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833 total results

Comments (763)

I was diagnosed in April 2016. I had been losing weight and anemic but my GP...

https://connect.mayoclinic.org/comment/195555/

Mayo Clinic it was found I also had amyloidosis ... Bone Marrow biopsy showed the amyloidosis

Discussion: Darzalex Treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...

https://connect.mayoclinic.org/comment/1163333/

decrease damage, including if someone has amyloidosis

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Geez, @chronicpaincanada, That is a rough one. I know, because I have had much of the...

https://connect.mayoclinic.org/comment/702216/

body, and that it was mutating into Amyloidosis

Discussion: Canadian needs desperate help: What can I do for all over body pain?

Support Group: Chronic Pain

Posted: Apr 25, 2022

Good morning!. I just read the post from @imhart. Sounds really familiar. I have the "diastolic...

https://connect.mayoclinic.org/comment/103055/

known as Finnish Hereditary Systemic Amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Mar 6, 2020

@manalabbass I have the floaters in my vision as well. Mine are sometimes like tin pieces...

https://connect.mayoclinic.org/comment/76423/

the material on various mutations of Amyloidosis

Discussion: Visual Snow: Anyone experience this?

Support Group: Eye Conditions

Posted: Sep 18, 2018

@gregorylynn I will be 83 in April, and I have dozens of illnesses, diseases and crap....

https://connect.mayoclinic.org/comment/787873/

Sleep Apnea to Gelsolin (Myeloma, Amyloidosis

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Dec 23, 2022

@evoxmas I just found out about this forum yesterday, so I am sure a lot has...

https://connect.mayoclinic.org/comment/1041695/

and test for rare diseases such as amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

nrocpop, great question. my genetics say I have Lynch. and Myeloma. Many lab tests show the...

https://connect.mayoclinic.org/comment/768778/

For a person suffering with amyloidosis

Discussion: Tested postive for Lynch Syndrome: Anyone have this?

Support Group: Cancer

Posted: Nov 3, 2022

I was diagnosed with system amyloidosis AL in March @ the Mayo Clinic in Rochester Minnesota....

https://connect.mayoclinic.org/comment/1069538/

I was diagnosed with system amyloidosis

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

When I first started getting acquainted with LGMDr23, I had been pushing around Gelsolin (Finnish Amyloidosis)...

https://connect.mayoclinic.org/comment/730654/

been pushing around Gelsolin (Finnish Amyloidosis

Discussion: Stem cells for Autoimmune Diseases

Support Group: Autoimmune Diseases

Posted: Jul 25, 2022

@krissylamb Sad to say, but reading your report was very good for me. I finally found...

https://connect.mayoclinic.org/comment/196775/

Mine is Gelsolin, a form of Amyloidosis

Discussion: Dizziness for over 2 years.

Support Group: Brain & Nervous System

Posted: Sep 19, 2018

It is definitely more likely that one will die with MGUS as a benign and asymptomatic...

https://connect.mayoclinic.org/comment/1112835/

chances of progression of neuropathies, amyloidosis ... hematologist actually ordered testing for amyloidosis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Thank you I know nothing about this disease I have been battling HCM since 2013 since...

https://connect.mayoclinic.org/comment/886104/

numbers where elavated he rulled out amyloidisis ... all except AL amyloidosis and is sending

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

@plbb1 Let's get honest, and step up your diagnostic work up a couple notches. First, some...

https://connect.mayoclinic.org/comment/657504/

issues and cancers, such as RA, and Amyloidosis ... It is part of the Gelsolin (Finnish Amyloidosis

Discussion: Right Cheek Swelling

Support Group: Autoimmune Diseases

Posted: Nov 26, 2021

What is the process for wanting to be evaluated at the Mayo Clinic? How do you...

https://connect.mayoclinic.org/comment/645619/

protein, light chains, wild type cardiac amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2021

@pdsi43one @techi Hi, folks. I am not sure you don't know this, but much encephalopathy, rheumatoid,...

https://connect.mayoclinic.org/comment/182443/

paper at https://bit.Ly/1w7j4j8 under Amyloidosis

Discussion: Twitching feet, numbness and headache

Support Group: Neuropathy

Posted: Feb 4, 2018

@seancaden Hi, friend. I know a little of the crap you are dealing with. My wife...

https://connect.mayoclinic.org/comment/179956/

hereditary primary systemic ATTRwt Amyloidosis

Discussion: Seizure control? I can't seem to get any help

Support Group: Epilepsy & Seizures

Posted: Jan 9, 2018

Yes, to make it short. But a couple lab tests might give you a clue.First, though,...

https://connect.mayoclinic.org/comment/149847/

Amyloidosis? ... And contact Amyloidosis.Org for lots

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 17, 2017

This is a little offensive! I promise you there is a lot I have to except...

https://connect.mayoclinic.org/comment/986605/

I have Amyloidosis which is a death

Discussion: Chronic pain and upper abdomen? Please see added messages!!!

Support Group: Chronic Pain

Posted: Dec 26, 2023

I was diagnosed with Systemic Amyloidosis AL March 2024. @ the Mayo Clinic Rochester. What a...

https://connect.mayoclinic.org/comment/1392891/

I was diagnosed with Systemic Amyloidosis

Discussion: Treatment approaches for MRD positive AML in remission

Support Group: Blood Cancers & Disorders

Posted: 5 days ago