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Comments (2,699)

Your symptoms and labs are certainly consistent with an autoimmune disease. Inflammatory markers and an ANA...

https://connect.mayoclinic.org/comment/1003112/

ANA that high would suggest possible lupus ... have to have positive antiDSdna for a lupus ... muscle inflammation) can accompany lupus

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jan 24, 2024

I have been a participant and leader of the Highlans Ranch Lupus Support Group for about...

https://connect.mayoclinic.org/comment/1159257/

participant and leader of the Highlans Ranch Lupus ... Since lupus is a part of MCTD, it would

Discussion: Does anyone know of any in person or at least zoom support groups?

Support Group: Autoimmune Diseases

Posted: Oct 19, 2024

Yes!! I’m hoping this leads to something as well. My autoimmune diagnosis came in 2021 after...

https://connect.mayoclinic.org/comment/1127751/

First diagnosed with Lupus then told ... not Lupus then just no solid diagnosis

Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 20, 2024

It’s so frustrating to have obvious problems and get no answers! I would certainly pursue the...

https://connect.mayoclinic.org/comment/941893/

I had symptoms of lupus for 10 years ... Lupus can certainly cause tachycardia ... Sometimes lupus is diagnosed based on ... might review signs and symptoms of lupus

Discussion: Undiagnosed - autoimmune?

Support Group: Autoimmune Diseases

Posted: Oct 4, 2023

jbjvisions, I do not have Lupus that I know of, but, Fibro & 2 other autoimmune...

https://connect.mayoclinic.org/comment/1227227/

jbjvisions, I do not have Lupus that

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Feb 1, 2025

https://www.ucl.ac.uk/news/2024/nov/cancer-therapy-potential-transform-lupus-treatment-delivered-uk-first#:~:text=8%20November%202024,and%20is%20sponsored%20by%20Autolus.

https://connect.mayoclinic.org/comment/1225793/

cancer-therapy-potential-transform-lupus-treatment-delivered-uk-first

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 30, 2025

Usually you are put on a blood thinner. Usually the drug of choice is Coumadin. (Warfarin...

https://connect.mayoclinic.org/comment/870819/

treat the inflammation caused by the lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jun 2, 2023

IVIG takes 6 months to work quicker if every two weeks. I take panzyga it helps...

https://connect.mayoclinic.org/comment/1238670/

It also helps my lupus.

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 16, 2025

I have pretty bad lupus I get some relief by putting apple cider vinegar spray bottle...

https://connect.mayoclinic.org/comment/1218338/

I have pretty bad lupus I get some relief

Discussion: Help!! Severe itching with no relief -- not sure why!

Support Group: Caregivers

Posted: Jan 21, 2025

I’ve been getting phlebotomy every two weeks. I’ve just been switched to every three weeks. Symptoms...

https://connect.mayoclinic.org/comment/1320532/

Symptoms are common with my Lupus symptoms

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

What I know is that Lupus can ameliorate via a diet rich in sugar via fruits,...

https://connect.mayoclinic.org/comment/819091/

What I know is that Lupus can ameliorate

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Mar 1, 2023

My Neurologist wants me to try that drug. Besides the Lupus I have terrible neuropathy. What...

https://connect.mayoclinic.org/comment/818350/

Besides the Lupus I have terrible neuropathy

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 27, 2023

My Dr has had me on 50,000 units of vitamin D for years. My calcium levels...

https://connect.mayoclinic.org/comment/1128166/

Chrons with Lupus means food is never

Discussion: Paediatric Crohns and kidney stones

Support Group: Autoimmune Diseases

Posted: Aug 21, 2024

I have read on an autoimmune site that fibro is not an auto immune. But have...

https://connect.mayoclinic.org/comment/72507/

have ms, sjogrens, chronic fatigue, lupus

Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Support Group: Skin Health

Posted: Dec 16, 2018

Find one of several green smoothie recipes below. Google Dr. Brooke Goldner who wrote the book...

https://connect.mayoclinic.org/comment/1161765/

Goldner who wrote the book Goodbye Lupus

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Oct 23, 2024

Oh no, the surgeon didnt refuse but strongly pushed for the lumpectomy and I went along...

https://connect.mayoclinic.org/comment/1042744/

you do with your surgery given the lupus

Discussion: Low Risk IDC w/ Baseline Multiple Painful Conditions

Support Group: Breast Cancer

Posted: Mar 30, 2024

@colleenyoung she is having a hard time. We are planning on getting her to the Mayo...

https://connect.mayoclinic.org/comment/1450030/

She also has lupus

Discussion: Anyone else have multiple autoimmune diseases?

Support Group: Autoimmune Diseases

Posted: Nov 30, 2025

I've had a mild rash to amoxicillin and have latex sensitivity from wearing gloves at work....

https://connect.mayoclinic.org/comment/175736/

has been fine until the drug-induced lupus

Discussion: Surgery caused autoimmune disease or Drug Induced Lupus

Support Group: Autoimmune Diseases

Posted: May 7, 2018

Hello my name is Mayra and living with Lupus and kidney failure and I experience RA...

https://connect.mayoclinic.org/comment/1392432/

Hello my name is Mayra and living with Lupus

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Sep 12, 2025

You know I suddenly broke out one morning with the worst hives ever in February 2023....

https://connect.mayoclinic.org/comment/886093/

I had recently been diagnosed with lupus ... He sent my lupus labs to a special clinic ... the Avise CTD test which found the lupus ... Were they lupus induced ? ... I had no symptoms of lupus.

Discussion: Hashimoto's Thyroiditis and Hives

Support Group: Autoimmune Diseases

Posted: Jun 27, 2023