Polycythemia with MCTD/Autoimmune disorder Lupus, etc.

Posted by mattymatilda @mattymatilda, Jan 7, 2023

Hi everyone
Wondering if anyone with polycythemia also has an autoimmune immune disease? I was just diagnosed with muscle tissue disorder and still testing for Lupus. Appreciate and comments. Thanks.

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WOW! mattymatilda @mattymatilda, https://www.mayoclinic.org/diseases-conditions/mixed-connective-tissue-disease/symptoms-causes/syc-20375147
Just( PV-MF and several other diagnosis) That's so hard and frustrating. My sister-in-law has Lupus, best friend mom, Lupus almost killed her, then months trying to relearn to walk and talk. Several cold urticaria group; deals with Sjogren's syndrome and others autoimmune disorders also. I talk to people all over the world, we all have crazy stories and adventures! Thank full I have this group; no one in those facebook groups have PPV-MF but several people here have PV. It's wonderful to have a connection with people who understand! Hope you find support and help and good doctors.! My heart and My prayers


You are very kind. I appreciate your response. I feel better now. I will continue to stay on this chat. It’s always good to hear someone else knows exactly how you feel. Take care of yourself. ☺️

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