Bone marrow (stem cell) transplant support thread
I am five years out of an autologous stem cell transplant followed six months later by a reduced myleo-ablative allo transplant from my sister. I still have many side effects and would love to connect with other stem cell transplant patients who also suffer. I am a member of the blood disorders group as well as the pain management group and I’ve checked out the transplant group and then if I’m really meet the needs. Would welcome a discussion. My side effects include chronic pain – – both joint and generalized myalgia – – also chronic fatigue, mouth problems from GVHD and low immune system. The worst issue is unbelievable sweating, especially around my head. I had highly aggressive diffuse large B cell non-Hodgkin’s lymphoma but I don’t think that it really matters… A stem cell transplant is a stem cell transplant.