Undiagnosed - autoimmune?
I am reaching out as I am unsure where else to go or what my next steps should be. I am hoping someone may have similar symptoms and have insight on what I should do next.
Here is my story. I’m a 34 year old female, mother of three. I exercise 5 days a week and live a healthy life style. I am a social worker and prior to that was a stay at home mom.
In 2017 I developed a chronic cough. Doctors were unable to determine what caused it or how to help get rid of it so the cough continues to remain to this day.
In 2019 I developed a rash on my legs. Again, doctors looked at it and were unable to determine what the rash was or what would have caused it. The rash went away on its own in about 7-10 days.
In 2021 I noticed my hearing seemed to be going. I was dismissed by doctors as my ears looked fine – no wax build up, and due to my age they did not believe I could have hearing loss. I accessed a clinic for my own hearing test and it was determined in 2022 that I had moderate to severe permanent hearing loss in both ears. I was sent to an ENT specialist who shared that my hearing loss was due to exposure to ongoing loud noises. My husband and I explained I have not been around loud noises and my career does not expose me to loud noises. The ENT specialist shared this is the only thing that would have caused it and had nothing further to say. He suggested I get hearing aids though as he reiterated the damage is permanent. My ears continue to feel “full” all the time and my tinnitus is there daily.
This month I had tingling in my right arm and it felt like dead weight. It went away after a day however my left arm became numb. The numbness would come and go through the day but then it felt like a rock was sitting on my chest. My blood pressure kept showing A-fib randomly when I tested. My apple watch showed my heart rate in reasons drastically even when I walked (146 beats a minute). After on and off symptoms for 4 days I went to the emergency room, (my doctor was away for another 3 weeks). The doctor ran numerous
ECGs that kept coming back abnormal. But everything else (blood work, urine and X-ray) came back normal. I was sent via ambulance to a city to see a cardiologist. I had ongoing tests for three days and everything kept coming back normal. By this time my heart rate had decreased and I was feeling fine. My ECGs continued to be abnormal. The cardiologist shared my heart appeared perfect and she had no answers for my ecg or symptoms.
I am becoming very frustrated as all blood tests that are being ran come back normal or slightly higher or lower than normal but the doctors share that’s fine. I have no answers for anything. Has anyone had similar symptoms and can lead me in the right direction?