Hello. My name is Teresa and I’ve just joined this group. I was diagnosed with Bronchiectasis and MAC in September 2016 after a CT scan showed cavitating lesions and the sputum sample identified MAI/MAC. I’m seeing a Pulmonologist here in Orlando, Fl who has experience dealing with and treating patients with both conditions. The original plan was to try to control symptoms with nebulizer meds as I had so many concerns regarding the antibiotic regiment. A recent scan showed that the lesion is getting larger and my symptoms are getting worse, so I have started a course of Rifampin, Azithromycin and Ethambutol today. After just one Rifampin dose my urine is quite orange, which my doctor had given me a heads up about. I understand that this effect is harmless, but I’m wondering if it will also cause orange sweat, which would be quite an embarrassing problem to have here in the Florida heat. Has anyone else had experience with this side effect?
I’m in my 50’s and have dealt with a lot of medical issues over the years, including a breast cancer diagnosis 5 yrs ago, but to be honest this chronic condition and its treatment scares me more than anything else I’ve faced. I was glad to find this group and hope to make some connections and find/give support to others going through the same thing.
Liked by Katherine, Alumni Mentor