Post-COVID Recovery & COVID-19 Support Group

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Hi Chris, there is no epilepsy that runs in or family. He began having grand mal...

https://connect.mayoclinic.org/comment/1276094/

Discussion: Seizures after COVID-19 vaccine

Support Group: Epilepsy & Seizures

Posted: Apr 7 5:47am

I’ve had tinnitus for most of my life, when I was younger I thought everyone had...

https://connect.mayoclinic.org/comment/1203839/

Discussion: Am I crazy? I hear music in my head all the time since covid.

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 4 2:28pm

I purposely try to rest 15-20 minutes every few hours to maintain my energy. It really...

https://connect.mayoclinic.org/comment/1202334/

Discussion: Will anyone explain his/her use of rest when they crash?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 2 10:04am

My husband brought up IVIG on a visit to my Neurologist. He was familiar with is...

https://connect.mayoclinic.org/comment/1187890/

Discussion: Apheresis or ivig treatment for long covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 10, 2024

Hi JE, Agree with everything you express, as I'm sure most/all of us do. For me,...

https://connect.mayoclinic.org/comment/1186251/

Discussion: Having long COVID, how is your mental health?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 7, 2024

Oh @covidstinks2023 (your 'handle' alone makes me laugh in empathy and sympathy) thank you. I have...

https://connect.mayoclinic.org/comment/1184475/

Discussion: Hearing loss + Tinnitus + Musical Hallucinations - oh my!

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 4, 2024

I am really struggling with temperature regulation as well. Especially at night. It is 25°here at...

https://connect.mayoclinic.org/comment/1183110/

Discussion: Anybody have trouble regulating body temperature after COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 2, 2024

I'm sorry to hear that you are still experiencing symptoms and my deepest sympathy for your...

https://connect.mayoclinic.org/comment/1175784/

Discussion: Heel pain after COVID-19 vaccine

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 18, 2024

I’ve had trouble as well but instead of being hot, I’m cold. I was always an...

https://connect.mayoclinic.org/comment/1166482/

Discussion: Anybody have trouble regulating body temperature after COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 2, 2024

Count me in on this. If my HVAC system was a human, it would think I...

https://connect.mayoclinic.org/comment/1165934/

Discussion: Anybody have trouble regulating body temperature after COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 31, 2024

I'm so sorry to hear all that you went through😢. I will pray for you and...

https://connect.mayoclinic.org/comment/1215314/

Discussion: Has LC decimated anyone's life?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 18 5:50am

I have long covid symptoms tiredness and shortness of breath. First time hearing of vaccine causing...

https://connect.mayoclinic.org/comment/1224315/

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 29 1:53am

@fbutterw20 From what I hear it is safe and doesn’t interfere with any seizure medications. Seizures...

https://connect.mayoclinic.org/comment/334873/

Discussion: Know if there's research on Covid-19 vaccination & Epilepsy?

Support Group: Epilepsy & Seizures

Posted: Feb 11, 2021

OMG. I can relate to your feelings of hurt. I’ve had similar experiences with doctors/nurses as...

https://connect.mayoclinic.org/comment/751086/

Discussion: Help! Anyone with Post COVID get infected again?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 18, 2022

I have severe muscle contractions and tremors during sleep. They occur when I attempt to change...

https://connect.mayoclinic.org/comment/1120435/

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 9, 2024

I am working as a grocery bagger/cart getter and at self checkout in a small grocery...

https://connect.mayoclinic.org/comment/1006605/

Discussion: Any longhaulers successful getting Social Security Disability or SSI?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 30, 2024

Thank you Covidstinks2033. I bet there were a few handles with covidstinks starting it. So apropos!!...

https://connect.mayoclinic.org/comment/1155615/

Discussion: Did anyone think they had Covid in 2019?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 11, 2024

I so relate to what you are saying. I may incorporate your nap strategy. My home...

https://connect.mayoclinic.org/comment/1207964/

Discussion: Will anyone explain his/her use of rest when they crash?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 9 11:09pm

Has anyone heard of the use of Lignicaine infusion to help reduce the feet leg arm...

https://connect.mayoclinic.org/comment/1202038/

Discussion: Anyone tried a Lignicaine infusion to help with the vagus nerve?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 1 8:47pm

All I can say is hang in there! My symptoms are much less serious that yours,...

https://connect.mayoclinic.org/comment/1075120/

Discussion: I feel like I’m slowly dying and nobody is helping

Support Group: Post-COVID Recovery & COVID-19

Posted: May 26, 2024

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