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1,147 total results
Comments (1,037)
I have been tested by 4 different rheumatologists for 12 years. They thought I had Lupus,...
They thought I had Lupus, but I was ... So they couldn't ever agree whether ... rheumatologist who stated that I don't have Lupus
Support Group: Fibromyalgia
Posted: Jul 5, 2025
Hi! Will try to give you my thoughts about this treatment. It was not easy but...
It turned out that rifampin gave me lupus ... hospital they said rifampin can cause the lupus ... Would i do the treatment again probably ... with better results were available i would
Support Group: MAC & Bronchiectasis
Posted: Jul 2, 2025
Wow. My Primary Care Physician thinks I have Vasculitis - PMR. Based on symptoms and elevated...
420 but said the other tests which would ... indicate lupus are in normal range. ... surgery a month before, so he said it could ... I just wish someone would explain what ... Any suggestions would be gratefully
Discussion: Elevated ssdna
Support Group: Autoimmune Diseases
Posted: Jun 19, 2025
Read most of the replies and thought I would add my story. I am 60 and...
most of the replies and thought I would ... They would open up and bleed, they would ... the rash was drug induced cutaneous lupus ... the VA does not recognize cutaneous lupus ... By the way, drug induced cutaneous lupus
Support Group: Digestive Health
Posted: Jan 19, 2019
I had my last colonoscopy a 2-3 years ago and told my GI I was having...
or I my colon was like numb and I would ... Lupus and Sjogrens have helped themself ... Any comments, suggetions would be appreciated
Hi Chris, Oh boy can I understand your pain! I had no idea that the itching...
mixed collagen vascular disease with Lupus ... It would seem to me if she was worth ... her weight in knowledge she would have
Support Group: Skin Health
Posted: Apr 27, 2020
@mlledaffodil My teen son was told by a neurologist when he was 8 that he had...
Autoimmune issues run in my family (mom had lupus ... This could potentially include conditions
Support Group: Autoimmune Diseases
Posted: Jul 22, 2025
@suetex I was on IVIG from age 10-18 until I fell off my parents insurance. I...
research neurologist in Boston) that I would ... not be in as bad shape as I am if I would ... I have Lupus, Sojourn, Hashimotos, and ... Mine could very well be autonomic by ... out by a neurophysiologist that my lupus
I have been actively fighting something for over 4 months now, since June 22nd. I apologize...
, but it kept coming back worse, I couldn ... right arm pain, tingling/numbness, could ... sweats, so it could have been related ... Could barely drive, couldn’t sit down ... thought it was Lyme disease, then Lupus
Support Group: Autoimmune Diseases
Posted: Nov 12, 2019
@m4d3c2j1 Have you seen an endocrinologist to check for Graves Disease or Cushing's Disease? Have you...
common associations include: Systemic Lupus ... symptoms—combined with your positive ANA and CRVO, could ... chronic nature of elevated cortisol could
Support Group: Autoimmune Diseases
Posted: Nov 5, 2025
Had biopsy of skin rash on arm also have it on my face came back possible...
back possible positive autoimmune ( lupus ... Has any one had a negative ana with lupus ... Would like suggestions of what to do ... (Negative ana lupus). ... figure it out because her doctors couldn
@marymaryoregon Yes, autoimmune diseases are heterogenous. Multiple pathways and targets are involved, and every patient is...
However, in CAR T clinical trials, Lupus ... Looks like most (if not all) Lupus patients ... early on, before that happens, it could
Support Group: Autoimmune Diseases
Posted: Nov 16, 2025
Hi, I’m here in SE Iowa. I am 18 years out from stage 4 tonsil and...
I would put it in category as common ... cold, my investigators make it sound ... as common as a simple cold. ... and over the years I have developed Lupus ... Back to the HPV virus I would not be