Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
651 total results
Comments (610)
@1634517678, did you know there is an Epilepsy group on Connect here: https://connect.mayoclinic.org/group/epilepsy-2bb359/ Your participation in...
https://connect.mayoclinic.org/comment/254284/
seen the discussions on Connect about ME ... /CFS? ... Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: How to talk to my doctor & share research/knowledge I have found?
Support Group: Just Want to Talk
Posted: Mar 18, 2019
I do research, but have also had ME/CFS since 1984 and Long Covid since 2022. 95%...
https://connect.mayoclinic.org/comment/1338567/
I do research, but have also had ME/ ... CFS since 1984 and Long Covid since ... /CFS or Long Covid patients. ... Research on ME/CFS can be found on the ... https://hhv-6foundation.org/category/me-cfs
Discussion: EBV/HHV-6 reactivation
Support Group: Post-COVID Recovery & COVID-19
Posted: Jun 30 1:12pm
I’ve actually had active full-blown mono twice. 1st time was 1990, 2nd time around 2010. In...
https://connect.mayoclinic.org/comment/184081/
He diagnosed ME/CFS and it was my understanding ... Has your doctor mentioned ME/CFS? ... the difference is between CREBV and ME ... /CFS?
Discussion: Is chronic reactivated EBV different from chronic active EBV?
Support Group: Infectious Diseases
Posted: Sep 26, 2019
Welcome @hkgood . I’m so sorry to hear about your new diagnosis. Am I correct in...
https://connect.mayoclinic.org/comment/1436281/
your diagnosis of Chronic Fatigue is ME ... /CFS? ... I have had ME/CFS (Myalgic Encephalomyelitis ... ME/CFS can take many turns as it can ... to understand. https://solvecfs.org/me-cfs-long-covid
Discussion: New to the group - but have chronic fatigue?
Support Group: Fibromyalgia
Posted: 6 days ago
Don't know where else to list this. No one is paying much attention to ME/CFS. There...
https://connect.mayoclinic.org/comment/677698/
No one is paying much attention to ME ... /CFS. ... /CFS. ... /CFS people. ... Instead, those of us who have ME/CFS
Discussion: Autoimmune encephalopathy anyone?
Support Group: Autoimmune Diseases
Posted: Feb 4, 2022
Hello @lacigirl, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
https://connect.mayoclinic.org/comment/632829/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: Autoimmune Fatigue and/or Chronic Fatigue
Support Group: Autoimmune Diseases
Posted: Sep 5, 2021
Welcome @dt200r, You mentioned your symptoms were classic PEM. I did find some information that might...
https://connect.mayoclinic.org/comment/1112530/
"The pathognomonic symptom of ME ... /CFS is post-exertional malaise (PEM ... Did your doctors mention PEM or ME ... /CFS?
Discussion: Long haul Covid tremors and muscle spasms
Support Group: Post-COVID Recovery & COVID-19
Posted: Jul 27, 2024
The CDC has dropped Cognitive Behavioral Therapy and Graded Exercise Therapy recommendations, and the New York...
https://connect.mayoclinic.org/comment/200387/
www.health.ny.gov/diseases/conditions/me-cfs ... /CFS patients have to be with exercise ... ME/CFS patients have severe aerobic ... /CFS are not caused by deconditioning ... /CFS patients into moderate or severe
Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Support Group: Just Want to Talk
Posted: May 19, 2018
I had terrible GI symptoms. I went on a dairy free, gluten free, low anti-histamine diet....
https://connect.mayoclinic.org/comment/752200/
My PCP put me on omeprazole 40 mg and ... My son has ME/CFS and when he was at ... As soon as his ME/CFS calmed down, the
Discussion: Continuous tummy pain post covid
Support Group: Post-COVID Recovery & COVID-19
Posted: Sep 21, 2022
@witsend000, I know it has to be extremely difficult dealing with so many symptoms and not...
https://connect.mayoclinic.org/comment/715596/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: Need advice on multiple symptoms (*long post*)
Support Group: Just Want to Talk
Posted: Jun 8, 2022
Thank you for sharing this and I do think it is relevant to share with our...
https://connect.mayoclinic.org/comment/1068258/
the article especially stood out to me ... Importantly, according to Pollack, ME ... /CFS and Long COVID commonly co-occur ... /CFS or Long COVID." I would add ... /CFS or Long Covid because that'
Discussion: Yale Paper: Long COVID/ME/CFS
Support Group: Post-COVID Recovery & COVID-19
Posted: May 15, 2024
Hi @dan1940, welcome. Let me introduce you to a few other ME/CFS members like @petuniamom567 @karina77...
https://connect.mayoclinic.org/comment/691409/
Let me introduce you to a few other ... ME/CFS members like @petuniamom567 @ ... Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: ME/CFS and loss appetite
Support Group: Just Want to Talk
Posted: Mar 20, 2022