Post-COVID Recovery & COVID-19 Support Group

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Hi J, I share your frustration. I too have heard “you’re the first we’ve seen with...

https://connect.mayoclinic.org/comment/1082282/

Discussion: More than 200 symptoms; still "you're the first"

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 7, 2024

I'm not saying there aren't simple tests for Long Covid, but, I am not aware of...

https://connect.mayoclinic.org/comment/1082257/

Discussion: Is there a “definitive” test for Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 7, 2024

Hello!What tests did you get to show issues with your mitochondria?I was just reading about the...

https://connect.mayoclinic.org/comment/1079575/

Discussion: Prodrome presents a solution

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 2, 2024

I was sent to a speech pathologist to help me form thoughts, speak clearly, and organize...

https://connect.mayoclinic.org/comment/1078695/

Discussion: How are you coping if you have long term brain fog from covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 31, 2024

AND none of my doctors has been willing to do so - at any time even...

https://connect.mayoclinic.org/comment/1078410/

Discussion: Yale Paper: Long COVID/ME/CFS

Support Group: Post-COVID Recovery & COVID-19

Posted: May 31, 2024

I have your exact symptoms post-covid but more pronounced due to severe vestibulopathy (including vision distortions)....

https://connect.mayoclinic.org/comment/1076079/

Discussion: Has anyone found anything that helps with tinnitus in long covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 28, 2024

Covid can also cause seizures and Epilepsy - rare, but it does happen. You mention the...

https://connect.mayoclinic.org/comment/1075146/

Discussion: Psych symptoms post COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: May 26, 2024

Hello jfgrt44, The bad news is that my family and I are now dealing with more...

https://connect.mayoclinic.org/comment/1074041/

Discussion: Susceptibility to Stress and Depression

Support Group: Post-COVID Recovery & COVID-19

Posted: May 24, 2024

Blakelexy, your reference to Sjogrenś got my attention, because increasingly, I believe that my own very...

https://connect.mayoclinic.org/comment/1073470/

Discussion: Lingering dry nasal passageways

Support Group: Post-COVID Recovery & COVID-19

Posted: May 23, 2024

Please let us know if the Gabapentin and LDN helps with your wife's symptoms. I was...

https://connect.mayoclinic.org/comment/1073392/

Discussion: Covid Legs and Toes

Support Group: Post-COVID Recovery & COVID-19

Posted: May 23, 2024

I agree with everything you said. I have found an integrated medical group that listens. So...

https://connect.mayoclinic.org/comment/1072956/

Discussion: After having 6 Covid Vaccines to date: How are you doing?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 22, 2024

That sounds right!It is just reactivating EBV.My primary did give me Antivirals at the very beginning...

https://connect.mayoclinic.org/comment/1072425/

Discussion: I feel like I’m slowly dying and nobody is helping

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21, 2024

I have had several specialist tell me to get one to see if it will help...

https://connect.mayoclinic.org/comment/1072412/

Discussion: Vaccine booster after getting Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21, 2024

University of Florida Long COVID Restore Program does telemedicine appointments. Also, longcovid.physio is an excellent site...

https://connect.mayoclinic.org/comment/1071353/

Discussion: Telehealth access to Post-COVID care

Support Group: Post-COVID Recovery & COVID-19

Posted: May 20, 2024

May be helpful. I occasionally have what feels like an earache in one ear. Sometimes it's...

https://connect.mayoclinic.org/comment/1071331/

Discussion: Ears are main post Covid complaint

Support Group: Post-COVID Recovery & COVID-19

Posted: May 20, 2024

God Bless You. I hope some of my information helps you. I had double pneumonia &...

https://connect.mayoclinic.org/comment/1071277/

Discussion: Respiratory issues post-COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: May 19, 2024

You should definitely try IVIG.Since this was brought on by covid it is possible it could...

https://connect.mayoclinic.org/comment/1069347/

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 17, 2024

I will let you know as well. I also requested to do IVIG treatments on the...

https://connect.mayoclinic.org/comment/1069345/

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 17, 2024

It is so bizarre.So at the very beginning I could not swallow at all.The specialists were...

https://connect.mayoclinic.org/comment/1069339/

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 17, 2024

My neurologists are the same way.They are not too concerned I can barely walk.I was perfectly...

https://connect.mayoclinic.org/comment/1069332/

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 16, 2024