Mayo Clinic Connect
I have bronchiectasis with a history of MAC and lung infections. Now I have large flaking spots on my body that my dermatologist called “old age spots”. It looks like psoriasis to me. Does anybody have this? Is there a connection? robynmar
Hi Robyn, I see that your question has gone unanswered for some time. I’m tagging a few members to see if they have any thoughts on this. @windwalker @lindam272 @ling123 @tdrell, any thoughts?
Robyn, has there been any change in your skin since you wrote this? What are you doing for your skin issue?
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@robynmar, @colleenyoung Robyn and Colleen, I have not had the kind of skin problems that Robyn described. I’m not in the medical field, so I can’t conclude with 100% certainty. But my personal opinion is that this is unrelated to the lung infections. I suggest do some googling with key words like lung infection, flaky skin, etc to see if anything come up. If I find anything, I will post it here. But I kind of doubt it. Come to think of it, long before I was diagnosed with MAC, there was a period of time I had all kind of severe skin problems, on my body and hands. My doctor says as we age our skin becomes thinner and more sensitive. So having skin problems at my age is common. She prescribed a couple of different kinds of ointment for my body and hand respectively. The problems cleared up in no time.
Robynmar, re psoriasis…. I just returned from a Road Scholar Program of speakers …one of whom was a registered Dietician. She had had psoriasis and when she controlled her celiac disease….her psoriasis went away! Tdrell
@robynmar Hi, Robinmar. I have a pile of issues, two of which you mention. Bronchiectasis. Age spots (petechiae) Not really age spots, but blood droplets formed just below the skin which come with advancing disease. Lung infections. A very accurate article in Wikipedia notes 28 diseases and disorders which are part of the Amyloidosis family, including these two. I have these, and several more in my package. The article also leads to several other articles, and Mayo itself has a whole bucket of articles and videos on various forms of Amyloidosis. You should probable look at some of this stuff. These markers which you note are not proof that you have Amy, but they are a good indication you and your doctor should suspect Amy of complicity. First step is to have your doc order a Serum Free Light Chain Assay and a 24-hour Urine Protein scan. If you have ANY protein showing up in either, look farther. If your sFLC Assay reading is above 1.6mG/dL, or the 24-hr total is above 0.5 grams per day, you have serious problem. Find an experienced Clinic/lab like Mayo MN or Sloan-Kettering or Fred Hutchinson, with their doctors. And you can find my story at https://bit.Ly/1w7j4j8. Download or read on line. Peace to you and yours. old karl
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