MCTD, Fibromyalgia, Reynauds
Hello, I'm new here. I was just diagnosed with MCTD, Fibromyalgia, and Reynauds. Just wanted to connect with others dealing with similar things. I have lots of questions, so I'll try to summarize my situation. I have felt unwell for almost 15 years, (I am 33) but the past few have been exponentially worse. I've had fatigue and widespread pain since I can remember, it would wax and wane for many years, but lately it is constant and getting worse. Some other symptoms I have are dry cough at night, tinnitus, HORRIBLE brain fog, muscle twitches, lightning type headaches, and internal tremors(?) In my torso and hands. I could go on, but I think you get the point. It's debilitating, I can't do fun things with my kids(I have 4) , I feel like I'm falling apart. So first question is, does anybody else share these symptoms? What works best for you dealing with them? Next is, since this is so new for me, anyone who has had any of these dx for several years, how has it progresses? So far my rheumatologist has started be on Gabapentin, but I feel like it makes my fatigue worse and makes me somewhat foggy. Has anyone else experienced this? I'll start with just these questions for now, because I could go on and on. But trying to not ramble on for my first post. Any input would be greatly appreciated! I am super happy to have found this forum, as I have felt super isolated dealing with this. So Glad to be here, and look forward to connecting with others going through similar situations.