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Tanja Taff
@taffmorello

Posts: 5
Joined: Apr 12, 2012

Hashimoto's thyroiditis

Posted by @taffmorello, Oct 22, 2016

I was diagnosed with Hashimoto’s thyroiditis and have been taking levothyroxine since April. (I should add i also had a heart attack and two stents placed in LAD and RCA in April, as well) and am taking medications for that as well. Yesterday, October 22, I started having terrible pain in my right hip joint and cannot find a way to get comfortable when lying down or sitting, but if i walk fast it hurts less than when I walk slow or sit. Has anyone had any joint pain side effects from levothyroxine?

REPLY

Welcome back to Connect @taffmorello.
I’m tagging fellow members @taterjoy @michellecrcrn @kyjeanne @dogmamat @sebley12 and @jillnc, all of whom have experience with Hashimoto’s thyroiditis and in some cases have mentioned taking levothyroxine. I also think @dawn_giacabazi @jmbjar and @predictable might have some valuable insight to your specific questions.

Taffmorello, have you made an appointment to see your doctor about this new pain? Given that it is the weekend, have you considered going to ER?

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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I have been on Levothyroxine since april. Started with .5 then .75 and finally good at .100.  I had joint pain in knees, hips when pressure applied, and wrists/hands.  My aunt was convinced I had RA as that’s what she had so I went to an RA dr and found out I have sjogren’s syndrome which can mimic a lot of things.  She put me on 5mg of predisone fir awhile and I’m now being weened off of it.. joint pain as so far stayed away. I also take something for sjogren’s as well.  I would suggest going to an RA dr for the joint pain, they can usually figure that out and mine is very good about sending to other drs to rule other things out too.  

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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@jillnc, you offer a very good recommendation to @taffmorello for investigation of her hip pain — specialist in Rheumatoid Arthritis, which is often an immune system disorder, similar to her Hashimoto’s thyroiditis! As we know about immune system disorders, one is often a clue to another — sometimes a few others.

@colleenyoung

Welcome back to Connect @taffmorello.
I’m tagging fellow members @taterjoy @michellecrcrn @kyjeanne @dogmamat @sebley12 and @jillnc, all of whom have experience with Hashimoto’s thyroiditis and in some cases have mentioned taking levothyroxine. I also think @dawn_giacabazi @jmbjar and @predictable might have some valuable insight to your specific questions.

Taffmorello, have you made an appointment to see your doctor about this new pain? Given that it is the weekend, have you considered going to ER?

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Hi, Colleen. I have not made an appointment yet. I will do so tomorrow morning.

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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Thank you @predictable. I am taking 50 mg of levothyroxine daily for Hashimoto’s. The rest of my meds include baby aspirin, daily; Brillinta b.i.d., Carvedilol b.i.d., Atorvastatin daily; and Losartan daily. But, I’m thinking that this hip pain, which is now radiating to my glute (right side) and down my right leg may be related to my sciatic nerve. I did a lot of sitting and working on the computer this last week for work and writing a paper. This may be more of a back/mechanical/muscle issue. I will see a healthcare provider tomorrow. Thank you for sharing your information about your wife’s use of levothyroxine. I’m glad she is very athletic at this time, as I am hoping to be very athletic, as well.

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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Thank you, I will ask my provider to consider RA, as well.

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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@taffmorello, a couple of quick comments. Your hip pain may be attributable to Atorvastatin, which (as with most statins) has muscle and joint side effects. I take Carvedilol and have taken Losartan for hypertension. Brilinta is an anti-coagulant, isn’t it? I’m taking Warfarin to discourage formation of clots in the heart. As to the sciatic nerve possibility, I had pain in the middle of my pelvis for months. Orthopedic specialists wanted to operate and/or puncture me with pain killer shots. No thanks. I delayed and ultimately found out that my sacroiliac joints were inflamed. Anti inflammatory injections directly into the joints did two things: confirmed that diagnosis and also ended the pain. No pain now for over two years. You might ask your medical team about these possibilities.

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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I hope you get a good night’s rest tonight @taffmorello. Please let us know what you find out from your appointment.

Liked by Tanja Taff

@predictable

Hi, @taffmorello, I’d like to add a brief early comment on your troubling situation and, in the process, help to resolve your main question here: Is Levothyroxine causing joint pain? I doubt it. My wife and I had extensive treatment by endocrinologists a few years ago in connection with my hypertension and her thyroid problem. She has been on 75mcg daily Levothyroxine for several years after her doctor found thyroid deficiency in her metabolism. She was under treatment for Diabetes 2. So far as we can tell, she has had no symptoms of pain or discomfort from the medication and, in fact, has generally positive conditions, including a moderately heavy daily exercise regimen that exceeds what you’d expect for a 78-year-old woman by 5-6 hours a week.

We haven’t found information on Levothyroxine that suggests a role for it in treatment of thyroiditis, including inflammation from immune system attack on the thyroid gland. It is used mainly for replacing a deficient thyroid hormone. Would you mind sharing what your daily dosage of Levothroxine is? And what medications are involved in treating your post-operative heart condition?

I won’t speculate about what’s causing your hip pain — only comment that it’s strange to hear that your hip joint is more painful at rest (or nearly so) than when it’s moving fairly rapidly. Would your medical team provide any insights on that? Or would they call in a neurologist and an orthopedic specialist to order an MRI image of your hip in motion? I hope these questions will help in your search for information on your painful hip.

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Thank you, @predictable!

@taffmorello, I am sorry you are experiencing hip pain and hope by now it has resolved or is at least less severe. I have been taking levothyroxine since 2001 and can say with some certainly that it has not caused joint pain. However, I have experienced two “bouts” of inflammatory join pain (inflamed nodes) in fingers/hand over the past 10 years which were attributed to stress induced inflammatory joint pain, which resolved after several weeks each time. I have been told that having one autoimmune disease makes us more likely to have another, so they tested me for rheumatoid arthritis and for lupus; while I had a slightly raised ANA, I don’t have enough “criteria” to be diagnosed with either.

My mom suffers from fibromyalgia (she does not have hashimotos, and she is not on levothyroxine). She was diagnosed in the 1970s at Mayo clinic. Her fibro primarily affects her hip joints. She also now has bursitis in one hip, which has been difficult to treat (the shots of corticosteroid have not gone into the bursa, and have instead caused more pain). I am mentioning these in case your hip pain might be due to a similar cause. Her fibro flares less when her weight is controlled. She has also been told that when she exercises (she walks for exercise) she needs to stretch more first, to prevent injury. She had dementia, and forgets to “warm up.”

I hope your issue can be resolved quickly.

I’ve been reading about this autoimmune disorder and am being led to believe it might be reversed with the proper healing diet. Only problem is so much information conflicts with each other. No sugar, wheat or cruciferous veggies seems to be consistent guidelines, but everything else is up in the air. Would also love to drop pounds which is so difficult with thyroid issues. Any advice please?

Hello @lindalaural, and welcome Connect,

That’s a great question, especially with all the changing recommendations for diets. You will see that I’ve moved your post to this discussion in the Diabetes/Endocrine group, and I’m tagging @taterjoy, @michellecrcrn, @kyjeanne, @dogmamat, @sebley12, @jillnc, @taffmorello, all of whom have experience with Hashimoto’s thyroiditis.

Mayo Clinic News Network also answered that very question recently, and you can read it here: http://mayocl.in/2nYHEDJ

@lindalaural, when were you diagnosed with Hashimoto’s thyroiditis? Have you made any significant dietary changes?

Thank you! Yes, diagnosed about 4 years ago. Recently had an ultra sounds that showed only 1/3 of my thyroid remaining. I have been unable to find any dr. Who knows much about this and have been given little info regarding diet,lifestyle change. After years of going through some junk, I have an appointment at Mayo’s coming up April 10. I’ve tried several diets, including high fat/moderate protien, Atkins type diet (which may be the best so far), everything in moderation diet. I read so much and have confused myself. While every body is different, sure wish I could know what’s best for my condition. Will anxiously read your recommendation.

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