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106 total results

Comments (100)

My 23 yr old son suffers from SFN (some LFN). You mentioned you have tremors. My...

https://connect.mayoclinic.org/comment/1068787/

Eosinophilic disease & Systemic Mastocytosis

Discussion: Has anyone had a tilt table test or examination?

Support Group: Autoimmune Diseases

Posted: May 16, 2024

Your skin issues look just like mine, and mine are likely MCAS. My skin got better...

https://connect.mayoclinic.org/comment/773544/

#39;t think Mayo treats MCAS, only mastocytosis

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 15, 2022

My allergy pulmonologist is at a large university setting. There is a data base of physicians...

https://connect.mayoclinic.org/comment/134351/

It’s the website called The Mastocytosis

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2019

Hello @@danmlee, Thank you for sharing your story; I'm truly sorry that you are going through...

https://connect.mayoclinic.org/comment/134285/

have all talked about MCAs and/or mastocytosis

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2017

@ame0810 Hi, for sure-I saw Dr Mariana Castells at Brigham and Womens Hospital in Boston. She...

https://connect.mayoclinic.org/comment/815153/

and Desensitization Center Director Mastocytosis

Discussion: Autoimmune Progesterone Dermatitis

Support Group: Autoimmune Diseases

Posted: Feb 21, 2023

Moylandavis, you are right. Remarkably, my husband's best friend got diagnosed with mastocytosis and, in his...

https://connect.mayoclinic.org/comment/774393/

#39;s best friend got diagnosed with mastocytosis

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 17, 2022

I have been diagnosed with Mast Cell Activation Syndrome. One of the 1st signed was severe...

https://connect.mayoclinic.org/comment/709697/

/ SCIENTIST LIVING WITH SYSTEMIC MASTOCYTOSIS ... rarediseases.info.nih.gov/diseases/6987/mastocytosis ... conditions-treatments/related-conditions/systemic-mastocytosis

Discussion: Now what? My daughter is dealing with severe GERD and urticaria

Support Group: Autoimmune Diseases

Posted: May 19, 2022

My 1st fracture was my T9 vertebrae in my back. I was playing volleyball and raised...

https://connect.mayoclinic.org/comment/90533/

osteoporosis and then diagnosed with System Mastocytosis

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Oct 13, 2017

Oh, Carolee888, I hope we are two peas in a pod in this regard. After 18...

https://connect.mayoclinic.org/comment/780179/

Diagnosed as Case #138 in America with mastocytosis ... one genius of an Allergist steered a mastocytosis