Posted: May 31, 2024

Welcome to Connect, @tinalk. The MTHFR gene mutation may contribute to a variety of health conditions....

https://connect.mayoclinic.org/comment/1030854/

> @cll also has the MTHFR gene variant

Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Support Group: Skin Health

Posted: Mar 10, 2024

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

As you’ve found out with your CLL/SLL

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Oh golly, you and your family are working through a lot of uncertainties right now. I’m...

https://connect.mayoclinic.org/comment/814276/

diagnosis and then recently with your CLL

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2023

@rip. Good morning. I just read over some of your previous postings to see that you...

https://connect.mayoclinic.org/comment/337534/

see that you started treatment for CLL

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

@jewel8888 .. Julie, thanks for your post! This is all so interesting! Your statement 'my body...

https://connect.mayoclinic.org/comment/59755/

husband is doing WONDERFULLY with his CLL

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jan 13, 2017

When I started treatment for CLL, my spleen was slightly swollen, but I had a huge...

https://connect.mayoclinic.org/comment/101844/

When I started treatment for CLL, my

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 31, 2016

in 2010 my husband had an oncologist that said. no symptoms stage 0 we will watch...

https://connect.mayoclinic.org/comment/1288797/

3 years, then in January this year CLL

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 24 9:48am

First of all, I would like to say thank you to the warm welcome I have...

https://connect.mayoclinic.org/comment/1318910/

as long as something outside of my CLL

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 2 7:07pm

I am convinced neuropathy can be related to free light chains and antibodies(in my case igM)...

https://connect.mayoclinic.org/comment/987941/

decided to try rituxan to treat the CLL

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

I have been in alprazolam (generic Xanax) and oxycodone for almost 11 years since botched thyroid...

https://connect.mayoclinic.org/comment/904510/

I will prob have to start CLL meds again

Discussion: Do You Need All Those Pills? Depression & lessons I learned

Support Group: Depression & Anxiety

Posted: Jul 30, 2023

I went back and looked and I don't think I've said all this here but there...

https://connect.mayoclinic.org/comment/306015/

My wife was first diagnosed with CLL

Discussion: Anyone had successful stem cell transplant for AML?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 10, 2020

"I'm otherwise going to do my best to not dwell on things I can't do anything...

https://connect.mayoclinic.org/comment/130253/

wife who, as a result of chemo from CLL

Discussion: High Coronary Calcium Score: How do others feel emotionally?

Support Group: Heart & Blood Health

Posted: Aug 10, 2019

It’s ridiculous that people have to advocate for themselves when doctors don’t take us seriously. It...

https://connect.mayoclinic.org/comment/1336585/

Especially given his CLL, and other

Discussion: Prostate Health Index (PHI) results: Time for a second opinion?

Support Group: Prostate Cancer

Posted: Jun 27 3:51pm

Hi @reneebarber77, A few months ago we had a discussion about smudge cells showing up in...

https://connect.mayoclinic.org/comment/781922/

A little information on CLL https:

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Hi @donnarichterssyndrome I’m so sorry your CLL has decided to take things up a notch. Most...

https://connect.mayoclinic.org/comment/684456/

donnarichterssyndrome I’m so sorry your CLL

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2022

I checked out MGUS and read about it forming in the bone marrow, it's related to...

https://connect.mayoclinic.org/comment/115378/

with Chronic Lymphocytic Leukemia, CLL

Discussion: Grover's Disease: What works to help find relief?

Support Group: Skin Health

Posted: Feb 16, 2020

Yes, Grovers is eczema. It will not kill you but at times you will wish you...

https://connect.mayoclinic.org/comment/210318/

have/had leukemia, a chronic form CLL

Discussion: Body itching

Support Group: Autoimmune Diseases

Posted: Sep 9, 2018

Until age 50 I had no health issues. I've never read that my other health issues...

https://connect.mayoclinic.org/comment/1370136/

developed Chronic Lymphocytic Leukemia, CLL ... I'm one of the lucky ones with CLL

Discussion: Blood pressure meds and side effects

Support Group: Heart & Blood Health

Posted: Aug 13 8:55pm