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833 total results

Comments (763)

Hi John, you are correct, it is not uncommon to misdiagnose PMR. This is my story......

https://connect.mayoclinic.org/comment/1263934/

Diagnosis came back as Amyloidosis. ... The Amyloidosis is similar, however, ... doubts I had PMR and feels that my Amyloidosis

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 8:50am

@peach414144, @so1frustrated, I am aware that this has been a busy and a difficult week for...

https://connect.mayoclinic.org/comment/591793/

sofrustrated about your mention of Amyloidosis

Discussion: Almost pure blood and blood clots in urine

Support Group: Kidney & Bladder

Posted: Apr 4, 2021

@kromp Hi, K. I have a couple thoughts about your pain. The Spleen is located just...

https://connect.mayoclinic.org/comment/182099/

Amyloidosis of various mutations is

Discussion: Pain in the left side of chest

Support Group: Heart & Blood Health

Posted: Jan 22, 2018

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

biopsy done in 2022 that ruled out amyloidosis

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14 4:05pm

@robbinr, sounds like you have some real issues there. But may I suggest you talk to...

https://connect.mayoclinic.org/comment/153219/

mis-folded protein disease deposit, or Amyloidosis ... And contact Amyloidosis.org for info

Discussion: Fibromyalgia and Spinal Bone Spurs

Support Group: Fibromyalgia

Posted: Sep 13, 2017

Hi, all f you. I appreciate the question you ask about being distracted from pain. For...

https://connect.mayoclinic.org/comment/116859/

in a simple computer file and call Amyloidosis

Discussion: What Distracts You From the Pain?

Support Group: Chronic Pain

Posted: Aug 18, 2017

Hello @tcokeefe Thank you so much for writing! Yes, I went to Mayo in 2020, I...

https://connect.mayoclinic.org/comment/831531/

They were looking for amyloidosis, but ... the good news was I didn't have amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Mar 24, 2023

I have a co worker with MM Amyloidosis but his was with his lungs. He received...

https://connect.mayoclinic.org/comment/903269/

I have a co worker with MM Amyloidosis

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2023

@z4upper, Glad you are making progress with your diagnosis., but it is not great surprise. Every...

https://connect.mayoclinic.org/comment/691763/

Much of this is Multiple Myeloma, >Amyloidosis

Discussion: My Mysterious Illness

Support Group: Heart & Blood Health

Posted: Mar 22, 2022

@tayleebuzz As Lori said, this can be very confusing. I live in rural Oregon, and the...

https://connect.mayoclinic.org/comment/594415/

know that I have a large package of Amyloidosis

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2021

@alexgoldman2 Alex, you are so right. It is very bad psychological condition, especially with the headaches...

https://connect.mayoclinic.org/comment/104529/

least in part the result of a form of Amyloidosis

Discussion: Cerebellum Atrophy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 14, 2021

@kbirrer88 Look. I am not a doctor, not even a duck. But I doubt you have...

https://connect.mayoclinic.org/comment/54853/

I have hereditary Gelsolin Amyloidosis

Discussion: "Electric Shock" type pain in my scalp!

Support Group: Chronic Pain

Posted: Sep 11, 2018

@chromebottle50 Hi, Chromy. I, too have pretty heavy neuropathy and diabetes. The only thing I can...

https://connect.mayoclinic.org/comment/166610/

especially some form of diseases like Amyloidosis

Discussion: Neuropathy due to long untreated diabetes

Support Group: Neuropathy

Posted: Jan 31, 2018

Hi, Carnes. You have enough issues, symptoms and signs to raise a high suspicion of primary...

https://connect.mayoclinic.org/comment/163677/

suspicion of primary systemic cardiac amyloidosis

Discussion: Non-Ischemic Cardiomyopathy: Need a direction ->

Support Group: Heart & Blood Health

Posted: Aug 16, 2017

Hi, Larry. @crashnam Are you sure you wrote this? And not me? First, I quit metroprolol...

https://connect.mayoclinic.org/comment/161998/

that I have some form of Cardiac AL Amyloidosis ... Flag Warnings for hATTR and other Amyloidoses

Discussion: Afib & PVC's

Support Group: Heart Rhythm Conditions

Posted: Aug 4, 2017

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

**Amyloidosis**: - In some cases

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

I also a very disappointed that Mayo isn’t taking any new neurology patients. I have been...

https://connect.mayoclinic.org/comment/1117638/

symptoms, and MS was ruled out, as was Amyloidosis

Discussion: I have a neurological illness that has puzzled doctors.

Support Group: Brain & Nervous System

Posted: Aug 4, 2024

Hi @johnbishop, while your comment about not finding a cure is surely true for the vast...

https://connect.mayoclinic.org/comment/803417/

t know the status) for one type of amyloidosis

Discussion: Frustrated and tired, every test came back normal

Support Group: Neuropathy

Posted: Jan 29, 2023

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

@doub2018 Yes, doug, I have heard of this. I have the spurs and stenosis and the...

https://connect.mayoclinic.org/comment/184388/

pretty sure it is hereditary Gelsolin Amyloidosis

Discussion: DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

Support Group: Spine Health

Posted: Sep 21, 2018