Hashimoto's Thyroiditis and Hives

Posted by kimspr3 @kimspr3, Sep 24, 2019

Has anyone gotten Urticaria, severe from Hashimoto’s? It started in my 20’s. Remember going to a movie my face feeling very warm, lips eyes, itching all over my body, Hugh hives. Went to the E.R. they insisted it was an allergic reaction to something. I believed them of-course. Nothing would take it away. Prednisone never worked. It was in the sixties so I will admit “I smoked” hives gone???? Every Time!!!!! I told dr’s about it. Mar. in my case must have done something to my Immune system? I wonder if Mayo Clinic would do a little research on it? I would be so happy and very curious as to why that worked? Remission, than back again for years nothing helped. Saw a International dr. in S. Carolina who put me on Cyclosporin, they were gone in a short time!!! Remission. I was given Cymbalta, that evening they were back, again to the ER. Stopped the drug. Immunologist, I received shots every week for months. They are gone now and I hope forever! Many Endocrinologist, Primary Care Dr’s never heard of Hashimoto’s and Hives?????????

Hi @kimspr3 that must be so confusing!

I'm bringing in @jenniferhunter @kjo1 and @darlia as they may have opinions to share or may be able to offer you support.

Have you been able to find anything that successfully gets rid of the hives or limits their effects?

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Hello, Oh I'm sorry thought I mentioned it. I was in remission for years than given a script for Cymbalta, depression it effected my Immune system with in a few hrs of taking it hives all over my body I found a Immunologist, I was given injections for a months I am now in remission, I hope forever. Thats a happy ending.

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@kimspr3 – Hashimoto’s is an autoimmune illness. Hives are a symptom of allergic reaction- also an immune reaction- the body responding to a foreign protein for example. One autoimmune illness can coexist with another one. The body can be very confusing- one can have a reaction to something that’s similar to the original allergen. Sorry if I made things more confusing !

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Hello Ingegerd, Confusing or not it did open my eyes adding additional information and I thank you! It was never a allergic reaction.

In my post I mentioned marijuana. I have mentioned this to Endocrinologists, shrugged their shoulders. I find it interesting when I had full blown hives smoked, [60's] they were gone?????? Why, what did it do? Why no research? I can't be the only one who experienced it. Would it work for allergic reactions?? love to here back.

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@ethanmcconkey

Hi @kimspr3 that must be so confusing!

I'm bringing in @jenniferhunter @kjo1 and @darlia as they may have opinions to share or may be able to offer you support.

Have you been able to find anything that successfully gets rid of the hives or limits their effects?

Jump to this post

I have been in remission for about 3 years. I was given injections, I forgot the name of the injections, I think it starts with a X. I will look for it. Cymbalta, for depression, nerve damage. I called Eli Lilly telling them my reaction to their drug, my medical background, Urticaria, Thyroidectomy, Hashimoto's. Again no interest. I learned have to be your own advocate from Oncology Nurses 1999.. I never know when they will return? I do know it's not from stress because my life is pain and stress.

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@astaingegerdm

@kimspr3 – Hashimoto’s is an autoimmune illness. Hives are a symptom of allergic reaction- also an immune reaction- the body responding to a foreign protein for example. One autoimmune illness can coexist with another one. The body can be very confusing- one can have a reaction to something that’s similar to the original allergen. Sorry if I made things more confusing !

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I forgot to ask you a question, Would the marijuana help with the protein?

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@kimspr3

I forgot to ask you a question, Would the marijuana help with the protein?

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@kimspr3 – I did some minor research on marijuana’s effect on the immune system. There has been research on marijuana’s effect on the immune system and other functions. It appears to have an immunosuppressive effect- this would explain the disappearance of the hives. On the other hand, in the long run it could make you more susceptible to certain cancers.
For more answers you probably could talk to immunologists and rheumatologists about treatment if or when they return. Endocrinologists may not deal with immunological issues on a regular basis.
I agree with you- we have to learn to advocate for ourselves!

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@kimspr3

I have been in remission for about 3 years. I was given injections, I forgot the name of the injections, I think it starts with a X. I will look for it. Cymbalta, for depression, nerve damage. I called Eli Lilly telling them my reaction to their drug, my medical background, Urticaria, Thyroidectomy, Hashimoto's. Again no interest. I learned have to be your own advocate from Oncology Nurses 1999.. I never know when they will return? I do know it's not from stress because my life is pain and stress.

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Hi Ethan, what can I do to help?

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@kimspr3 building on @astaingegerdm garden’s point, I also recommend everyone do some research on the efficacy of any alternative treatment like CBD or marijuana before using it.

As the discussion has turned to cannabidiol (CBD), a naturally occurring cannabinoid constituent of cannabis and medical marijuana, I thought you'd appreciate the following information that has been posted elsewhere on Connect. Below are articles and information to help give some guidance about the evidence and regulation (or lack thereof) of CBD use in the US. It's not an exhaustive list, but a starting point to help you with your own research and decision-making.

1. Evidence vs usage
To date CBD to treat epilepsy (in children) is the only condition that has some scientific evidence supporting its use in some cases. CBD for pain, anxiety, inflammation and sleep remains as yet scientifically unproven and requires more validated research.

According to this article by NPR (https://n.pr/2HnI1SM), “By one estimate, the CBD industry has doubled in size over the last two years, and is now worth $200 million. But with this popularity the hype may have gotten ahead of the science.”

While there is promise and ongoing research into CBD effectiveness in managing pain, anxiety, inflammation and sleep, the jury is still out. Here are recent articles that help clarify.

– CBD Oil: All the Rage, But Is It Safe & Effective? (WebMD) https://wb.md/2K11QfD
– Does CBD Really Work For Anxiety? (HuffPost) https://bit.ly/2wF1VUs
– Anxiety Relief Without The High? New Studies On CBD, A Cannabis Extract (NPR) https://n.pr/2HnI1SM

2. Industry is unregulated

CBD is not regulated. “Because of the legally murky nature of marijuana, the FDA has not stepped in to regulate products like CBD oil. Read more about regulation in this WebMD article (https://wb.md/2KCS4UW).

There are risks associated with medical marijuana CBD. See this post from a Mayo Clinic pharmacist (https://mayocl.in/2KDyip2). People should also consider interactions with other drugs and always discuss the use of CBD with their medical provider and consult with a pharmacist.

3. Information from Mayo Clinic
Mayo Clinic provides the following information on medical marijuana https://mayocl.in/2KyrGvp

– CBD products, hemp oil may be helpful but more research is needed, Mayo Clinic review says https://newsnetwork.mayoclinic.org/discussion/cbd-products-hemp-oil-may-be-helpful-but-more-research-is-needed-mayo-clinic-review-says/

– Mayo Clinic Minute: Is CBD safe to use? https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-is-cbd-safe-to-use/

4. Get informed
Information about the use, efficacy and legality of CBD and medical marijuana is constantly being updated. I underline the point again to do your research. It is advisable to talk with a health care professional if you have questions.

Members sharing their findings in this discussion helps too.

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Thank You for the information, I have been taking CBD oil sublingual including the pills. I get from a compounding pharmacy I think it's from Ariz. or Colorado. taking for about a month. So far doesn't help. I have Adhesive Arachnoiditis, the pain takes the breath away. I have now. Trying to keep myself busy with connect.

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@ethanmcconkey

@kimspr3 building on @astaingegerdm garden’s point, I also recommend everyone do some research on the efficacy of any alternative treatment like CBD or marijuana before using it.

As the discussion has turned to cannabidiol (CBD), a naturally occurring cannabinoid constituent of cannabis and medical marijuana, I thought you'd appreciate the following information that has been posted elsewhere on Connect. Below are articles and information to help give some guidance about the evidence and regulation (or lack thereof) of CBD use in the US. It's not an exhaustive list, but a starting point to help you with your own research and decision-making.

1. Evidence vs usage
To date CBD to treat epilepsy (in children) is the only condition that has some scientific evidence supporting its use in some cases. CBD for pain, anxiety, inflammation and sleep remains as yet scientifically unproven and requires more validated research.

According to this article by NPR (https://n.pr/2HnI1SM), “By one estimate, the CBD industry has doubled in size over the last two years, and is now worth $200 million. But with this popularity the hype may have gotten ahead of the science.”

While there is promise and ongoing research into CBD effectiveness in managing pain, anxiety, inflammation and sleep, the jury is still out. Here are recent articles that help clarify.

– CBD Oil: All the Rage, But Is It Safe & Effective? (WebMD) https://wb.md/2K11QfD
– Does CBD Really Work For Anxiety? (HuffPost) https://bit.ly/2wF1VUs
– Anxiety Relief Without The High? New Studies On CBD, A Cannabis Extract (NPR) https://n.pr/2HnI1SM

2. Industry is unregulated

CBD is not regulated. “Because of the legally murky nature of marijuana, the FDA has not stepped in to regulate products like CBD oil. Read more about regulation in this WebMD article (https://wb.md/2KCS4UW).

There are risks associated with medical marijuana CBD. See this post from a Mayo Clinic pharmacist (https://mayocl.in/2KDyip2). People should also consider interactions with other drugs and always discuss the use of CBD with their medical provider and consult with a pharmacist.

3. Information from Mayo Clinic
Mayo Clinic provides the following information on medical marijuana https://mayocl.in/2KyrGvp

– CBD products, hemp oil may be helpful but more research is needed, Mayo Clinic review says https://newsnetwork.mayoclinic.org/discussion/cbd-products-hemp-oil-may-be-helpful-but-more-research-is-needed-mayo-clinic-review-says/

– Mayo Clinic Minute: Is CBD safe to use? https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-is-cbd-safe-to-use/

4. Get informed
Information about the use, efficacy and legality of CBD and medical marijuana is constantly being updated. I underline the point again to do your research. It is advisable to talk with a health care professional if you have questions.

Members sharing their findings in this discussion helps too.

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Bravo! Thank you for this. Many people will be mislead by 'sales persons'.

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@astaingegerdm

@kimspr3 – I did some minor research on marijuana’s effect on the immune system. There has been research on marijuana’s effect on the immune system and other functions. It appears to have an immunosuppressive effect- this would explain the disappearance of the hives. On the other hand, in the long run it could make you more susceptible to certain cancers.
For more answers you probably could talk to immunologists and rheumatologists about treatment if or when they return. Endocrinologists may not deal with immunological issues on a regular basis.
I agree with you- we have to learn to advocate for ourselves!

Jump to this post

Ingegerd, I just saw your reply. Thank You for researching. All this makes sense. I have a lot to learn. I will be seeing a new Endocrinologist end of Oct. I can't wait. She has a good background, which could mean nothing, I'll be positive. I do know, all the blood wk. can come back normal and yet there there is a underlining problem. So far dr's will not look. I don't understand. My hair is falling out so badly, hope new doc will find the problem. You are so right did not think of it, Endocrinologists do not deal with the immune system. I only smoked in the 60's. Life was different than. Wishing you a good evening

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@kimspr3 – Can you please let us know how the appointment with the Endocrinologist goes! Hairloss could be a sign of thyroid or other autoimmune condition.

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Hi Ingegerd, I promise I will let you know. Appt. is end of OCT. seem so very far away??????

I thank You so much.Another odd thing happened to me about 10 yrs ago. My eye dr. said the cause my immune system???? Not one dr. had an interest. My daughter looked at me and said, mom, your eyes are hazel now what happened. Looked in mirror in shock. I had blue green eyes, blue, father green mother combination. Eye dr. calls me an "anomaly" He was serious. WHY??? Than eye dr. said, one pupil is slightly smaller than the other?????????? I tried to look it up, found nothing on both. I had thyroidectomy, hot nodule 1995. I hope new doc is good??? Others no!

I thank You so much

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@kimspr3

Hi Ingegerd, I promise I will let you know. Appt. is end of OCT. seem so very far away??????

I thank You so much.Another odd thing happened to me about 10 yrs ago. My eye dr. said the cause my immune system???? Not one dr. had an interest. My daughter looked at me and said, mom, your eyes are hazel now what happened. Looked in mirror in shock. I had blue green eyes, blue, father green mother combination. Eye dr. calls me an "anomaly" He was serious. WHY??? Than eye dr. said, one pupil is slightly smaller than the other?????????? I tried to look it up, found nothing on both. I had thyroidectomy, hot nodule 1995. I hope new doc is good??? Others no!

I thank You so much

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I believe there is a certain medication that can change eye color, but I don't know, if you were on any meds? Do both of your pupils respond to light shined in them? If not, you could have a Holmes Adies Pupil. I have one. No issues for this.

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