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Comments (795)

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

temporarily moving someplace with a good amyloidosis

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024

Do not worry Jenrico. Your symptoms are common for AL but will improve the more you...

https://connect.mayoclinic.org/comment/88307/

live but if you can try and attend an Amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2016

Hi Amanda, Thank you so much for this helpful info:) I'm not on any medications. This...

https://connect.mayoclinic.org/comment/652165/

My 83yr old Father has amyloidosis. ... me the only way they detected the amyloidosis

Discussion: Slurred, nasal speech, Scallop tongue with ringing or buzzing sounds

Support Group: Brain & Nervous System

Posted: Nov 7, 2021

@Skye13 Hi, Skye. That is one of the best names in the English language. Anyway, I...

https://connect.mayoclinic.org/comment/182342/

it MCTD, I know it by another name, Amyloidosis ... free, from https://bit.Ly/1w7j4j8 "Amyloidosis

Discussion: Possible MCTD and Vasculitis

Support Group: Autoimmune Diseases

Posted: Jan 26, 2018

@lailaamin , One of my life-long problems is HCM. Mine was first diagnosed at about age...

https://connect.mayoclinic.org/comment/298702/

Gelsolin (Meretoja's, Finnish Amyloidosis ... Gertz big book on Amyloidosis, so several

Discussion: Heart Disease: Let’s Talk About the Emotional Side

Support Group: Heart & Blood Health

Posted: May 31, 2020

@ssbionicknee I looked at your notes. "besides the osteoarthritis, ... degenerate disc disease in my spine...

https://connect.mayoclinic.org/comment/213378/

package of symptoms and signs of various Amyloidosis ... Grogan's Mayo video on diagnosing Amyloidosis

Discussion: Questions about osteoarthritis.

Support Group: Bones, Joints & Muscles

Posted: Aug 26, 2018

Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other...

https://connect.mayoclinic.org/comment/157940/

Disorders > Current diagnosis is Amyloidosis

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 3, 2019

@whiterose67 Hi, friend. My " painful feet and calves due to hypothyroidism bought on from thyroid...

https://connect.mayoclinic.org/comment/110672/

cancer brought on by my Light Chain Amyloidosis

Discussion: Hypothyroidism and Thyroid Cancer

Support Group: Thyroid Cancer

Posted: Mar 31, 2018

Hi, Darlia. Two quick notes. 1. I agree with @Jimhd. Sleep Study and potential narcolepsy. However,...

https://connect.mayoclinic.org/comment/92035/

Like Amyloidosis but without the biopsy

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 2, 2017

@nanny23 Nanny, at this point I can only add a bit of info. One of the...

https://connect.mayoclinic.org/comment/151328/

do this, such as various forms of Amyloidosis

Discussion: Looking for answers to help with gastroparesis

Support Group: Digestive Health

Posted: Feb 4, 2020

Lori, Yes I appreciate what you are saying. Sometimes it is best to leave well enough...

https://connect.mayoclinic.org/comment/775155/

oncologist with a special interest in amyloidosis

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Judging from the groaning and complaining coming from my monitor when I opened this page a...

https://connect.mayoclinic.org/comment/721438/

I have both Gelsolin (Amyloidosis) and

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 27, 2022

@okieshan1 I, too, have to deal with an autoimmune piece that has changed my life. My...

https://connect.mayoclinic.org/comment/216259/

show positive for Hereditary Gelsolin Amyloidosis

Discussion: Need TKR and had positive allergy testing / Bone Cement and Metals

Support Group: Joint Replacements

Posted: Sep 22, 2018

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

understanding of Waldenstroms and amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

@patriciajennye Hi, Patsy. Over the last couple of centuries several members of my family, including me,...

https://connect.mayoclinic.org/comment/183534/

We have some form of Light Chain Amyloidosis ... freely at https://bit.Ly/1w7j4j8 "Amyloidosis

Discussion: Has anyone suffered from lumbar spinal stenosis? Did you have surgery?

Support Group: Spine Health

Posted: Feb 6, 2018

@ditamontoya and @hopeful33250 .. I was diagnosed as having LGMDr23 in 2015 by two labs working...

https://connect.mayoclinic.org/comment/730075/

diseases, often related to a myeloma(amyloidosis ... I have Gelsolin (Finnish Amyloidosis

Discussion: Limb Girdle Muscular Dystrophy

Support Group: Bones, Joints & Muscles

Posted: Jul 24, 2022

@feb ... Kathy, sounds to me that you have what is known by a bunch of...

https://connect.mayoclinic.org/comment/685009/

of different names besides Finnish Amyloidosis ... especially, the existence of the GSN - Amyloidosis

Discussion: Chest and upper back pain with bronchiectasis and pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Feb 27, 2022

I have a long way to go because I’ve only started to address the issue in...

https://connect.mayoclinic.org/comment/678135/

My father was Diagnosed with Amyloidosis

Discussion: B12 Deficiency common or not in redheads

Support Group: Brain & Nervous System

Posted: Feb 6, 2022

I have been SOB most of my life, and I am 80 now. Honestly, I have...

https://connect.mayoclinic.org/comment/203036/

Spongiform Encephalopathy), Gelsolin Amyloidosis

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 11, 2020

Lori, Thank you for the article, and for your inquiry also I am still uncertain as...

https://connect.mayoclinic.org/comment/775063/

The wild type and AL cardiac amyloidosis

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022