Results for search term "#mg".

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Reply on Ewing Sarcoma in fibula of 16yo girl

@mgashaj, here are a few tips that I have learned from other patients on chemo regarding taste changes. They may be worth sharing with your cousin to see if any are helpful for her: - Use wooden or plastic utensils. Sometimes when food has a metallic [...]

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Reply on Ewing Sarcoma in fibula of 16yo girl

@mgashaj, I can imagine that you are anxious for your cousin. I'm bringing @madstrong and @kristennursepatient into this discussion so they can share first hand experiences with you. How did chemo go today for your cousin? Do you know what [...]

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Reply on 12yo male diagnosed with seizures but experiencing strange behavior

@mgashaj I can’t help but wonder if the discontinuation of the Keppra 6 weeks ago played a role in his latest seizure. Close to half of seizure patients have Post-Ictal headaches. His apparent normal EEG’s don’t mean he doesn’t have a seizure disorder. Even if he had [...]

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Reply on 12yo male diagnosed with seizures but experiencing strange behavior

@mgashaj Hi there, Although numerous things may cause one to see lights seizures are certainly a possibility. I’ve had Epilepsy for 52 years so my mind is more geared towards the possibility of seizures. The symptoms you describe are consistent with a Focal Aware Seizure (old terminology [...]

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Reply on I am not ok with this at all

Hello @mgreene and thank you for the encouraging and informative post to @freeangel. Personal experiences, like yours, speak volumes. You are right that many doctors (even gastroenterologists) will diminish the idea that carcinoid is cancer. Carcinoids ARE a rare form of cancer. For [...]

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Reply on MGUS and osteoporosis?

@suzye How are you doing? How is your MGUS and osteoporosis situations affecting your everyday life? Do you have any tips for us in changing diet or the way we advocate for our own health, please? Ginger [...]

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Reply on Non Hodgkin's Lymphoma- Watch & Wait Approach

@travelgirl Hi Jackie. Two years ago I was told I had MGUS, and believed that, with quarterly bloodwork. In December 2018, my hematologist-oncologist said "let's go 6 months this time, since everything seems to be looking good". In June my bloodwork came back wonky; it was also [...]

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Reply on Non Hodgkin's Lymphoma- Watch & Wait Approach

@vonbaron36 I been on a Watch and Wait since January of 2016. I dont feel or see any swollen lymph nodes. Mine lymph nodes they r waiting r near my Aorta. That is a good sign you could be on watch and wait your whole life. :) [...]

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Reply on Polymyalgia rheumatica

@becsbuddy...thanks for the info. How long were you on 14 mgms before you dropped to 13 and did the pain come back right away? My rheumy is back from hols and I have an appt for tmo, thank goodness! Any info you want to pass on, I [...]

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Reply on Non Hodgkin's Lymphoma- Watch & Wait Approach

@travelgirl This is my first post on this group. Last week i went to my new hematologist-oncologist. In Oct 2017 my oncologist told me I had MGUS, after a bone marrow biopsy, and had been monitoring it every three months. Last December she decided to wait for [...]