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2,654 total results

Comments (2,423)

@tlb101175 I'm going to be blunt~I think it is time for a new neurologist. I've been...

https://connect.mayoclinic.org/comment/875441/

left me with a case of drug-induced lupus

Discussion: Have you successfully weaned off Depakote?

Support Group: Epilepsy & Seizures

Posted: Jun 9, 2023

It’s understandable that you’re feeling a little confused after learning about the conflicting information with your...

https://connect.mayoclinic.org/comment/782596/

conflicting information with your previous Lupus

Discussion: Pending testing to confirm type of lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@mayofeb You are so lucky having deliveries. We only have Instacart in Maui and they seem...

https://connect.mayoclinic.org/comment/293894/

The meds I am on for Discoid Lupus and

Discussion: Let’s Go Walking! Join me for a virtual walking support group

Support Group: Just Want to Talk

Posted: Apr 15, 2020

Hi @heartrunner, You may notice that I moved your message and combined it with this existing...

https://connect.mayoclinic.org/comment/210871/

inflammation or autoimmune reactions (lupus

Discussion: Meds for cardiomyopathy – Ischemic/Non-Ischemic

Support Group: Heart & Blood Health

Posted: Apr 29, 2019

@johnbishop Hmmm, well I guess it makes sense that they don't know what makes it come...

https://connect.mayoclinic.org/comment/167770/

dying for kidney complications from lupus

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Sep 25, 2017

@elkcg. Hi, Laura. I, too, was thin and active before my multiple illnesses hit me. I...

https://connect.mayoclinic.org/comment/95479/

Sjogren's, spinal stenosis and, now, Lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jun 1, 2017

Yes chronic sinus infections for most of my life. Wrist ganglion cyst. Stomach issues. Edema, swelling...

https://connect.mayoclinic.org/comment/60842/

Lupus for my Aunt, Hashimoto’s for my

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Apr 1, 2017

Have been going through exact same thing for 2 yrs and endless test to reveal nothing...

https://connect.mayoclinic.org/comment/1016059/

out auto immune such as gravis to lupus

Discussion: Wildly fluctuating O2 levels

Support Group: Lung Health

Posted: Feb 15, 2024

Your history is quite interesting and a lot of puzzle pieces might fit. I would bet...

https://connect.mayoclinic.org/comment/1152710/

I I have chronic EBV, lupus, RA, PN

Discussion: Illusive Diagnosis, Pain Increasing

Support Group: Bones, Joints & Muscles

Posted: Oct 6, 2024

I've been suffering with this thing popping out on the left side of my throat for...

https://connect.mayoclinic.org/comment/1042359/

have hypermobility Fibromyalgia Lupus

Discussion: Something in my neck is popping out of place

Support Group: Ear, Nose & Throat (ENT)

Posted: Mar 29, 2024

Have you explored autoimmune conditions (antibody tests) through a rheumatologist to make sure your long Covid...

https://connect.mayoclinic.org/comment/995682/

I developed the lupus anticoagulant

Discussion: Anyone think that it’s no longer long Covid? just permanent damage?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 11, 2024

I had "focal" lymphovascular invasion and one report specified lymph vessels. Grade 3, highish ki67%, but...

https://connect.mayoclinic.org/comment/797482/

were risks to it for lungs and with lupus

Discussion: Lymphovascular invasion

Support Group: Breast Cancer

Posted: Jan 16, 2023

Hi I suffered from severe hives from 19 to early 40s when i tested for hashimotos....

https://connect.mayoclinic.org/comment/609577/

Now i have lupus-like CKD.

Discussion: Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions

Support Group: Autoimmune Diseases

Posted: Jun 17, 2021

I absolutely did. I spent the entire month of February in Rochester & after countless testing,...

https://connect.mayoclinic.org/comment/50601/

I am also a lupus patient on Plaquenil

Discussion: Cerebral venous sinus thrombosis (cvst)

Support Group: Stroke & Cerebrovascular Diseases

Posted: Apr 8, 2020

Hi. I have Fibro, RA, Sjogren's, spinal stenosis, depression and now Lupus. I use Trazadone to...

https://connect.mayoclinic.org/comment/118788/

spinal stenosis, depression and now Lupus

Discussion: Fibromyalgia pain: Let's connect

Support Group: Fibromyalgia

Posted: Jul 3, 2017

Have you been tested for Celiac Disease? I had suffered for 12 years with bouts of...

https://connect.mayoclinic.org/comment/1092804/

rheumatologist who tested me for Lyme, MS, Lupus

Discussion: Sedimentación Rate elevated, Proteína C Reactive elevated for 3 years

Support Group: Autoimmune Diseases

Posted: Jun 23, 2024

I was diagnosed with Severe axonal sensorimotor peripheral polyneuropathy Small fiber neuropathy Cardiac autonomic neuropathy- CAN...

https://connect.mayoclinic.org/comment/1311567/

Autoimmune Disorders Sjogrens Lupus

Discussion: Lumbar Fusion and Laminectomy, Need Help.

Support Group: Spine Health

Posted: May 24 5:30am

I am 82; work out 1-2 hours daily...have small fiber neuropathy for 3 years. It has...

https://connect.mayoclinic.org/comment/1318633/

hydroxchloroquin for years but never had any lupus

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Jun 2 12:36pm

4 days after getting the vaccine I became suddenly ill. Lost vision in my left eye...

https://connect.mayoclinic.org/comment/1269745/

have also now been recently dx with Lupus ... I had also tested positive for Lupus ... I found out in January 2025 I have Lupus

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 30 2:39am

I’m almost embarrassed to admit that I’ve been speaking with a psychologist for seven years and...

https://connect.mayoclinic.org/comment/1286765/

sister, is slowly fading away with lupus

Discussion: SIBO, or Duodenitis, or what?

Support Group: Digestive Health

Posted: Apr 21 12:29pm