Recurring severe mouth ulcers and MGUS

Posted by djm123 @djm123, Oct 2, 2023

Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end -Oct but in desperation saw a new GP who (surprisingly knew exactly what MGUS is) believes there's causation between MGUS and the ulcers (deficient immune response). To be honest I was quite relieved that there was some explanation!! The current bout of ulcers has lasted 5weeks and counting.... Am awaiting GP-requested blood test results to check zinc, vit b, magnesium, iron etc. Also feel fatigued during these outbreaks. Anyone else experienced this?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

I’ve never heard of MGUS but search for “Behçet’s” (beh-chetz{sounds like Chet Atkins}). Also, it wouldn’t hurt to have a dermatologist look at your mouth.

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@djm123, you may be interested in these related discussions to help manage the painful mouth sores.
- Mouth Sores from chemo: When do they go away?
https://connect.mayoclinic.org/discussion/mouth-sores/
- Anyone else dealing with painful mouth sores and burning mouth
https://connect.mayoclinic.org/discussion/anyone-else-dealing-with-painful-mouth-sores-and-burning-mouth/
- Sores in mouth
https://connect.mayoclinic.org/discussion/sores-in-mouth/

@nancy1900 @gingerw may have experiences to share.

@djm123, did you learn anything from the blood tests?

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