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468 total results
Comments (398)
Hi, I was diagnosed in 2008 along with my son who was 22. We realized my...
https://connect.mayoclinic.org/comment/82576/
diagnostic criteria for all types of Ehlers
I have sacroilitis/ankylosing spondylitis that has left me completely paralyzed and only could get around on...
https://connect.mayoclinic.org/comment/53354/
geneticist soon to confirm a diagnosis of Ehlers-Danlos
I wonder if this is a combination of dehydration and autonomic nervous system problems that are...
https://connect.mayoclinic.org/comment/636195/
where I found out I have Classic Type Ehlers
Ehlers Danlos Syndrome and Erathema Nodosum I recently saw there are many people with these two...
https://connect.mayoclinic.org/comment/594412/
Ehlers Danlos Syndrome and Erathema
Hello Ellenbret and Daylily4me 💕 - I concur with the mast cell and low carb comments...
https://connect.mayoclinic.org/comment/1160527/
I have Vascular Ehlers-Danlos (vEDS)
Sorry for coming to this late. I had EBV in 2010. Since then I've struggled with...
https://connect.mayoclinic.org/comment/134898/
I also have ehlers danlos type 3, postural
@lisadog33 I have a lot of the same issues. I was diagnosed in July. But like...
https://connect.mayoclinic.org/comment/145105/
AAD-EDS (articilo-autonomic disorder/ Ehlers
You are so welcome! This is all new to me, even though I’ve been a nurse...
https://connect.mayoclinic.org/comment/1105829/
The Ehlers-Danlos Society site has a
Ehlers-Danlos Syndrome is something that i am going to ask my dr. here in Australia from...
https://connect.mayoclinic.org/comment/1105128/
Ehlers-Danlos Syndrome is something
@becsbuddy Yes, I have seen so many doctors, & certainly plenty of them since becoming breathless....
https://connect.mayoclinic.org/comment/1020120/
;ve got other rare conditions like ehlers
Adding to the community of *this happens to me too*. For me, it isn't painful and...
https://connect.mayoclinic.org/comment/992176/
;m getting checked for hypermobile ehlers-danlos
Here are some additional resources for people living with EDS interested in yoga practices. Yoga for...
https://connect.mayoclinic.org/comment/746202/
As a person living with Hypermobile Ehlers-Danlos
Yes!!! FIT FLOP…..they have a site . Been wearing them for 25 yrs….total game changer!….your feet...
https://connect.mayoclinic.org/comment/1011146/
I’ve had over 40 surgeries due to Ehlers
I had a SCS implanted in my neck at my C2-C3 area to help control my...
https://connect.mayoclinic.org/comment/1171141/
I also have Ehlers Danlos and many of
Welcome, @cierann. You are so right. Everyone is different. While some yoga postures may be right...
https://connect.mayoclinic.org/comment/744344/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Do your own research on Mast Cell Activation syndrome…..it’s VERY real. You have a LOT of...
https://connect.mayoclinic.org/comment/1015300/
I also already had Ehlers Danlos and
Have you ever looked into Mast Cell Activation. Here is a guide to review...the symptoms can...
https://connect.mayoclinic.org/comment/716828/
take you to the guide https://www.ehlers-danlos.com ... syndrome" and select the one on the Ehlers-Danlos
Thanks for your comments. I did want to reply though and say that we are our...
https://connect.mayoclinic.org/comment/186037/
between my physician and myself) with Ehlers-Danlos
I have seen so many specialists & had so many tests over the years. I have...
https://connect.mayoclinic.org/comment/722162/
I also have ehlers-danlos, I have the
Hi Lidiana, Your symptoms sound very much like mine. I spent years trying to get properly...
https://connect.mayoclinic.org/comment/847180/
I have hEDS (Hypermobile Ehlers Danlos
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