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821 total results

Comments (750)

@sonyaparkey Sounds like Evans Syndrome ES to me. It is like Amyloidosis, but the protein in...

https://connect.mayoclinic.org/comment/51163/

It is like Amyloidosis, but the protein

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Sep 11, 2018

@hosta I have been looking at the world through your glasses for some time now. A...

https://connect.mayoclinic.org/comment/92407/

https://bit.Ly/1w7j4j8 under "Amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 9, 2018

@jshah Well, Now I know I have it. My AFib and HCM is from my Amyloidosis....

https://connect.mayoclinic.org/comment/181771/

My AFib and HCM is from my Amyloidosis

Discussion: Afib, PVC and Hypertrophic Cardiomyopathy

Support Group: Heart Rhythm Conditions

Posted: Jan 16, 2018

@jen12 Hi, Jen. Sad to hear when someone gets shafted as you have. But it happens,...

https://connect.mayoclinic.org/comment/212572/

downloaded from https://bit.Ly/1w7j4j8, Amyloidosis ... , Amyloidosis and Old Karl.

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Aug 20, 2018

@jkellyjones One of most serious consequences of Crohn's and nearly all the other variations and mutations...

https://connect.mayoclinic.org/comment/176477/

other variations and mutations of Amyloidosis ... Anyway, the diagnosis of any form of amyloidosis

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Digestive Health

Posted: Dec 1, 2017

@gbiffart Cranial Amyloid Angioplasty I suspect you mean "Cerebral Amyloid Angiopathy" I could not find anything...

https://connect.mayoclinic.org/comment/68664/

of my Primary Familial Systemic AL Amyloidosis ... It is a form of Amyloidosis. ... (see www.amyloidosis.org).

Discussion: Cerebral amyloid angiopathy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 10, 2017

@jkellyjones Just read your not again about not having any skin ulcerations, etc. All of these...

https://connect.mayoclinic.org/comment/176479/

at my story HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... not have any form of FreeLiteChain Amyloidosis

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Digestive Health

Posted: Dec 1, 2017

@bdade59. About the foamy urine and protein. This foam is LIVER produced protein which has died...

https://connect.mayoclinic.org/comment/238257/

It is a mark of some Amyloidosis Light ... HTTPS://www.OncLive.com says the Amyloidosis

Discussion: foamy urine.

Support Group: Kidney & Bladder

Posted: Jun 5, 2020

My husband is 42 and in heart failure. It went undiagnosed for several months until he...

https://connect.mayoclinic.org/comment/192432/

recently been diagnosised with AL Amyloidosis

Discussion: Heart failure and enlarged heart

Support Group: Heart & Blood Health

Posted: Mar 25, 2018

@barbarn Ya gotta remember there are thousands of diseases and disorders and accidents that can and...

https://connect.mayoclinic.org/comment/92404/

fact, there are almost 2000 known Amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 9, 2018

Thank you, Colleen for your input. Yes, I talked to my Dr last week, and she...

https://connect.mayoclinic.org/comment/1118745/

and wait, not knowing whether I have amyloidosis

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 8:48am

Prayers For Clarification & Peace….After my diagnosis of amyloidosis & talking with my local doctors &...

https://connect.mayoclinic.org/comment/705230/

& Peace….After my diagnosis of amyloidosis

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

@fortyisyoung I have a thought which might or might not apply to you. When I was...

https://connect.mayoclinic.org/comment/91018/

being tested for various types of Amyloidosis ... Martha Grogan's video on diagnosing Amyloidosis

Discussion: Has anyone been diagnosed with Central Sensitization?

Support Group: Chronic Pain

Posted: Sep 7, 2018

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

treatment I am currently being tested for amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Now I have been diagnosed with Amyloidosis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6 10:36am

The bone marrow biopsy is used rarely enough that it reveals whatever the hematologist says it...

https://connect.mayoclinic.org/comment/723439/

means lots of protein, which means Amyloidosis

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

i like the title of this thread... Anyone here dealing with PN? Well, PN is making...

https://connect.mayoclinic.org/comment/92103/

bones as well, due to the hATTRwt amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 30, 2017

I am so sorry for both you and your husband. I cannot imagine what you are...

https://connect.mayoclinic.org/comment/89036/

actually I can somewhat as my wife has Amyloidosis

Discussion: Complex regional pain syndrome or reflex sympathetic dystrophy

Support Group: Chronic Pain

Posted: Apr 16, 2016

@michele34, This is the easy part. Gelsolin is also known as GSN, or AGEL, or Finnish...

https://connect.mayoclinic.org/comment/268002/

known as GSN, or AGEL, or Finnish Amyloidosis

Discussion: Laryngopharyngeal reflux (LPR)

Support Group: Digestive Health

Posted: Feb 20, 2021

@katie215 Don't let it get you down. This is not the worst I have seen in...

https://connect.mayoclinic.org/comment/97540/

spending $10,000 to be tested for Amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Sep 3, 2018