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827 total results
Comments (755)
@kspiel I have been to Mayo for testing and/or treatment. It was a waste of time...
https://connect.mayoclinic.org/comment/174261/
Look for the word "Amyloidosis".
Hello Old Karl, thank you for sharing more about yourself with other members on Connect. Here...
https://connect.mayoclinic.org/comment/94819/
that you may find helpful:
- AL amyloidosis
Wow!!! Who would have ever thought of these diseases as a part of Amyloidosis . I...
https://connect.mayoclinic.org/comment/172286/
thought of these diseases as a part of Amyloidosis
My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....
https://connect.mayoclinic.org/comment/879943/
Waldenstroms Macroglobulinemia (rarer than amyloidosis
Hi, @dmunsie I, too, have trigger finger on both hands, both ring fingers. They are not...
https://connect.mayoclinic.org/comment/337046/
FKTN (Fukutin LGMD and GSN (Gelsolin Amyloidosis
@nicoleny Just to reinforce. All Amyloidosis is progressive and, eventually, fatal. It may not reach the...
https://connect.mayoclinic.org/comment/213275/
All Amyloidosis is progressive and,
@Tazo, Sounds like a systemic form of some hereditary protein disease to me. There are several...
https://connect.mayoclinic.org/comment/310864/
pattern of mine, Gelsolin (Finnish) Amyloidosis
Thank you so much for sending all of this information I will read and look at...
https://connect.mayoclinic.org/comment/715963/
overriding factors due to wild type cardiac amyloidosis
@indianascott, I have a form of cerebral angiopathy sometimes called "disappearing White Matter". It is diagnosed...
https://connect.mayoclinic.org/comment/336454/
portion of my Gelsolin, or AKA Finnish Amyloidosis
Glad to help. Yes, dive in and take the genetic sequencing test. I, personally, would start...
https://connect.mayoclinic.org/comment/627632/
epilepsy and/or Multiple Myeloma, perhaps Amyloidosis
@Dorisena, You sound like me. I have Gelsolin, an Amyloidosis, part of Multiple Myeloma, a familial...
https://connect.mayoclinic.org/comment/329809/
I have Gelsolin, an Amyloidosis, part
@oldkarl - thank you so much for the reply. I'm really sorry you're going through this,...
https://connect.mayoclinic.org/comment/188996/
Mayo did test her for Amyloidosis and
@techi Hi, Lisa. Have you had a SERUM FreeLiteChain(c) assay lately? If it is over 1.4,...
https://connect.mayoclinic.org/comment/175006/
There is lots of material at Amyloidosis
Hey Emily, my name is Jennifer. I am currently being tested for Amyloidosis which can cause...
https://connect.mayoclinic.org/comment/858521/
I am currently being tested for Amyloidosis
@mgm4kc, I'm tagging a few other members like @cemeterygal01 @mkempson42 @naiviv @tlcox49, who also have experience...
https://connect.mayoclinic.org/comment/1107770/
diagnosis of multiple myeloma and amyloidosis
Good morning. Hoping this message finds you well. I found your message and wanted to share...
https://connect.mayoclinic.org/comment/874720/
special tests: resulting in Cardiac Amyloidosis ... marrow biopsy to confirm which type of Amyloidosis
@sofrustrated You are so correct. Our medical system is so frustrating. My son went for a...
https://connect.mayoclinic.org/comment/592125/
My Amyloidosis (Gelsolin) has about ... etc.), and several about Gelsolin Amyloidosis
@lazyironman What a name! Anyway,I respond to your input, and am glad to see you popped...
https://connect.mayoclinic.org/comment/177363/
(probably AL, ACys, AGel, etc), of Amyloidosis ... them could even recognize the word, Amyloidosis
@33061982 Now, don't get to excited. Just that a high percentage of Amyloidosis folks, especially with...
https://connect.mayoclinic.org/comment/217354/
Just that a high percentage of Amyloidosis
@gpants Interesting but tough notes, but that's the way Mayo works. I went to AZ to...
https://connect.mayoclinic.org/comment/172592/
I went to AZ to be tested for Amyloidosis
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