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461 total results

Comments (413)

Yes, I believe I am.If I move my toes it feels like there is mud with...

https://connect.mayoclinic.org/comment/91490/

one the dr said it was caused by my sarcoidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 25, 2016

I was diagnosed with Covid end of February, 2020. I was extremely sick for two months,...

https://connect.mayoclinic.org/comment/1095406/

have to go for a liver biopsy), and Sarcoidosis

Discussion: PMR after COVID

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2024

All of this started November 9th, 2019. He didn't feel good and finally agreed to go...

https://connect.mayoclinic.org/comment/897207/

He was diagnosed with HUD, sarcoidosis

Discussion: How to be a good caregiver (bone marrow transplant BMT)?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 17, 2023

Hi - I'm 61 and was diagnosed with Mantle Cell Lymphoma a little over two weeks...

https://connect.mayoclinic.org/comment/706226/

dissection) 2 months ago to rule out sarcoidosis

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2022

@leahchawkins Hello. I was diagnosed with primary vaginal cancer in March 2023. I am now 76...

https://connect.mayoclinic.org/comment/1268777/

immunosuppression (prednisone) for pulmonary sarcoidosis

Discussion: Vaginal cancer diagnosis

Support Group: Gynecologic Cancers

Posted: Mar 28 2:31pm

Terri, I have just returned a few days ago from seeing my Pulmonary/Critical Care doctor. Two...

https://connect.mayoclinic.org/comment/212906/

97.6 so when I had what was severe sarcoidosis

Discussion: about to begin treatment for MAC

Support Group: MAC & Bronchiectasis

Posted: Oct 6, 2018

I have had several symptoms that are all consistent with an Autoimmune Disease, but no doctor...

https://connect.mayoclinic.org/comment/744707/

Disease, Rheumatoid Arthritis, Lupus, Sarcoidosis

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Sep 2, 2022

Thanks, Colleen! Like many others, my journey to transplantation took place over years and then quickly...

https://connect.mayoclinic.org/comment/336585/

The cause of my heart failure was sarcoidosis-induced

Discussion: Looking to interview transplant patients: Increased Risk Donor Hearts

Support Group: Transplants

Posted: Mar 16, 2021

@lisalucier Lisa Lucier, Connect Moderator My first symptom of sjogren ’s was 23 years ago. One...

https://connect.mayoclinic.org/comment/111308/

I had Sarcoidosis in my lungs within

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 5, 2018

Hello Everyone, Many of your stories sound familiar. I was diagnosed with lupus in 2001 at...

https://connect.mayoclinic.org/comment/114618/

diagnosis, and we are currently waiting on sarcoidosis

Discussion: Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Support Group: Autoimmune Diseases

Posted: May 25, 2017

Hi fellow lung nodule worriers/warriors! I had a PET scan in Nov because I learned I...

https://connect.mayoclinic.org/comment/1041767/

My mom has sarcoidosis and my sister

Discussion: Multiple Lung Nodules elevated D-Dimer: How do I stay calm?

Support Group: Lung Health

Posted: Mar 28, 2024

@blossomgirl, and all...Blossom, why are you considering Prednisone and Cellcept? Are you currently in a flare...

https://connect.mayoclinic.org/comment/866630/

Have you been to the Sarcoidosis site

Discussion: Sarcoidosis Treatment: Tips for an effective path to better health

Support Group: Autoimmune Diseases

Posted: May 25, 2023

This is a great question. when I got my 24hr urine calcium tested after op diagnosis,...

https://connect.mayoclinic.org/comment/1176877/

may cause calcium kidney stones •Sarcoidosis

Discussion: 24 hour urine test: Hold supplements?

Support Group: Osteoporosis & Bone Health

Posted: Nov 20, 2024

Hello, I have loss of sensation on the left side of my body. Facial down to...

https://connect.mayoclinic.org/comment/781105/

I have pulmonary sarcoidosis which my

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 5, 2022

@cropdoc, @emo, @ae2024, and all... YES! ITS AWFUL! Since Covid last July and again in November,...

https://connect.mayoclinic.org/comment/1026834/

10mg Prednisone for PMR, GCA, and Sarcoidosis

Discussion: Anyone with head sweating, dripping water with no to little exertion?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 3, 2024

@emo, @ch47, @ch47 and all...I have a small suggestion to add to your great conversation here...

https://connect.mayoclinic.org/comment/904605/

fibromyalgia, stress and tension, Sarcoidosis

Discussion: Topical creams and lotions for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Jul 30, 2023

I've had sarcoidosis since 2011. I am almost 65 years old. Mine has never spread to...

https://connect.mayoclinic.org/comment/130824/

I've had sarcoidosis since 2011.

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Aug 1, 2017

@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and...

https://connect.mayoclinic.org/comment/736559/

while they saved my life when I had Sarcoidosis

Discussion: Double Vision and Autoimmune Diseases like MG: Can anyone relate?

Support Group: Autoimmune Diseases

Posted: Aug 12, 2022

Hi @kimhal. I've have hearing issues since my early thirties, was diagnosed with Meniere's at 40...

https://connect.mayoclinic.org/comment/200239/

up that I was later diagnosed with sarcoidosis

Discussion: Anyone with Meniere's Disease been prescribed Betahistine?

Support Group: Ear, Nose & Throat (ENT)

Posted: Jul 21, 2019

I am so absolutely exhausted with my Sarcoidosis which has spread through most of my body....

https://connect.mayoclinic.org/comment/77280/

am so absolutely exhausted with my Sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Oct 7, 2012