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Post-COVID Recovery & COVID-19 Support Group

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Discussions (236)
Any benefits to taking prednisone 5 mg for long Covid symptoms ?
An immunologist in NYC who works with long Covid patients prescribed prednisone 5 mg for my long Covid 19 symptoms: brain fog, fatigue , joint...
Last active: Aug 2, 2024
Cytokines through the brain blood barrier
Does somebody knows the medical way (not only biologics) to block cytokines from traspassing the blood brain barrier? That could be a game changer for...
Last active: Feb 1, 2023
Hair Loss/Burning Itching Scalp after Covid
The folks here have been so sweet and helpful with my questions, so I'm posing a new concern today. On top of the extreme fatigue...
Last active: Jan 16 9:14am
Long Covid inflamed Vocal Chords
I have little to no voice and when talking I have gasp to breathe, heart races doing little things, fever, no energy fatigue. I’m 41...
Last active: Feb 20, 2022
Anyone else experiencing what I call head "awareness?"
I'm 73 with 2 Pfizer COVID shots and one Pfizer booster before this condition started. Had it now for 9 months...sudden onset 11/10/2021. Fever, chills,...
Last active: Mar 2, 2023
Covid pneumonia turns to long haul covid?
I’m 30 days post Covid pneumonia. Fatigue, SOB, body aches, joint pain, difficulty sleeping, edema of feet and increase in night sweats. Are these all...
Last active: Oct 28, 2024
Post covid flair up monthly
I got covid in October 2021 and had my first vaccine January 1rst this is when symptoms started have I now have dystolic heart failure...
Last active: Jan 21, 2023
Have any of you had success with acupuncture ?
I have an appointment with an integrated doctor who practices western and eastern medicine. I am hoping that he can help me with my fatigue....
Last active: Mar 15, 2025
Oral Surgery cause long covid flare
I had a tooth extracted and 2 days later I felt exhaustion. I am at day 5 and still feel exhausted. Had anyone experienced minor...
Last active: May 15, 2025
Covid Tremors and Covid Vibrations support group and Myoclonus (jerks)
Is there any treatment for Covid Tremors and Covid Vibrations and Myoclonus (sudden muscle jerks)? My wife first got Covid in June of 2022, then...
Last active: Dec 2, 2023
Are there any medical tests to prove LC?
I am working on a short-term disability case for myself and I keep hearing, "There is no objective evidence to support the medical necessity of...
Last active: Jun 2, 2025
Did PAXLOVID also relieve your arthritis and autoimmune symptoms?
Hi, everyone I have been diagnosed with autoimmune diseases. The diagnoses have changed over time (lupus, not lupus, spondyloarthropathy, akylosing spondylitis, rheumatoid arthritis, psoriatic arthritis,...
Last active: Jan 20 6:59pm
Stresswatch app helps with pacing
Have been using app (connects with applewatch) - tracking heart rate variability (HRV) - indicated fatigue. Monitors HRV throughout the day, sends notifications- "normal" "pay...
Last active: Apr 27, 2025
Catching Covid-19 and Immunosuppressed
Caught Covid -19 about 2 months ago . I cant seem to shake the virus symptoms while testing negative . I still get sinus headaches,...
Support Group: Transplants
Last active: Nov 24, 2022
Why are my symptoms returning?
I've had Long Covid since fall 2023: mainly sleep disruption, extreme fatigue, palpitations, aches, chills, tingling, brain fog, abdominal distress. I have gradually but steadily...
Last active: Mar 18, 2025
Any experience with Post-exertion Malaise (PEM) symptom of Long Covid?
I am diagnosed with Long Covid and symptoms include fatigue, insomnia, and post exertion malaise (PET). I can’t find much research on PET especially the...
Last active: May 6, 2025
Anyone have the following experiences with long covid?
*Eyes feel like something weighing them down. Sick & tired looking eyes*Weight gain far surpasses food intake; about 20 lbs gained since 2021*Extreme difficulty waking...
Last active: Dec 13, 2023
long term covid and cfs
i had chronic fatigue before i was diagnosed with covid. but, now having both some days i can't walk very well. it feels like my...
Last active: Dec 26, 2022
Body feels like its buzzing, left side head tingle, nausea, arms ache
Began 2 weeks after covid: painful blackout of vision, fatigue, vibrating pains down spine, painful burning arms, shoulders & neck, nausea& left sided head pressure...
Last active: Jul 26, 2023
alkaline phosphatase high reading
Recent CBC test showed abnornally high reading. Rochester.edu website says associated symptoms are: Symptoms of High Alkaline Phosphatase Itching. Nausea and vomiting. Weight loss. Fatigue....
Last active: Sep 22, 2023