Support Groups

Post-COVID Recovery & COVID-19 Support Group

Public Support Group
7,150 total results
Discussions (325)
Making a Covid plan with Factor V Leidon/MTHFR
Any advice for helping us make a covid plan? I have Factor V Leidon (Heterozygous) and an MTHFR mutation (2 C677T mutations, no MTHFR A1298C...
Last active: Nov 6, 2022
I’m SO worried fiance 26 month LONG Covid - declining - ALONE
I don’t know where to turn and who to talk to anymore …. He is so sick like so many others on here and we...
Last active: Aug 2, 2023
BioVie Announces FDA Authorization of Investigational Bezisterim LC
There is always reason for hope, my long haul companions. People are working to help us- https://www.biospace.com/press-releases/biovie-announces-fda-authorization-of-investigational-new-drug-application-for-phase-2-trial-to-evaluate-bezisterim-in-long-covid Headline: Authorization expands use of bezisterim in a...
Last active: Sep 5, 2024
Has anyone heard of Covid affecting the liver?
I got sick March 12, 2020. Since then I’ve been diagnosed with RA, spondyloarthritis, and IGG4. I developed a food allergy to pork and fish...
Last active: Oct 24, 2023
I don't know what to do anymore
I don't even know where to begin. I just feel an overwhelming sense of hopelessness. I've had long-covid since Jan 2022 and it's just been...
Last active: Jan 8, 2024
Is “long covid” actually mitochondrial disease?
Is “long covid” actually mitochondrial disease? Has anyone gone to a Mitochondrial disease Is “long covid” actually mitochondrial disease? Has anyone gone to a Mitochondrial...
Last active: Jan 29 12:01pm
Cardiogastric GI symptoms and hiatal hernia flare
Anyone else get palpitations when their stomach is upset or GERD is flaring? I have been on Pepcid and Prilosec and stopped both because they...
Last active: Nov 5, 2023
Chronic Fatigue
Having just been through a battery of tea s for my NIH study at UNMC and a visit with my GP, it turns out that...
Last active: Aug 15, 2024
Long COVID and gluten sensitivity
So we got COVID twice within just about 5 months. The first time was bad. The second we were mostly asymptomatic. Since the second infection...
Last active: Apr 26 8:10pm
Starting LC "rehab" clinic, wondering others' experiences
Good evening and hoping all here enjoyed/are enjoying the Holidays this week and next as much as possible. There is a Post-COVID clinic in Omaha,...
Last active: Dec 28, 2024
"Nap attacs"
Has any one been experiencing something I call "nap attacs"? I get this terrible sleepiness in the daytime, at first up to three time a...
Last active: Mar 21, 2023
Gastro symptoms after Covid - still 1 yr later
I've had constipation, bloating (as if I was 6 months pregnant), gaining weight and little appetite. I sometimes don't eat till 6:30PM and can gain...
Last active: Oct 11, 2023
Cough after covid/mild pneumonia
I was positive for covid on Aug. 30 and on Sept 5 l was told l have mild pneumonia. If anyone has had this my...
Last active: Oct 13, 2024
Nagging, fatigue-related hunger, anyone?
I’ve experienced the Covid-related weight gain reported by others: 12 pounds (7%) over 6 months. This might have been caused by feeling hungry (and eating)...
Last active: Apr 29 8:38pm
Horrible Taste and Smell (burning garbage) post COVID: Anyone else?
Hello, I am looking for some guidance for my husband. He lost his taste and smell in November 2020. After receiving the second Pfiser vaccine...
Last active: Jun 16 11:16am
New Approach to Managing for life with Longhaulers
I’ve been recovering and discovering for almost 3 years. Personally I manage my Longhaul with the Whoop to Avoid the Push and Crash. The latest...
Last active: Jun 1, 2023
Long Covid & Relationship Strain
Covid 11/2020. I have a lot of the symptoms, head to toe. At home I try not to say them all out loud daily because...
Last active: Aug 23, 2023
How to obtain a diagnosis of Long Covid? Is it possible?
I had Covid 19 and was hospitalized in October 2021. Before that I had 2 initial vaccines; was active at the YMCA and exercised 5...
Last active: Dec 20, 2022
Severe leg vibrations constantly
I had Covid and tested positive for 19 days. Not long after I started to notice my hair falling out & fatigue. Now it's been...
Last active: Jan 26, 2024
Covid 19
I had a question to ask; I hope somebody can help. I have been sick for 1 month and can't take it anymore, so I...
Last active: Sep 15, 2024