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833 total results

Comments (763)

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Now I have been diagnosed with Amyloidosis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

treatment I am currently being tested for amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

I could say the same thing. I was misdiagnosed. Hospitalized in Feb for 8 days. New...

https://connect.mayoclinic.org/comment/889222/

diagnosis through radiological test proved Amyloidosis

Discussion: Any on here have hcm and been diagnosed with Al Amyloidisis

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 3, 2023

oldcarl, thank you for your reply. I've never heard of Amyloidosis. Interesting. It said 70% are...

https://connect.mayoclinic.org/comment/215267/

I've never heard of Amyloidosis.

Discussion: New Diagnosis of MAC/MAI & I'm scared

Support Group: MAC & Bronchiectasis

Posted: Sep 13, 2018

I, too, think that the whole Mayo system does a poor job of pushing the patients'...

https://connect.mayoclinic.org/comment/156041/

which has been a long term bout with Amyloidosis

Discussion: Cerebellum Atrophy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 7, 2017

Hi and thank you so much for this valuable advice. I had a heart biopsy about...

https://connect.mayoclinic.org/comment/1201406/

I have no amyloidosis - and am very

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 31, 2024

My bone marrow biopsy was yesterday. Lidocaine did a fairly good job of dulling the drilling...

https://connect.mayoclinic.org/comment/1150116/

see if I have SMM, MM, or likely AL amyloidosis

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Waldenstroms Macroglobulinemia (rarer than amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

@arti4 Arti4, my spleen has been enlarged for decades. That has caused me to take on...

https://connect.mayoclinic.org/comment/738409/

several forms of myeloma, such as amyloidosis ... Andersen, etc, about Myeloma, especially amyloidosis

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

@robynmar Hi, Robinmar. I have a pile of issues, two of which you mention. Bronchiectasis. Age...

https://connect.mayoclinic.org/comment/164886/

and disorders which are part of the Amyloidosis ... articles and videos on various forms of Amyloidosis

Discussion: Bronchiectasis and skin problems like psoriasis? Any connection?

Support Group: MAC & Bronchiectasis

Posted: Oct 21, 2017

@daughter It is sad for me whenever I hear of someone with the sort of stuff...

https://connect.mayoclinic.org/comment/72859/

symptoms of several different forms of Amyloidosis ... own story at https://bit.Ly/1w7j4j8 "Amyloidosis

Discussion: Severe stomach pain

Support Group: Digestive Health

Posted: Jan 8, 2018

Ms like2dance2 I can relate with your frustrations in getting someone to take your case. Our...

https://connect.mayoclinic.org/comment/1172561/

AL amyloidosis was diagnosed for us ... Amyloidosis has affected heart, bone

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Hi @colorslides25 Welcome to Connect! I remember my transplant doctor telling me it is better to...

https://connect.mayoclinic.org/comment/1282334/

I’m understanding, the SCT for AL Amyloidosis ... countrygirlusa…who had an SCT for AL Amyloidosis

Discussion: Anyone with BMT experience for AL Amyloidosis?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 15 8:53am

@capt209 I have about the same pains, but I am quite certain of the reason. Some...

https://connect.mayoclinic.org/comment/175408/

The cause of this is often a form of Amyloidosis ... , typically Finnish Amyloidosis or similar

Discussion: Months of Chest Pain - Please help

Support Group: Digestive Health

Posted: Jun 28, 2020

Hi, @dmunsie I, too, have trigger finger on both hands, both ring fingers. They are not...

https://connect.mayoclinic.org/comment/337046/

FKTN (Fukutin LGMD and GSN (Gelsolin Amyloidosis

Discussion: Advice | Trigger Finger Symptoms

Support Group: Bones, Joints & Muscles

Posted: Mar 14, 2021

I had a terribly painful experience with the first bone marrow biopsy, and my doctor said...

https://connect.mayoclinic.org/comment/1332963/

years later with progression of my amyloidosis

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 22 5:58pm

Hi John thanks for responding, all my symptoms seem to point to amyloidosis,but ALL tests so...

https://connect.mayoclinic.org/comment/92593/

, all my symptoms seem to point to amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 4, 2019

Thank you very much I will re read the information The last diagnosis from the oncologist...

https://connect.mayoclinic.org/comment/748997/

20mg each day, along with cardiac amyloidosis

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2022

After receiving a chemo treatment last February, he had an infusion reaction that required a 3...

https://connect.mayoclinic.org/comment/645353/

monitored He has wild type cardiac amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Hello Old Karl, thank you for sharing more about yourself with other members on Connect. Here...

https://connect.mayoclinic.org/comment/94819/

that you may find helpful: - AL amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 6, 2016