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568 total results
Comments (533)
I’ve been putting the “puzzling pieces” together and realize that I have had CFS/ME for several...
together and realize that I have had CFS ... /ME for several years. ... There’s more but… My PCP suggested CFS ... /ME several years ago, but I thought
I reread your post and I can’t go back to being your age (now80). I was...
Then came CFS. ... I found a great doctor who putt me on ... Really sick with a relapse that kept me
Support Group: Autoimmune Diseases
Posted: May 23, 2022
Hi @luannkelly! I'm glad you found this forum. I could have written your first post! I...
has been extremely disappointing for me ... disease MD 2 years ago who dismissed me ... Rawls who has suffered from Lyme, CFS
Sorry for my late reply. I have actually talked to a Mayo-trained doctor in my area--...
documentary Jennifer Brea made about CFS ... /ME (Unrest). ... I definitely fit the bill of a CFS/ME ... diagnosis, whether it ends up being CFS ... out before I aggressively seek out a CFS
Support Group: Autoimmune Diseases
Posted: Aug 22, 2018
I just watched the Ted talk and it brought tears to my eyes. It is such...
I don't know what is CFS, what is ... Some of these drs. make me feel that ... #39;t I find someone, dr., to help me ... waiting for the cardiology dept. to call me ... was once again pulled out from under me
Support Group: Autoimmune Diseases
Posted: Mar 9, 2018
Hi @parus and @oregongirl I was just going to post a question and saw your posts....
going to post so if anyone can help me ... where they were doing research on CFS ... which was great because they tested me ... Can’t recoup….the CFS back. ... Can anyone tell me anything about that
Support Group: Fibromyalgia
Posted: Feb 11, 2018
Is anyone taking Savella for fibromyalgia? I heard that worked well with fatigue. Today is the...
where they were doing research on CFS ... which was great because they tested me ... Can't recoup....the CFS back. ... Can anyone tell me anything about that
Support Group: Autoimmune Diseases
Posted: Feb 11, 2018
I came down with fibromyalgia and chronic fatigue syndrome about 20 years ago. They came about...
The CFS is, alas, still very much in ... My doc, too, had had me change my diet ... They help, but they leave me feeling ... He approved me for MM and thinks it ... will help me immensely with pain, muscle
Support Group: Fibromyalgia
Posted: Aug 24, 2017
I developed earaches in September 2016. My primary care found no ear or sinus infection and...
no ear or sinus infection and sent me ... He gave me weekly anesthesia shots into ... My dentist sent me to an oral surgeon ... He said he didn't believe me. ... , but the CFS continues.
Support Group: Chronic Pain
Posted: Jul 28, 2017
The Chronic Fatigue Syndrome (CFS) specialist that I saw at Institute Neuroimmune Medicine INIM at Nova...
The Chronic Fatigue Syndrome (CFS) specialist ... EBV Ab VCA,IgM EBV PCR Also CFS ... She didn’t test me for Mono but I know
I actually suffered from CFS/ME a few decades ago. Nothing really helped me with that other...
I actually suffered from CFS/ME a few ... Nothing really helped me with that other ... feel that strange fatigue overcoming me ... having Long Covid (very similar to CFS ... unfortunately they really didn't help me
Posted: Feb 25 1:48pm
You’re not alone. It feels lonely living in a world full of misinformed doctors who haven’t...
bloated, my legs were giving out on me ... had no clue what was happening to me ... me as well as told me to exercise more ... knowledge and symptoms - dismissing me ... are forerunners for long COVID and CFS