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468 total results

Comments (398)

Thanks so much for the reply. I can't believe it's taken you 20 years to get...

https://connect.mayoclinic.org/comment/739605/

as I suggested the possibility of ehlers

Discussion: Undiagnosed for nearly 4 years, need some quality of life back!

Support Group: Digestive Health

Posted: Aug 20, 2022

Sherri, Just wondering, do his MRI's happen to note perineural cysts or Tarlov cysts on his...

https://connect.mayoclinic.org/comment/245662/

testing, and revealed that I also have Ehlers

Discussion: Undiagnosed - Debilitating Abdominal Nerve Pain

Support Group: Brain & Nervous System

Posted: Feb 16, 2019

All these symptoms can be many things, do not get overly scared, talk only to a...

https://connect.mayoclinic.org/comment/217841/

I have ehlers-danlos syndrome, was

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Oct 14, 2018

So disappointing to be at The Mother Ship and feel unheard. Don't know if this is...

https://connect.mayoclinic.org/comment/860170/

He heads up their Ehlers Danlos specific

Discussion: Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Support Group: Bones, Joints & Muscles

Posted: May 15, 2023

@hopeful33250 Paracetamol is the brand name for Acetaminophen. I've heard multiple people state that Gabapentin causes...

https://connect.mayoclinic.org/comment/99601/

I have Ehlers Danlos Syndrome along

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 29, 2020

Hello @pamelars60 -- welcome to Connect. Thank you for posting and sharing here on Mayo Connect....

https://connect.mayoclinic.org/comment/96857/

MCAS is often found in patients with Ehlers–Danlos

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 25, 2018

I've been taking nsaids (aleeve) for almost 40 years. Only issue I have had is when...

https://connect.mayoclinic.org/comment/716112/

due to an inherited condition called Ehlers

Discussion: Comparison of NSAIDs and non NSAIDs for pain

Support Group: Chronic Pain

Posted: Jun 10, 2022

I’ve had 2-3 months of PT that helped too. See previous posts. I agree about any...

https://connect.mayoclinic.org/comment/1135663/

I have hypermobility type Ehlers Danlos

Discussion: Is there a procedure for scoliosis for seniors?

Support Group: Spine Health

Posted: Sep 3 2:43pm

I’ve had over 40 surgeries in my life for Ehlers Danlos so I have learned all...

https://connect.mayoclinic.org/comment/801382/

had over 40 surgeries in my life for Ehlers

Discussion: I have been hurting for 10 months and there is no end in sight.

Support Group: Bones, Joints & Muscles

Posted: Jan 25, 2023

Hello @@danmlee, Thank you for sharing your story; I'm truly sorry that you are going through...

https://connect.mayoclinic.org/comment/134285/

MCAS is often found in patients with Ehlers–Danlos

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2017

I'm relatively new to this. I've had symptoms since last fall, finally got an appointment w/...

https://connect.mayoclinic.org/comment/1075992/

mother had lupus and my daughter has Ehlers-Danlos

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27 9:55pm

@happyat76 I just happen to come across your post a few minutes ago. I am not...

https://connect.mayoclinic.org/comment/281052/

where I was diagnosed with Hypermobile Ehlers

Discussion: pain in my breastbone, ribs and chest

Support Group: Bones, Joints & Muscles

Posted: Jan 8, 2020

I am 72 and have had all ten toes corrected w titanium pins! They were all...

https://connect.mayoclinic.org/comment/846354/

the fat in the feet, well, I have Ehlers-Danlos

Discussion: Foot fat atrophy and hammer toes

Support Group: Bones, Joints & Muscles

Posted: Apr 20, 2023

No one knows for certain the “root cause” of most (all? Dunno, not an expert) autoimmune...

https://connect.mayoclinic.org/comment/1146264/

are hypermobile and develope EDS (Ehlers

Discussion: What is the root cause of PMR? Is it contagious?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23 4:51pm

Hello - Unfortunately, GA was given as a diagnosis for my biopsy with an eruption on...

https://connect.mayoclinic.org/comment/717931/

connective tissues issue (Hypermoble Ehlers ... of the way…I did an online search Ehlers ... on EDS, MCAS, and POTS and from the Ehlers

Discussion: Granuloma Annulare: Any ideas for treatment?

Support Group: Skin Health

Posted: Jun 16, 2022

@lazyironman welcome to the group! I am not familiar with multiple bleb-induced phemothoraces, do you know...

https://connect.mayoclinic.org/comment/173260/

sequencing done, we were looking for Ehler-Danlos ... diagnosis are Fibromuscular Dysplasia, Ehlers

Discussion: First appointment at Mayo with Medical Genetics

Support Group: Visiting Mayo Clinic

Posted: Nov 5, 2017

I have had this problem since a young child. Finally about 15 yrs ago I was...

https://connect.mayoclinic.org/comment/850158/

was diagnosed with fibromyalgia and Ehlers

Discussion: Pain And Changes In Weather...Am I Alone????

Support Group: Chronic Pain

Posted: Apr 27, 2023

Hello I live in a small town and nit one doctor learned about my problem with...

https://connect.mayoclinic.org/comment/145787/

I have sense found i do not have ,EHLERS

Discussion: muscle joint pain

Support Group: Bones, Joints & Muscles

Posted: Apr 4, 2017

Moylandavis, you are right. Remarkably, my husband's best friend got diagnosed with mastocytosis and, in his...

https://connect.mayoclinic.org/comment/774393/

I keep seeing references to ehlers-danlos

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 17, 2022

Hello @wmky, welcome to Connect. I'm not sure I would worry about getting into a disagreement...

https://connect.mayoclinic.org/comment/241742/

well: – Chronic Erythema Nodosum & Ehlers-Danlos

Discussion: Adverse drug reactions; How important is a diagnosis?

Support Group: Autoimmune Diseases

Posted: Jan 25, 2019