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Comments (2,420)

@dannyanddebbie what a great post. I think Reclast may increase autoimmune inflammation for me (I have...

https://connect.mayoclinic.org/comment/1171104/

autoimmune inflammation for me (I have lupus

Discussion: Does anyone have a solution to help manage Reclast side effects?

Support Group: Osteoporosis & Bone Health

Posted: Nov 10, 2024

@njed I believe the sweating is the first thing, from what I remember, that bothered me...

https://connect.mayoclinic.org/comment/774863/

She was diagnosed with Lupus and I was

Discussion: Unusual excessive sweating.

Support Group: Neuropathy

Posted: Nov 19, 2022

I've seen Pain specialist, Orthopedic specialist, Internal specialist, Rheumatology specialist, Gynecologist, Infectious Diseases specialist, Psychology specialist....

https://connect.mayoclinic.org/comment/705201/

I don't have Lupus, Hashimotos,

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: May 4, 2022

HEATHER, My thoughts and Blessings go out to YOU! What you have is how I found...

https://connect.mayoclinic.org/comment/225299/

Fibromyalgia, lupus a,d West Nile!

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Nov 12, 2019

I have been reading many of the posts and feel able today to post my story....

https://connect.mayoclinic.org/comment/225224/

I have been tested for everything- lupus

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Nov 22, 2018

Hi just doing researching again and saw your post from 2018, I too was on Effexor...

https://connect.mayoclinic.org/comment/597539/

years now I have been diagnosed with Lupus

Discussion: Long term effects AFTER withdrawing from Effexor

Support Group: Depression & Anxiety

Posted: Apr 26, 2021

Hi, I am new to Mayo Connect. Tonight I had an honest chat with my chiropractor...

https://connect.mayoclinic.org/comment/108491/

arthralgias and in 2011 got a SLE (LUPUS ... catchall that would be worse jargon than lupus

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 21, 2016

Yes I do as well. I have all of the symptoms you mentioned. Going on 10...

https://connect.mayoclinic.org/comment/950825/

thought that would only be given IF lupus

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Oct 20, 2023

Yes, I was diagnosed with Sjogren's in 2002. In my case my Immune System uses cytokines...

https://connect.mayoclinic.org/comment/911935/

RA, Hashimoto's, and Lupus among

Discussion: Anyone With PMR Also Diagnosed With Sjogren's?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

Yes!I never thought I would be in this situation.I worked in healthcare and knew it could...

https://connect.mayoclinic.org/comment/1076753/

Rhuematologists told me it is not Lupus ... other disease we have in our Family is Lupus.When

Discussion: Internal body vibrations all night

Support Group: Neuropathy

Posted: May 28, 2024

@windyshores Yes doctors do interpret things differently. That is what makes it so difficult to be...

https://connect.mayoclinic.org/comment/695844/

Windyshores, Since you mentioned having Lupus

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: Apr 3, 2022

Hello @suzetteirons, I’m very sorry you continue to struggle. Sjogren’s is tough to diagnose as individuals...

https://connect.mayoclinic.org/comment/634013/

So, I’ve also been tested for lupus,

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Sep 9, 2021

Hi, I am newbie here, I was dx with FIbro in 1996 went on disability Jan...

https://connect.mayoclinic.org/comment/118985/

I have Lupus, FMS, MPS, insomnia, aorta

Discussion: Fibromyalgia pain: Let's connect

Support Group: Fibromyalgia

Posted: Feb 1, 2018

Hi - I have had fatigue issues for many years due to Lupus (in addition to...

https://connect.mayoclinic.org/comment/1070282/

fatigue issues for many years due to Lupus

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

First of all to be diagnosed with small fiber neuropathy you have to have a biopsies...

https://connect.mayoclinic.org/comment/1249928/

Medical hospital records in 2009 show Lupus

Discussion: Is loss of balance your primary complaint with neuropathy?

Support Group: Neuropathy

Posted: Mar 3 11:20pm

So sorry you are going through this, and it is very possible that it not anything...

https://connect.mayoclinic.org/comment/1217017/

Along the way I had a lupus diagnosis

Discussion: Does anyone have any insight?

Support Group: Brain & Nervous System

Posted: Jan 20 12:28am

I always feel calm. It's weird. Maybe it is a physical effect. But I am not...

https://connect.mayoclinic.org/comment/1063944/

diltiazem to help me take steroids (lupus

Discussion: Afib decisions ("Afib Cure" book vs typical cardiologist)

Support Group: Heart Rhythm Conditions

Posted: May 7, 2024

Let me tell you my story which might help you. I was having horrible nerve and...

https://connect.mayoclinic.org/comment/661009/

He said I either have Lupus, MS or HNPP

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: Dec 9, 2021

When I woke up in June of 2022 and felt so sick, out of nowhere, I...

https://connect.mayoclinic.org/comment/1283795/

autoimmune disorders (including RA, Lupus

Discussion: Finally: Diagnosis. Oddly: symptoms have come in stages. Others?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 17 8:10am

Hi, my name is Tracy and I was diagnosed with gastroparesis about 3 weeks ago after...

https://connect.mayoclinic.org/comment/51198/

Syndrome (an autoimmune disease like Lupus

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Feb 4, 2020