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706 total results

Comments (651)

Thanks for your comments. I did want to reply though and say that we are our...

https://connect.mayoclinic.org/comment/186037/

concerned that it was leukocytoclastic vasculitis

Discussion: Adrenaline spikes: Med detective needed, award given

Support Group: Diabetes & Endocrine System

Posted: May 18, 2018

Hi, I have totally deftness in my left ear. It was sudden acute. I had no...

https://connect.mayoclinic.org/comment/875083/

I was diagnosed with Takayasu’s vasculitis

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Jun 8, 2023

I have had numerous blood draws since October when a blood test sinched the diagnosis of...

https://connect.mayoclinic.org/comment/816300/

requested a referral to UCSF at a vasculitis

Discussion: Anyone else with Churg-Strauss or EPGA?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2023

@zara2021, @becsbuddy, and all...Wow, what a rough time you're having. I think that rheumatologist is real...

https://connect.mayoclinic.org/comment/658752/

wonderful rheumatologist who diagnosed vasculitis

Discussion: Reactive Arthritis?

Support Group: Autoimmune Diseases

Posted: Nov 30, 2021

I would consult another cardiologist. A surgeon has a lot of experience because patients come back...

https://connect.mayoclinic.org/comment/1237726/

She may have vasculitis or peripheral

Discussion: Cardiologist and Cardiac Surgeon disagree on TAVR

Support Group: Heart & Blood Health

Posted: Feb 15 4:22pm

@kitspeirs, @rms, @cass57 and all..Your info is helpful, concerning to me. My precious aneurysm is ascending...

https://connect.mayoclinic.org/comment/709324/

grrrrr...48, growing some and with vasculitis

Discussion: Ascending thoracic aneurysm: What should I do and not do?

Support Group: Aortic Aneurysms

Posted: May 18, 2022

Hello! Sounds like you’ve got a lot going on. Six years ago, I was diagnosed with...

https://connect.mayoclinic.org/comment/185361/

doesn’t neatly fall into any of the vasculitis

Discussion: Aortic Aneurysms – Introduce yourself & meet others

Support Group: Aortic Aneurysms

Posted: Jun 12, 2019

@sayaboleh Thanks for the info on recurrence rates of ntm good to know. While I was...

https://connect.mayoclinic.org/comment/261927/

Rare Autoimmune Disease That Causes Vasculitis

Discussion: Negative sputum results without treatment

Support Group: MAC & Bronchiectasis

Posted: May 14, 2019

My experience with GCA is similar in that I too have large vessel vasculitis GCA ,...

https://connect.mayoclinic.org/comment/1194814/

similar in that I too have large vessel vasculitis

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2024

I was diagnosed with EGPA in February of 2024 after about 14 years of advancing symptoms...

https://connect.mayoclinic.org/comment/1217912/

finally chronic pain, weakness, and vasculitis

Discussion: Does anyone else have a diagnosis of EGPA vasculitis?

Support Group: Autoimmune Diseases

Posted: Jan 21 7:11am

Hi ya thanks for your reply. My diabetes is under control, and my B6 , Iron,...

https://connect.mayoclinic.org/comment/1149205/

16 years ago I nearly died from the Vasculitis

Discussion: Burning nerve pain, with raw sore feeling under the ball of my feet

Support Group: Neuropathy

Posted: Sep 29, 2024

Hi @aigerimkabulova. Just some reassurance in this daunting time. I am 2 yr post covid with...

https://connect.mayoclinic.org/comment/964519/

covid with now suspected small vessel vasculitis

Discussion: Pain in my left temple,double vision. Doctors can't diagnose me

Support Group: Brain & Nervous System

Posted: Nov 14, 2023

I have been through so many tests and had so many doctor visits since I posted...

https://connect.mayoclinic.org/comment/885579/

nose or to prescribe prednisone for vasculitis

Discussion: Spinal CSF leaks

Support Group: Spine Health

Posted: Jun 26, 2023

Hi I have had mysterious skin issues since at least 2010. What started on my calves...

https://connect.mayoclinic.org/comment/674179/

Also i am treated for ANCA vasculitis

Discussion: Psoriasis and the covid vaccine.

Support Group: Autoimmune Diseases

Posted: Jan 23, 2022

Thank you for your words, which have given me hope. I am so glad to hear...

https://connect.mayoclinic.org/comment/972810/

they found that I have large-vessel vasculitis

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 30, 2023

I was diagnosed with Atrophe Blanche 22 years ago, since then I have been through sooooo...

https://connect.mayoclinic.org/comment/52477/

have not been told I have livedoid vasculitis

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2017

Mils - If in fact all of your symptoms are truly from an an unidentified autoimmune...

https://connect.mayoclinic.org/comment/735862/

damaging effects of a viral infections - Vasculitis ... flu causing virus as much as it is a Vasculitis

Discussion: Recently diagnosed with autoimmune disease - looking for support

Support Group: Autoimmune Diseases

Posted: Aug 10, 2022

I’m 71. In December 2020 I went to an orthopedic doctor because both my knees were...

https://connect.mayoclinic.org/comment/858630/

who correctly diagnosed PMR & Vasculitis

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2023

@munchie, I really don't think anyone doctor or patient really knows the answer to your question....

https://connect.mayoclinic.org/comment/286894/

certainly ineffective in the prevention of vasculitis

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2021

I soak my ulcers in Condy's Crystals = Potassium Permanganate. You can buy it from the...

https://connect.mayoclinic.org/comment/52636/

ulcers was biopsied as Leukocytoclastic Vasculitis

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2020