Transplants Support Group

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Comments (337)

I'm wondering how close you had to be to Mayo (if that's where you went) before...

https://connect.mayoclinic.org/comment/1078899/

Discussion: I would like to hear from anyone who has had a lung transplant

Support Group: Transplants

Posted: Jun 1, 2024

My husband had a liver transplant six weeks ago. The After the transplant, it was discovered...

https://connect.mayoclinic.org/comment/1078623/

Discussion: Are you familiar with Hepatopulmonary Syndrome and oxygen use?

Support Group: Caregivers

Posted: May 31, 2024

Hello! Thank you for your response. I am so happy to hear you received your gift...

https://connect.mayoclinic.org/comment/1039778/

Discussion: Pediatric Heart Transplant: looking for support as a parent of a teen

Support Group: Transplants

Posted: Mar 25, 2024

Thank you, @vollenweider6154. I can’t believe that today is year 5 already!! My goal in starting...

https://connect.mayoclinic.org/comment/1010915/

Discussion: Snapshots of hope: Life on the other side of transplant.

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 6, 2024

@helenrivera @windwalker @jackiez @nnelson823 @djallan @mariakathleen @shariscorner @sbt19 @spider109 @beckbeck67 @chrisxkauffold @abmac - many of you...

https://connect.mayoclinic.org/comment/1007906/

Discussion: Lung Transplant: What can I expect?

Support Group: Lung Health

Posted: Feb 1, 2024

I had a Heart transplant and I was taught as for cleaning that once a week...

https://connect.mayoclinic.org/comment/999779/

Discussion: Use and cleaning CPAP post transplant (BMT)

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 18, 2024

I understand your concern. I am liver transplant Oct 2020. I have used CPAP for several...

https://connect.mayoclinic.org/comment/998955/

Discussion: Use and cleaning CPAP post transplant (BMT)

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2024

Thank you so much. I looked up the doc. He is a hepatologist who works with...

https://connect.mayoclinic.org/comment/848366/

Discussion: Cirrhosis of the Liver: What to expect when waiting for a transplant?

Support Group: Transplants

Posted: Apr 24, 2023

Hi @melly2010 😊 My understanding is that 74 years old is not considered too old for...

https://connect.mayoclinic.org/comment/810522/

Discussion: Post kidney biopsy: AV fistula

Support Group: Transplants

Posted: Feb 12, 2023

Hello, I have been transplanted with both lungs since 2008 and 2010: I have always had...

https://connect.mayoclinic.org/comment/809659/

Discussion: Prograf versus Adoport

Support Group: Transplants

Posted: Feb 11, 2023

Hi Bob, I, too, have PKD. I had one kidney removed at time of transplant three...

https://connect.mayoclinic.org/comment/796454/

Discussion: PKD kidneys removed at time of transplant

Support Group: Transplants

Posted: Jan 14, 2023

@jackiez - Congratulations on your success! This is a fantastic article. Thanks for sharing. https://mayomagazine.mayoclinic.org/2022/08/heart-lungs-transplant-recipient-mayo-clinics-care-allowed-me-to-experience-life-to-its-fullest/

https://connect.mayoclinic.org/comment/745528/

Discussion: Lung Transplantees: Let’s connect

Support Group: Transplants

Posted: Sep 4, 2022

@rselbie, I want to welcome you to Connect. Am I correct to assume that you have...

https://connect.mayoclinic.org/comment/741536/

Discussion: Anyone have breathlessness with changes in antirejection meds?

Support Group: Transplants

Posted: Aug 25, 2022

I had signs of pulmonary disease for about 20 years before being diagnosed with pulmonary fibrosis...

https://connect.mayoclinic.org/comment/717420/

Discussion: Transplant; Stomach Acid Reducers like Pepcid

Support Group: Transplants

Posted: Jun 14, 2022

@emil, I want to welcome you to Mayo Connect. I see that you have recently joined...

https://connect.mayoclinic.org/comment/692345/

Discussion: This and That and Talk - My Transplant

Support Group: Transplants

Posted: Mar 23, 2022

I am not sure how to link you to my story, so I will give you...

https://connect.mayoclinic.org/comment/1439129/

Discussion: Has anyone here had a lung transplant? What's it like?

Support Group: Transplants

Posted: Nov 15, 2025

My other apprehension is that my best friend who had been transplanted six years prior died...

https://connect.mayoclinic.org/comment/1215579/

Discussion: Any success stories anyone can share? I'm pre-transplant.

Support Group: Transplants

Posted: Jan 18, 2025

@wildcat In the USA the donor's family retain the right to remain anonymous. That is why,...

https://connect.mayoclinic.org/comment/127882/

Discussion: Changes after Transplant

Support Group: Transplants

Posted: Jul 29, 2019

I had a living donor kidney transplant with a simultaneous bilateral native nephrectomy. My native kidneys...

https://connect.mayoclinic.org/comment/213233/

Discussion: Support for those waiting for transplants

Support Group: Transplants

Posted: Aug 23, 2018

@jodee. Our son is at Mayo today for his 3 month evaluation (double lung). The first...

https://connect.mayoclinic.org/comment/207887/

Discussion: Just wondering...sometimes after the call, it doesn't work out?

Support Group: Transplants

Posted: Jul 17, 2018

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