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Comments (2,481)

I have lupus and very high anti-centromere indicating possible limited systemic scleroderma like you, as well...

https://connect.mayoclinic.org/comment/1136415/

I have lupus and very high anti-centromere ... My daughter has lupus and the rheunatologist ... likely contributor to my afib than lupus

Discussion: Looking for Afib or Flutter with Autoimmune Systemic Scleroderma Help

Support Group: Heart Rhythm Conditions

Posted: Sep 4, 2024

These discussions are most helpful and I am coming to realize how difficult it is to...

https://connect.mayoclinic.org/comment/892031/

I was diagnosed with borderline Lupus ... I have elevated markers for Lupus and ... Methimazole) was causing medicated induced lupus

Discussion: Widespread Body Pain and High ANA

Support Group: Autoimmune Diseases

Posted: Jul 8, 2023

Hello! I am a 34 year old female. My story starts in November of 2022. I...

https://connect.mayoclinic.org/comment/801574/

have antiphospholipid syndrome and lupus ... My family doctor said I do not have lupus ... the hematologist who will manage the lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jan 25, 2023

Hello, After I got the vaccine for Covid-19 I started getting what I call pings all...

https://connect.mayoclinic.org/comment/1065770/

work was done to find out that I have Lupus ... Can you imagine being told you have Lupus ... said that the inflammation from the Lupus

Discussion: Peripheral Neuropathy caused by Lupus - Anyone?

Support Group: Autoimmune Diseases

Posted: May 11, 2024

My daughter at age 18 was diagnosed with ITP, spent a week in the hospital receiving...

https://connect.mayoclinic.org/comment/1345088/

later she was finally diagnosed with Lupus ... treated for over twenty years for the Lupus

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 10:28am

I also have Lupus in addition and monk fruit is a sugar replacement that you can...

https://connect.mayoclinic.org/comment/1082038/

I also have Lupus in addition and

Discussion: Looking for the best lifestyle changes to reduce symptoms

Support Group: Autoimmune Diseases

Posted: Jun 6, 2024

Also my dsdna was only mildly elevated. After the Compliments were negative and no kidney problems...

https://connect.mayoclinic.org/comment/1258887/

were negative and no kidney problems lupus

Discussion: Seeking diagnosis

Support Group: Autoimmune Diseases

Posted: Mar 15 6:12pm

Giant cell enterprise? Can you explain please? You can eat night shades? I get a little...

https://connect.mayoclinic.org/comment/1191765/

My lupus symptoms are some of my worst

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Dec 16, 2024

@jujazz it depends on your symptoms and whether the lupus affects internal organs. I have had...

https://connect.mayoclinic.org/comment/1017718/

depends on your symptoms and whether the lupus

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 18, 2024

@colleenyoung , I make informed choices in my healthcare based on me, as an individual. And...

https://connect.mayoclinic.org/comment/97447/

since before the diagnosis of Systemic Lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 21, 2018

I first started with Benlysta injections and then started Iv Benlysta. I’ve been on this a...

https://connect.mayoclinic.org/comment/1360776/

I have lupus and raynaud also.

Discussion: Saphnelo vs Benlysta

Support Group: Autoimmune Diseases

Posted: Jul 31 1:18pm

I think the symptoms she had supposedly from lupus have resolved, however she struggles with dialysis....

https://connect.mayoclinic.org/comment/1259643/

the symptoms she had supposedly from lupus ... We thought she had lupus, but now…..

Discussion: Conflicting diagnosis concerning lupus

Support Group: Autoimmune Diseases

Posted: Mar 16 2:52pm

I am 59 and are experiencing most of the symptons you mentioned. I was diagnosed with...

https://connect.mayoclinic.org/comment/1148502/

I was diagnosed with Discoid Lupus in ... question to you is were you teated for LUPUS

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Sep 28, 2024

I hear you! Diagnosed in 2002. No one believed I was sick. My son said I...

https://connect.mayoclinic.org/comment/1065736/

Then in 2022, diagnosed with Lupus. ... Was it Lupus all along? Not sure.

Discussion: Fibromyalgia..Is It an autoimmune disease?

Support Group: Fibromyalgia

Posted: May 11, 2024

Hi. It depends on the severity of your lupus. Like someone mentioned, if it starts to...

https://connect.mayoclinic.org/comment/1022268/

It depends on the severity of your lupus ... My doctor has swung between lupus and

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2024

@sal99 There is no known link between lupus and MGUS after vaccinations for COVID, that I...

https://connect.mayoclinic.org/comment/824573/

sal99 There is no known link between lupus ... people may not understand, is that lupus

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

WOW! mattymatilda @mattymatilda, https://www.mayoclinic.org/diseases-conditions/mixed-connective-tissue-disease/symptoms-causes/syc-20375147 Just( PV-MF and several other diagnosis) That's so hard and frustrating. My...

https://connect.mayoclinic.org/comment/816334/

My sister-in-law has Lupus, best friend ... mom, Lupus almost killed her, then

Discussion: Polycythemia with MCTD/Autoimmune disorder Lupus, etc.

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Disease modifying drugs like plaquenil can take months to provide any relief. As far as what...

https://connect.mayoclinic.org/comment/108488/

for with systemic involvement are Lupus ... guess that they think that you have Lupus

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 20, 2016

Autoimmune my ESR, C3 , ANA along with other autoimmune markers in my blood are high....

https://connect.mayoclinic.org/comment/1205340/

I have Sjogrens, SLE (lupus) and RA.

Discussion: New Kid on the block with several questions

Support Group: Neuropathy

Posted: Jan 6 12:32pm

Hi Emily, I also have autoimmune progesterone and lupus and have also had skin rashes and...

https://connect.mayoclinic.org/comment/1267552/

also have autoimmune progesterone and lupus

Discussion: Autoimmune Progesterone Dermatitis

Support Group: Autoimmune Diseases

Posted: Mar 26 5:52pm