CEA test

Posted by dlupinacci28 @dlupinacci28, Mar 26, 2023

Just starting the testing journey
I had a cat scan that showed bilateral adrenal tumors, multiple nodules in the peri pancreas and Peri portal lymph’s
I had more blood work done few days ago, waiting on results and I’m going for a MRI this week
I’m so worried 😟

I’m reading prior blood work results from my hemotologist ( I have lupus) from last week,
Which was all good expect one a CEA test
That was high
Of course I’m goggling , is there any information you can share on this

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@dlupinacci28, naturally you are worried.

As you probably already have researched, increasing CEA levels can mean many things. Here’s some info from the American Association for Clinical Chemistry. https://labtestsonline.org/understanding/analytes/cea/tab/test/ which states “Increased CEA levels can indicate some non-cancer-related conditions, such as inflammation, cirrhosis, peptic ulcer, ulcerative colitis, rectal polyps, emphysema, and benign breast disease.”

I think the hardest part is waiting between tests and until all the results are in. But all these pieces are important to put the puzzle together. Googling the result of one test or the other will give an incomplete picture. Maybe put the worry into a task and start to write your questions for your doctor to help prepare for your upcoming consult after the MRI.

May I ask what symptoms led to the investigation and testing?

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Thank you so much for your response

I’ve had diarrhea for sometime now, complete water , I have discomfort on my right side to back, sometimes I can’t even sit flat on my back, I get swelling in my feet, very very swollen, I’ve had pain in my feet
( bone pain) numbness, everyday

I had a colonoscopy few weeks ago which I had 2 small nodules removed, the Gastro Dr ordered blood and stool work, the Pancreatic Elastase came back very low, 54
He then ordered a catscan which showed bilateral tumors

I’ve been going back & forth to primary, neurologist, rheumatologist
Gastro ect
I keep hearing it’s lupus related
I don’t believe it is

Back in October my neurologist did alot of blood work too, the light chains were elevated,
again I was told it’s lupus related

I recently seen a hemotologist my primary had suggested I see one,
To discuss the light chains, the catscan ect ( being I have lupus he thought this would be a good Dr to see) he did his own blood work which came back fine and he said he wasn’t concerned with the Adrenials it’s considered small, I have no prior catscan for comparison and with the blood work fine he’d see me in 6 months to check them with a mri.
He wasn’t concerned with the light chains, I felt relieved.
A few days later I had appt with my primary Dr and he felt other blood work should have been done and a mri, he wasn’t happy waiting 6 months like the hemotologist said.
So here I am

I have not discussed the CEA result with any of my Drs, I only became aware of this yesterday when I got the lab work from my hemotologist
This was never mentioned to me
And from what I’m reading it’s pretty high, 14.5

I’ve been ruled out for all stomach conditions from the gastro Dr

Sorry for all this information, I’m just trying to give you all I know right now

I appreciate you responding and I do hope I’ll have answers to all this soon

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@colleenyoung

@dlupinacci28, naturally you are worried.

As you probably already have researched, increasing CEA levels can mean many things. Here’s some info from the American Association for Clinical Chemistry. https://labtestsonline.org/understanding/analytes/cea/tab/test/ which states “Increased CEA levels can indicate some non-cancer-related conditions, such as inflammation, cirrhosis, peptic ulcer, ulcerative colitis, rectal polyps, emphysema, and benign breast disease.”

I think the hardest part is waiting between tests and until all the results are in. But all these pieces are important to put the puzzle together. Googling the result of one test or the other will give an incomplete picture. Maybe put the worry into a task and start to write your questions for your doctor to help prepare for your upcoming consult after the MRI.

May I ask what symptoms led to the investigation and testing?

Jump to this post

Thank you

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In reply to @dlupinacci28 "Thank you" + (show)
@dlupinacci28

I also have seconds to get to a bathroom with the diarrhea, thankfully it’s pretty much in the morning only, before I start my day, I get up a few hours early so I know when I leave the house I should be ok
There’s been many times when I haven’t been home and have no control over it

It’s become debilitating

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I’m so hopeful you’re okay. My oncologist blindsided me Friday afternoon with a quick FaceTime phone call. As he is packing his briefcase to go home he tells me he did a blood test called CEA and mine is 7.7 and I might have colon cancer! I’ve been anemic since my bilateral mastectomy in December. All other blood work is fine. I had DCIS. Nothing invasive. Now I’m in a panic. And he hung up the phone. Has anyone else had anemia , low ferritin, for no reason. And elevated CEA?

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