Amyloidosis – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

846 total results

Comments (773)

Thank you I know nothing about this disease I have been battling HCM since 2013 since...

https://connect.mayoclinic.org/comment/886104/

numbers where elavated he rulled out amyloidisis ... all except AL amyloidosis and is sending

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

@plbb1 Let's get honest, and step up your diagnostic work up a couple notches. First, some...

https://connect.mayoclinic.org/comment/657504/

issues and cancers, such as RA, and Amyloidosis ... It is part of the Gelsolin (Finnish Amyloidosis

Discussion: Right Cheek Swelling

Support Group: Autoimmune Diseases

Posted: Nov 26, 2021

What is the process for wanting to be evaluated at the Mayo Clinic? How do you...

https://connect.mayoclinic.org/comment/645619/

protein, light chains, wild type cardiac amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2021

@pdsi43one @techi Hi, folks. I am not sure you don't know this, but much encephalopathy, rheumatoid,...

https://connect.mayoclinic.org/comment/182443/

paper at https://bit.Ly/1w7j4j8 under Amyloidosis

Discussion: Twitching feet, numbness and headache

Support Group: Neuropathy

Posted: Feb 4, 2018

This is a little offensive! I promise you there is a lot I have to except...

https://connect.mayoclinic.org/comment/986605/

I have Amyloidosis which is a death

Discussion: Chronic pain and upper abdomen? Please see added messages!!!

Support Group: Chronic Pain

Posted: Dec 26, 2023

@seancaden Hi, friend. I know a little of the crap you are dealing with. My wife...

https://connect.mayoclinic.org/comment/179956/

hereditary primary systemic ATTRwt Amyloidosis

Discussion: Seizure control? I can't seem to get any help

Support Group: Epilepsy & Seizures

Posted: Jan 9, 2018

Yes, to make it short. But a couple lab tests might give you a clue.First, though,...

https://connect.mayoclinic.org/comment/149847/

Amyloidosis? ... And contact Amyloidosis.Org for lots

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 17, 2017

I had covid on 3/23 for about 10 days followed by 9 mo of long covid...

https://connect.mayoclinic.org/comment/1384039/

Kappa MGUS, but kidney biopsy for amyloidosis

Discussion: Has anyone had kidney problems after having COVID?

Support Group: Kidney Conditions

Posted: Sep 1 9:35am

Hi John, you are correct, it is not uncommon to misdiagnose PMR. This is my story......

https://connect.mayoclinic.org/comment/1263934/

Diagnosis came back as Amyloidosis. ... The Amyloidosis is similar, however, ... doubts I had PMR and feels that my Amyloidosis

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 8:50am

I was diagnosed with Systemic Amyloidosis AL March 2024. @ the Mayo Clinic Rochester. What a...

https://connect.mayoclinic.org/comment/1392891/

I was diagnosed with Systemic Amyloidosis

Discussion: Treatment approaches for MRD positive AML in remission

Support Group: Blood Cancers & Disorders

Posted: Sep 13 12:17pm

@robbinr, sounds like you have some real issues there. But may I suggest you talk to...

https://connect.mayoclinic.org/comment/153219/

mis-folded protein disease deposit, or Amyloidosis ... And contact Amyloidosis.org for info

Discussion: Fibromyalgia and Spinal Bone Spurs

Support Group: Fibromyalgia

Posted: Sep 13, 2017

Hi, all f you. I appreciate the question you ask about being distracted from pain. For...

https://connect.mayoclinic.org/comment/116859/

in a simple computer file and call Amyloidosis

Discussion: What Distracts You From the Pain?

Support Group: Chronic Pain

Posted: Aug 18, 2017

@kromp Hi, K. I have a couple thoughts about your pain. The Spleen is located just...

https://connect.mayoclinic.org/comment/182099/

Amyloidosis of various mutations is

Discussion: Pain in the left side of chest

Support Group: Heart & Blood Health

Posted: Jan 22, 2018

@peach414144, @so1frustrated, I am aware that this has been a busy and a difficult week for...

https://connect.mayoclinic.org/comment/591793/

sofrustrated about your mention of Amyloidosis

Discussion: Almost pure blood and blood clots in urine

Support Group: Bladder Conditions

Posted: Apr 4, 2021

@z4upper, Glad you are making progress with your diagnosis., but it is not great surprise. Every...

https://connect.mayoclinic.org/comment/691763/

Much of this is Multiple Myeloma, >Amyloidosis

Discussion: My Mysterious Illness

Support Group: Heart & Blood Health

Posted: Mar 22, 2022

@tayleebuzz As Lori said, this can be very confusing. I live in rural Oregon, and the...

https://connect.mayoclinic.org/comment/594415/

know that I have a large package of Amyloidosis

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2021

I have a co worker with MM Amyloidosis but his was with his lungs. He received...

https://connect.mayoclinic.org/comment/903269/

I have a co worker with MM Amyloidosis

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2023

Hello @tcokeefe Thank you so much for writing! Yes, I went to Mayo in 2020, I...

https://connect.mayoclinic.org/comment/831531/

They were looking for amyloidosis, but ... the good news was I didn't have amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Mar 24, 2023

Hi @johnbishop, while your comment about not finding a cure is surely true for the vast...

https://connect.mayoclinic.org/comment/803417/

t know the status) for one type of amyloidosis

Discussion: Frustrated and tired, every test came back normal

Support Group: Neuropathy

Posted: Jan 29, 2023

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022