Ulcerative Colitis questions

Posted by psdoolittle @psdoolittle, Jan 27 8:32pm

I have been navigating a UC diagnosis for about the last 6 months. Previously the stool bleeding was diagnosed as hemmeroidal, but things continued to progress until a colonoscopy revealed serious inflammation in the colon. After a grade 3 diagnosis, the doctors pushed for humira. I tried a very strict, anti-inflammatory diet first, and it helped a lot. Still a little blood in the stool tho. So tried mesalamine both oral and the suppository. I thought things were improving using b, as the color I saw in the stool was purple rather than red, but doctors said it was still blood and pushed again for humira. I took their advice and am now approaching the 7th injection. I have more bleeding now than ever and I have abdominal pain and urgency. I am definitely in the middle of one of my worst flareups. Anyone out there have a similar story and advice? I’m feeling confused and frustrated.

Hello @psdoolittle, welcome to Mayo Clinic Connect. There is another discussion on Ulcerative Colitis where your post and questions will receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion where you can meet other members sharing your symptoms who may be able to offer some suggestions or answers for you.

> Groups > Digestive Health > Ulcerative colitis and cirrhosis of the liver
https://connect.mayoclinic.org/discussion/ulcerative-colitis-and-cirrhosis-of-the-liver/

Has your doctor offered any suggestions or have you thought about seeing a specialist?

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@johnbishop

Hello @psdoolittle, welcome to Mayo Clinic Connect. There is another discussion on Ulcerative Colitis where your post and questions will receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion where you can meet other members sharing your symptoms who may be able to offer some suggestions or answers for you.

> Groups > Digestive Health > Ulcerative colitis and cirrhosis of the liver
https://connect.mayoclinic.org/discussion/ulcerative-colitis-and-cirrhosis-of-the-liver/

Has your doctor offered any suggestions or have you thought about seeing a specialist?

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Hello @johnbishop . I have been working with a local doctor who refered my to specialists about two hours away from where I live. Both my doctor and the specialists have advocated for the biologics from the beginning. One problem I'm having is it seems I never get the same specialist when discussing my ongoing issues. I feel like I don't have a team invested in my wellness, although I understand perhaps electronic data sharing may in the get an agreed-upon message to back to me. Since the disease has been framed to me as an autoimune disease, I posted here and hoped to hear from others on directions to pursue. I really appreciate the prompt reply and additional assistance.

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You need a continuum of care, which won't happen with seeing a different doctor every time. I'd go somewhere else.

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