Insomnia, depression, anxiety

Posted by azkidney57 @azkidney57, Sat, Jan 11 5:43am

So here I am it’s 4 am I have been awake since 3 am I often wake up. I can’t go back to sleep. I can’t text my friends I could be they would ask why I was texting so early. I tried my usual sleepy time tea, Clonazepam, deep breathing etc etc and I still wake up! I remember when I was I in the hospital I would call the nurse and I would have morphine injected into my IV port and that would help me sleep. I can’t have morphine. OxyContin also made me sleepy. Can’t have that anymore I ran out. It would be so nice if I could get 7-8 hours of uninterrupted sleep. Maybe someday.

Hopefully, someday for all of us – good luck and hang in there.

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@azkidney57 Many of us do not get uninterrupted sleep. Myself, it has been decades and decades, as I am a light sleeper besides dealing with a mind that will not shut down. If there is something on your mind, perhaps writing it down/about it before retiring might help. Have you tried deep relaxation on yourself, doing a "body check" starting at your toes and working towards top of your head? Is your sleeping environment conducive to good sleep? Light, temperature, noise, comfort all play a part in optimum sleep. Hoping you can suss out the issues!
Ginger

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@gingerw

@azkidney57 Many of us do not get uninterrupted sleep. Myself, it has been decades and decades, as I am a light sleeper besides dealing with a mind that will not shut down. If there is something on your mind, perhaps writing it down/about it before retiring might help. Have you tried deep relaxation on yourself, doing a "body check" starting at your toes and working towards top of your head? Is your sleeping environment conducive to good sleep? Light, temperature, noise, comfort all play a part in optimum sleep. Hoping you can suss out the issues!
Ginger

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Hi Ginger, I'm afraid the insomnia is strictly the lack of seroquel. Slept like a baby as long as I took various doses of lorazepam and then the 25 mg of seroquel (weaned down from higher doses.) The last titrated dose of seroquel was on Dec 31st (happy new year.) Now I can't fall asleep before around 4a.m. and am lucky if I can sleep 3 or 4 hours. I'm going to try melatonin (I think), but not totally sold out on that idea because of possible interactions with other meds and glaucoma. My sleep environment is good, I'm trying walking, diet and prayer to get through. Need a miracle.

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Another way to induce sleep comes from Dr. Andrew Weil, who I believe calls this the 4-7-8 method. Place the tip of your tongue on the back of your lower front teeth. Inhale for four seconds. Hold that breath for seven seconds, then exhale for eight seconds. Took me a bit to believe it could work, but I have found success. No idea as to the physiology of this method, and it could just redirect mental activity. Just tossing it out. Give it some time if you wish to try it.

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@elwooodsdad

Another way to induce sleep comes from Dr. Andrew Weil, who I believe calls this the 4-7-8 method. Place the tip of your tongue on the back of your lower front teeth. Inhale for four seconds. Hold that breath for seven seconds, then exhale for eight seconds. Took me a bit to believe it could work, but I have found success. No idea as to the physiology of this method, and it could just redirect mental activity. Just tossing it out. Give it some time if you wish to try it.

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Thanks – at this point – will try it!

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@azkidney57 I have trouble sleeping too. I generally wake up too early so give in to it and go back for a nap later in the morning. When I was on oxycodone and OxyContin they kept me totally awake!

@gingerw I too can’t quiet my mind, some nights are worse than others, depending on what is happening in my life. It’s miserable.

@rainer I do use melatonin and I think it helps. It has been approved by my transplant team. I take 3mg. I have heard that higher doses cause nightmares.

@elwooodsdad there’s number of those counting methods for falling asleep. I think the real help is that they put you on a mindless activity.
JK

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@elwooodsdad

Another way to induce sleep comes from Dr. Andrew Weil, who I believe calls this the 4-7-8 method. Place the tip of your tongue on the back of your lower front teeth. Inhale for four seconds. Hold that breath for seven seconds, then exhale for eight seconds. Took me a bit to believe it could work, but I have found success. No idea as to the physiology of this method, and it could just redirect mental activity. Just tossing it out. Give it some time if you wish to try it.

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I mistakenly advised to place the tongue against the bottom teeth. Dr. Weil instructs the UPPER teeth, and do no more than four sequences at a time. I think the directed breathing and focus redirects the over active mind…but it works for me regardless.

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@gingerw

@azkidney57 Many of us do not get uninterrupted sleep. Myself, it has been decades and decades, as I am a light sleeper besides dealing with a mind that will not shut down. If there is something on your mind, perhaps writing it down/about it before retiring might help. Have you tried deep relaxation on yourself, doing a "body check" starting at your toes and working towards top of your head? Is your sleeping environment conducive to good sleep? Light, temperature, noise, comfort all play a part in optimum sleep. Hoping you can suss out the issues!
Ginger

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I am trying everything. I will make my bed room darker and I have a fan for white noise it helps some people. My psychiatrist has a sleep regimen that I am working on. I haven’t started on sleep meds like Seroquel etc because I would like to sleep on my own. I also have a mind I can’t shut off! I am not “at ease” any more. It stems from my cancer diagnosis, my nephrectomy, the scans, scanxiety, the doctor appointments, the “surveillance”, it’s a cycle that will repeat. I realize it happens to others. I didn’t realize so many others have issues with insomnia my psychiatrist told me it’s a big issue! I average 5-6 hours of straight sleep sometimes less,never more. My PCP told me a drugged sleep isn’t a restful one. I told him he probably doesn’t have full time insomnia! My psychiatrist wants me try more natural ways before we go on to drugs. Well at least I am in good company. Thank you Ginger for your input.😊

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@rainer

Hopefully, someday for all of us – good luck and hang in there.

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Thank you I will keep trying ways to get better longer sleep.

Liked by healingone

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@azkidney57

I am trying everything. I will make my bed room darker and I have a fan for white noise it helps some people. My psychiatrist has a sleep regimen that I am working on. I haven’t started on sleep meds like Seroquel etc because I would like to sleep on my own. I also have a mind I can’t shut off! I am not “at ease” any more. It stems from my cancer diagnosis, my nephrectomy, the scans, scanxiety, the doctor appointments, the “surveillance”, it’s a cycle that will repeat. I realize it happens to others. I didn’t realize so many others have issues with insomnia my psychiatrist told me it’s a big issue! I average 5-6 hours of straight sleep sometimes less,never more. My PCP told me a drugged sleep isn’t a restful one. I told him he probably doesn’t have full time insomnia! My psychiatrist wants me try more natural ways before we go on to drugs. Well at least I am in good company. Thank you Ginger for your input.😊

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@azkidney57 I agree with your doctor, a drugged sleep is not as restful. I tried sleeping pills once many years ago and hated them. I felt like a slug in the morning. Some nights I do take Benadryl and it helps but I don’t want to make a habit of it. I also take melatonin some nights. And a few times a month, if I really need the sleep I take a low-dose lorazepam. I got a new Rx for it at my PCP recently (he never makes the Rx refillable) and he commented that I really do not use them much.

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@azkidney57

I am trying everything. I will make my bed room darker and I have a fan for white noise it helps some people. My psychiatrist has a sleep regimen that I am working on. I haven’t started on sleep meds like Seroquel etc because I would like to sleep on my own. I also have a mind I can’t shut off! I am not “at ease” any more. It stems from my cancer diagnosis, my nephrectomy, the scans, scanxiety, the doctor appointments, the “surveillance”, it’s a cycle that will repeat. I realize it happens to others. I didn’t realize so many others have issues with insomnia my psychiatrist told me it’s a big issue! I average 5-6 hours of straight sleep sometimes less,never more. My PCP told me a drugged sleep isn’t a restful one. I told him he probably doesn’t have full time insomnia! My psychiatrist wants me try more natural ways before we go on to drugs. Well at least I am in good company. Thank you Ginger for your input.😊

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@azkidney57 I am lucky to get 2 hours of sleep at a time. Then awake for awhile. Sometimes I go back to sleep for a couple more hours, often, not. This cycle has been for decades, literally. I have found that a weighted blanket, that I "cocoon" myself in to, seems to help a lot. And a cool if not cold room. And, for me, sleeping alone is better, which is not working out well as I got married April 2017. ;((
Ginger

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@gingerw

@azkidney57 I am lucky to get 2 hours of sleep at a time. Then awake for awhile. Sometimes I go back to sleep for a couple more hours, often, not. This cycle has been for decades, literally. I have found that a weighted blanket, that I "cocoon" myself in to, seems to help a lot. And a cool if not cold room. And, for me, sleeping alone is better, which is not working out well as I got married April 2017. ;((
Ginger

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@gingerw. I don’t know what size bed you and your husband share, but it might worth the money to get a K if it will help your marriage! We do fine in a Q but when we go away the hotel room usually has a K. I don’t even know that my husband is there.
JK

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You might want to try mindfulness as a strategy to at least deal with an excited mind. I use the Headspace app and there’s a fee. It has midnight SOS meditations. I haven’t had insomnia since I’ve been medicated with antidepressants for the last 10+ years, so I haven’t needed it for sleeping. But, I love listening to the silly bedtime stories at bedtime and the odd times when I do wake up at night and can’t get back to sleep. It does a good job of switching my big old brain off, which feels very relaxing. You can also take a look at this website. They seem to have a ton of material. https://www.mindful.org/a-mindfulness-practice-for-better-sleep/ Good luck. Insomnia was my precursor to deep depression. Praying that you find relief.

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Thank you so much for the link – will give it a go – Glad you found relief and really appreciate your prayers. I did get some sleep last night (at last.) Thank you for mentoring – the encouragement I've received from this Mayo group has made a big difference over the last couple of days. Wish I had found it months ago. : )

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@azkidney57

I am trying everything. I will make my bed room darker and I have a fan for white noise it helps some people. My psychiatrist has a sleep regimen that I am working on. I haven’t started on sleep meds like Seroquel etc because I would like to sleep on my own. I also have a mind I can’t shut off! I am not “at ease” any more. It stems from my cancer diagnosis, my nephrectomy, the scans, scanxiety, the doctor appointments, the “surveillance”, it’s a cycle that will repeat. I realize it happens to others. I didn’t realize so many others have issues with insomnia my psychiatrist told me it’s a big issue! I average 5-6 hours of straight sleep sometimes less,never more. My PCP told me a drugged sleep isn’t a restful one. I told him he probably doesn’t have full time insomnia! My psychiatrist wants me try more natural ways before we go on to drugs. Well at least I am in good company. Thank you Ginger for your input.😊

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It sounds like you are doing everything and you will find your sleep "sweet spot." I have to agree with your doctors, try to find a natural way before going to drugs. It is a miserable thing trying to get off them. Best of luck!

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