Three years ago, I had an Abdominal Aortic Aneurysm where they replaced 12” of my aorta with Dacron. My body didn’t accept the graft well and months later was still inflamed. I was sent to a Rheumatologist to treat the inflammation, who prescribed high doses of steroids (prednisone) for over a year. This led to huge weight gain (85 lbs) and other problems. However, the worst side effect was the development of Epidural Lipomatosis. Basically, lipomas have formed inside my spinal column and are causing stenosis. I cannot walk more than 150 yards, I can’t stand for more than 10 minutes, even sitting for more than a couple hours is difficult … and I’ve been unable to work for the last 2 years.
I’ve seen 4 neurosurgeons, including the heads of Neurosurgery at two hospitals. None of the are willling to address my situation. However, none of them have the resources of Mayo. I live in Rockford, IL so it’s problematic for me to travel that distance.
Is this something that this forum discusses?
I’m interested in those who have experience with some of the computer assist procedures, perhaps in conjunction with some sort of precision liposuction. Any insights would be helpful.