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827 total results

Comments (755)

I had high protein in my urine back in 1996 with lots of tests & finally...

https://connect.mayoclinic.org/comment/723733/

Mayo Clinic…..I had a diagnosis of Amyloidosis

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2022

@johnbishop Thanks for the thought, John. I am quite familiar with patisiran, but rather skittish at...

https://connect.mayoclinic.org/comment/92442/

moment. mayo says I have no TTR in my Amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 11, 2018

Sorry, I thought you were speaking about amyloidosis in which these proteins accumulate in organs such...

https://connect.mayoclinic.org/comment/108545/

I thought you were speaking about amyloidosis

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: May 19, 2017

Hi Debbie, Thought I would jump in for Chris @artscaping to share some information I found...

https://connect.mayoclinic.org/comment/708363/

such as vasculitis, granulomatosis, amyloidosis

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 15, 2022

Hi - I had a tele-visit (45 minutes) with Dr. David Dongli at Mayo Clinic. His...

https://connect.mayoclinic.org/comment/754077/

Biopsy" is used to detect/rule out amyloidosis

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

@sonyaparkey Sounds like Evans Syndrome ES to me. It is like Amyloidosis, but the protein in...

https://connect.mayoclinic.org/comment/51163/

It is like Amyloidosis, but the protein

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Sep 11, 2018

@hosta I have been looking at the world through your glasses for some time now. A...

https://connect.mayoclinic.org/comment/92407/

https://bit.Ly/1w7j4j8 under "Amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 9, 2018

@jshah Well, Now I know I have it. My AFib and HCM is from my Amyloidosis....

https://connect.mayoclinic.org/comment/181771/

My AFib and HCM is from my Amyloidosis

Discussion: Afib, PVC and Hypertrophic Cardiomyopathy

Support Group: Heart Rhythm Conditions

Posted: Jan 16, 2018

@jen12 Hi, Jen. Sad to hear when someone gets shafted as you have. But it happens,...

https://connect.mayoclinic.org/comment/212572/

downloaded from https://bit.Ly/1w7j4j8, Amyloidosis ... , Amyloidosis and Old Karl.

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Aug 20, 2018

@jkellyjones One of most serious consequences of Crohn's and nearly all the other variations and mutations...

https://connect.mayoclinic.org/comment/176477/

other variations and mutations of Amyloidosis ... Anyway, the diagnosis of any form of amyloidosis

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Digestive Health

Posted: Dec 1, 2017

@jkellyjones Just read your not again about not having any skin ulcerations, etc. All of these...

https://connect.mayoclinic.org/comment/176479/

at my story HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... not have any form of FreeLiteChain Amyloidosis

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Digestive Health

Posted: Dec 1, 2017

@gbiffart Cranial Amyloid Angioplasty I suspect you mean "Cerebral Amyloid Angiopathy" I could not find anything...

https://connect.mayoclinic.org/comment/68664/

of my Primary Familial Systemic AL Amyloidosis ... It is a form of Amyloidosis. ... (see www.amyloidosis.org).

Discussion: Cerebral amyloid angiopathy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 10, 2017

@bdade59. About the foamy urine and protein. This foam is LIVER produced protein which has died...

https://connect.mayoclinic.org/comment/238257/

It is a mark of some Amyloidosis Light ... HTTPS://www.OncLive.com says the Amyloidosis

Discussion: foamy urine.

Support Group: Kidney & Bladder

Posted: Jun 5, 2020

My husband is 42 and in heart failure. It went undiagnosed for several months until he...

https://connect.mayoclinic.org/comment/192432/

recently been diagnosised with AL Amyloidosis

Discussion: Heart failure and enlarged heart

Support Group: Heart & Blood Health

Posted: Mar 25, 2018

@barbarn Ya gotta remember there are thousands of diseases and disorders and accidents that can and...

https://connect.mayoclinic.org/comment/92404/

fact, there are almost 2000 known Amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 9, 2018

Thank you, Colleen for your input. Yes, I talked to my Dr last week, and she...

https://connect.mayoclinic.org/comment/1118745/

and wait, not knowing whether I have amyloidosis

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 8:48am

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

treatment I am currently being tested for amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Now I have been diagnosed with Amyloidosis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6 10:36am

Prayers For Clarification & Peace….After my diagnosis of amyloidosis & talking with my local doctors &...

https://connect.mayoclinic.org/comment/705230/

& Peace….After my diagnosis of amyloidosis

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

The bone marrow biopsy is used rarely enough that it reveals whatever the hematologist says it...

https://connect.mayoclinic.org/comment/723439/

means lots of protein, which means Amyloidosis

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022