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Blood Cancers & Disorders

Welcome to a place where you can meet people living with blood cancers and disorders or caring for someone with such conditions as: amyloidosis, anemias, coagulation disorders, leukemias, lymphomas, myelomas, myeloproliferative disorders, and more. Add yourself to the member list and click the + Follow button to receive email [...]

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Reply on ~ copper knee supports ~

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Reply on How to address PMR pain while decreasing prednisone

Hello, Pauletta@rachelp, I really have to agree with you that fatigue is huge when you have PMR. I was diagnosed in Oct’18 and still can’t get rid of it! Was on 25 mgms Prednisone and finally, got down to 1.5...then it raised its ugly head again and I’m now back [...]

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Reply on Radiation with or without Temodar for Glioblastoma?

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Reply on Need hope: my mother has severe neuropathy from chemo

needshope78, chemotherapy may have caused magnesium deficiency. Thiamine (B1) requires enzymes created with magnesium and a symptom of deficiency of B1 is neuropathy. Thiamine works best with the other B vitamins. Boron increases magnesium absorption as noted in "nothing boring about boron." To understand more about magnesium search on "krispin [...]

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Reply on Pulmonary hypertension diagnosis

Hi Stan If that was an accurate resting measurement then I would assume that you have mild pulmonary arterial hypertension. However, estimations of the degree of PAH from echo data are not necessarily reliable and you would have to submit to invasive right-heart catheterization, which does carry a degree [...]

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NETs and Nutrition Webinar on Monday, April 20

The Carcinoid Cancer Foundation is announcing a webinar on Monday, April 20 at 12:00 noon Eastern Time, for a special Facebook LIVE event! Neuroendocrine tumor (NET) nutrition expert, Leigh Anne Burns, RDN, will be presenting an in-depth discussion about NETs and Nutrition. If you have any non-case specific questions, [...]

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Reply on COVID-19 and Transplant Patients

I'm extremely fortunate to live near a very small resort town on the Oregon coast...lucky because people here are generally friendly and extremely generous, and because the three western states all have governors who acted early, prevented some of the horrors that have happened where people didn't act as quickly. [...]

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Reply on COVID-19 and the NETs Patient

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Major Changes as Spouses Age

My second husband and I met while both of us worked in the sport fishing industry, he in a tackle shop only a couple years into the industry, and me working for a publisher of sport fishing magazines and books, a decade into the industry. Our first "date" was fishing [...]

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Reply on COVID-19 and Transplant Patients

Reply to JK, volunteer monitor: My husband is five years younger, just turned 73 (I'll be 78 in a few weeks). He was active in spite of back problems/pain, low kidney function, and dialysis three nights a week, but retired when he got his transplant and hasn't done anything except [...]

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Reply on COVID-19 and Transplant Patients

Early on, I had heard that depression often follows transplant, which isn't logical but apparently pretty common. The transplant team blew off my concerns. Ditto for our kidney doc, who is a wonderful, caring person, very important in both our lives. Our primary doc retired not long after the transplant, [...]

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Reply on Glioblastoma Grade 4

It is my understanding that MGMA-The O6-methylguanine-DNA methyl-transferase (MGMT) gene is located on chromosome 10q26.3 is a genetic marker. Is this passed on from parents to children? If so, does one parent have to have or do both? [...]

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Reply on Visual Escapes and Daily Inspirations: Share Yours

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Reply on Visual Escapes and Daily Inspirations: Share Yours

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Reply on Visual Escapes and Daily Inspirations: Share Yours

My daughter had tumor removed from her brain. It was tested and found to have, " MGMT Promoter Methylation" . Does that mean I carry this or(logic) my wife carries. [...]

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Reply on Myasthenia Gravis

Have you seen that the MGFA has cancelled the annual conference due to covid19? [...]

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Reply on When plans change because of health issues. How do you cope?

Gosh! I've been monitored for 8 years for my MGUS. Sorry to hear about your progression to SMM. We all know this may be in our future, but can't be easy to hear that diagnosis. Would love to hear more about your care at Mayo and whether you participate in [...]

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Reply on When plans change because of health issues. How do you cope?

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Hematology

Welcome to your home for all things Mayo Clinic Hematology. At Mayo Clinic, hematologists work in collaboration with teams of experts from virtually every medical and surgical specialty for the care of adults and children with blood diseases, including various cancers of the blood and bone marrow. Follow the [...]