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1,039 total results
Comments (923)
Let me tell you my story which might help you. I was having horrible nerve and...
since I was 13 and not one doctor could ... to go for counseling because they could ... He said I either have Lupus, MS or HNPP ... And again not one doctor could figure ... I could be laying down and all of a
Support Group: Brain & Nervous System
Posted: Dec 9, 2021
I was told that I could not make an appt at this time for lupus/Ms symptoms....
I was told that I could not make an ... appt at this time for lupus/Ms symptoms ... I would like to get an appt at Mayo
I would see if one of your neurologist, or even your primary care would make a...
I would see if one of your neurologist ... , or even your primary care would make ... Cleveland Clinic or any other major place would ... one point, they diagnosed me with lupus
Support Group: Brain & Nervous System
Posted: Jul 3, 2021
That's good to hear, very inspirational indeed. In retrospect we always try to justify what's happened...
often there's very little that could ... regarding low folate in patients with lupus ... no longer believe I have PRS, but lupus
Hi John, I joined Mayo Connect because I kind of think something else is wrong besides...
besides what has been diagnosed and would ... me when I showed up with cutaneous lupus ... on more hydroxychloroquine than I would
Support Group: Depression & Anxiety
Posted: Jun 1, 2021
Hi Lori, Thank you so much for your reply. So great to hear that you are...
It could be a mysterious autoimmune ... one were negative in the blood work (lupus
Posted: Mar 16, 2021
This is a long shot but just in case it might help: I had frequent pleural...
treated with mycophenolate (the only Lupus ... drug I could tolerate) and did not ... mycophenolate and tried alternatives that I couldn ... I have been without Lupus treatment ... Maybe it could help you too?
Support Group: Lung Health
Posted: Sep 10, 2020
Hi @macjean and welcome to Mayo Clinic Connect. I am happy to help lay out a...
neuropathy like Sjogren's syndrome, lupus ... your physician that you were told it could ... autoimmune disorder, I am sure they would ... problem before her telling you they would
Hi there.... I'm completely new to this and its the first time I'm reaching out to...
conditions MIGHT be causing this it would ... doctor I should try to see or if there could ... just about 68 years old I had active Lupus ... to age 59 at which time it and the lupus ... Is there a test, labs or x-ray that would
Support Group: Neuropathy
Posted: Jun 14, 2020
Hi @dorrielee, I also worry and am a little fearful of the unknown when it comes...
I think it would be good to seek help ... provide more information on managing Lupus ... Treating and managing lupus and preventing ... 323665 What can I do to control my lupus ... Rochester area and Mayo Clinic, I would
Support Group: Autoimmune Diseases
Posted: Jun 12, 2020
Hi, I guess I will start from what I know First I was a very healthy...
Then all of a sudden I could not hold ... I couldn't stand or sit, I would ... Writing in class would become eligible ... and would fall off my chair. ... My doctor called them lupus feet and
Support Group: Autoimmune Diseases
Posted: Feb 3, 2020
Hello fibo sufferers , it's hard suffering from chronic pain and especially not understanding why, it's...
or head tumour , ms was mentioned, lupus ... day long , if it was visible they would ... heavy on fibromyalgia , sufferers , would
Support Group: Fibromyalgia
Posted: Jan 27, 2020