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Comments (3,677)

if I have not thanked you before , let me do so now. He is also...

https://connect.mayoclinic.org/comment/668749/

transplant list and been told to drib NEPRO

Discussion: Anyone have flank pain from polycystic kidney disease (PKD)?

Support Group: Kidney & Bladder

Posted: Jan 7, 2022

Yes. There is an entire group of people on Facebook recovering from such neurological issues which...

https://connect.mayoclinic.org/comment/666931/

The group is called Neuro V Long-Haulers

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Jan 1, 2022

@sueinmn Before retiring, I sometimes had the duty of training people in new procedures. As someone...

https://connect.mayoclinic.org/comment/666764/

with the challenges of exposure as a neuro-atypical

Discussion: Celebrations and Being on the Spectrum

Support Group: Autism (ASD)

Posted: Dec 31, 2021

Me too right after I eat is worse--internal shaking and tremors in hands. I read high...

https://connect.mayoclinic.org/comment/661335/

In 2018 I saw neuro at Mayo, and he

Discussion: GI Disorder and Internal Shaking

Support Group: Digestive Health

Posted: Dec 10, 2021

Hi there! Yes, my SFN is always worse when laying or sitting in certain positions. I...

https://connect.mayoclinic.org/comment/659121/

I asked my Neuro and he was unsure why

Discussion: Neuropathy symptoms are worse when I sit or lay down: Anyone else?

Support Group: Neuropathy

Posted: Dec 2, 2021

Hi - you struck a chord with me as my arms recently started falling asleep badly...

https://connect.mayoclinic.org/comment/657682/

add with the Gabapentin I take for neuro

Discussion: Neuropathy symptoms are worse when I sit or lay down: Anyone else?

Support Group: Neuropathy

Posted: Nov 27, 2021

Welcome, @wpoints. I'm glad to hear that you've not had any vision loss. I'm tagging @naion1lefteye...

https://connect.mayoclinic.org/comment/654086/

hearing what you learn after seeing the neuro

Discussion: Non arteritic ischemic optic neuropathy

Support Group: Eye Conditions

Posted: Nov 14, 2021

Thanks I’ve been to Mayo twice Once in Scottsdale for a neurological work up in 2018...

https://connect.mayoclinic.org/comment/653003/

Scottsdale just told me that neuro/peripheral

Discussion: In which group do I really fit ?

Support Group: Chronic Pain

Posted: Nov 10, 2021

Hi Rbraley, prompted by your post, I did a little digging and found this article -...

https://connect.mayoclinic.org/comment/652874/

- Apathy Is Not Depression https://neuro.psychiatryonline.org

Discussion: Pituitary macroadenoma: Is anyone familiar with Apathy Syndrome?

Support Group: Brain Tumor

Posted: Nov 10, 2021

Good evening @ellnos. Thank you for encouraging feedback from the members on Connect. We are all...

https://connect.mayoclinic.org/comment/648924/

I have never been to a neuro chiropractor

Discussion: Chiropractor to treat neuropathy?

Support Group: Neuropathy

Posted: Oct 27, 2021

My husband has been through the neuro-psyche testing at least three times. He dreads it for...

https://connect.mayoclinic.org/comment/648139/

My husband has been through the neuro-psyche

Discussion: What is the benefit of a Neuropsychological testing?

Support Group: Caregivers: Dementia

Posted: Oct 25, 2021

Hello @doclax I'm Scott and I'm glad you found Mayo Connect. I found Connect when I...

https://connect.mayoclinic.org/comment/646890/

Her neuro docs also recommended neuropsych

Discussion: What is the benefit of a Neuropsychological testing?

Support Group: Caregivers: Dementia

Posted: Oct 21, 2021

good evening santoshia - boy, you have had a worse and longer time of it. i...

https://connect.mayoclinic.org/comment/646224/

had to have many surgeries - neuro surgeon ... he told me to see the neuro dr., which

Discussion: Can anyone suggest any other medication besides Keppra for seizures?

Support Group: Epilepsy & Seizures

Posted: Oct 18, 2021

Hello @blewellyn - Welcome to Mayo Clinic Connect a place where folks can share their experiences...

https://connect.mayoclinic.org/comment/638357/

Neuro toxicity, Cytokine Release Syndrome

Discussion: Prepping for CAR T Therapy: What is the process like?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 23, 2021

@amybeau, hello. I got my Pfizers in Dec/Jan. I quickly (within a week) began having burning...

https://connect.mayoclinic.org/comment/636827/

I underwent just about every neuro diagnostic ... My neuro has mentioned gabapentin a

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Sep 19, 2021

I do not know why my two neurologists have not said much about the MRI I...

https://connect.mayoclinic.org/comment/636589/

on my cervical spine and even the neuro ... This Neuro surgeon on Augusta GA felt ... doctors either NOT be concerned or this Neuro

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: Sep 18, 2021

@jwillits8 Yes, sometimes it seems that Mayo and most similar orgs are only helpful for the...

https://connect.mayoclinic.org/comment/635742/

Girdle Muscular Dystrophy {LGMD}, a Neuro-Muscular

Discussion: Autonomic nervous system malfunction: 2 yrs, yet no diagnosis or help

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 15, 2021

Yes my wife has seen and been in the care of a pulmonologist for decades and...

https://connect.mayoclinic.org/comment/625002/

tremors came on suddenly with no prior neuro

Discussion: Internal Tremors associated w/ pneumothorax or PH

Support Group: Lung Health

Posted: Aug 10, 2021

@skallinn14 my physicians also feel the vaccine “uncovered” some underlying neuro issues I have by causing...

https://connect.mayoclinic.org/comment/624896/

vaccine “uncovered” some underlying neuro ... that happened over night, however my neuro

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Aug 10, 2021

Thanks for the information Jake. I was doing some research and Epidiolex kept coming up. I...

https://connect.mayoclinic.org/comment/624874/

got back to me and stated she (the neuro

Discussion: Seizures and how to dose CBD/medical marijuana?

Support Group: Epilepsy & Seizures

Posted: Aug 9, 2021