Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
1,197 total results
Discussions (64)
Weaning off long term use of prednisone.
I started taking prednisone 10 mg 12-13 years ago for PMR and am now at 3 mg. Now my Rheumatologist says it looks like I...
Last active: Jul 23, 2023
Muscle Weakness with PMR, can I resume working with weights?
This is my second bout with PMR. I had so much energy the first time on prednisone . I’m reducing much slower this time, but...
Last active: Mar 13, 2022
Has anyone experienced edema in their ankles and feet?
I contracted PMR 8 months ago when I came down with Covid. it’s started with stiffness in my neck and swelling in my hands rests....
Last active: Aug 28, 2024
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Nov 11, 2024
Is your pain always bilateral and ever involve nerve tingling?
I have been part of this group for four years. My pain started with hips/thighs, then on to shoulders/arms, then hands/fingers. It has now progressed...
Last active: Jan 17 9:09am
TKR and PMR
I was diagnosed with PMR Nov. 2021. I am down to 1/2 predisolone pill every other day. In general. I continue to experience fatigue, off...
Last active: May 23, 2023
Does anyone have poor circulation and cold feet? PMR or prednisone?
I developed poor circulation in my hands and feet after diagnosis and commencing Prednisone treatment, my feet are never warm. I also developed peripheral neuropathy...
Last active: Jun 11, 2024
Supplements to reduce inflammation
I was diagnosed with PMR about a year ago after I got the high does flu shot. My send rate was not that high but...
Last active: Dec 30, 2021
Can Hashimotos be caused by PMR?
In 2017 I was diagnosed with Hashimoto & put on Levothyroxine. After 2 yrs on meds & not feeling better I sought out an endocrinologist....
Last active: Apr 26, 2023
Worrying GCA development: Lost sight in one eye temporarily
I have GCA having been biopsied last January. I am on Actemra which I am handing well and was on a taper of Prednisone. 6...
Support Group: Autoimmune Diseases
Last active: Dec 26, 2020
Can the pain of PMR be aggravated from a stomach virus?
Last summer I was diagnosed with having PMR. I was placed on Prednisone to manage the pain, but my body could not tolerate this drug...
Last active: Dec 30, 2022
Last Covid Booster in August 2022 I’ve had severe pain. Probable PMR
It’s been a journey and a difficult one to even get to this point. My arm (right) pain after shot was unbearable. Then it spread...
Last active: Apr 28, 2023
Doctors' confusion over diagnosis: Questions they should ask
Since a rheumatologist diagnosed my PMR more than two and a half years ago, two other doctors have second-guessed him. Because PMR is a disease...
Last active: Jun 2, 2024
Took a Fall
I'm so angry and frustrated right now. Legs have been feeling much better. Rotator cuffs and shoulders still painful but somewhat improved. Have resumed walking...
Last active: Oct 10, 2024
Deep aching migrating pain in lowr legs/arms?
LONG 3 yr story made short: With the onset of COVID Nov 2020, I began experiencing deep migrating aching pain in my buttocks, lower legs...
Last active: Dec 6, 2023
Can PMR be induced by Exercise
Just a theory; I been treated for PMR since April 2023. It began after I stated new exercises for my legs (which I haven’t done...
Last active: Jun 19, 2024
Prednisone Side Effects and Withdrawal Symptoms
Since it's been a couple of years since the last discussion I found about one of my problems since going on Pred---red eyes that are...
Last active: Aug 16, 2024
PAIN SYMMETRICALLY AGE 70 ON A NEW LONG JOURNEY FOR SNSWERS
Had brain surgery also stents for anersyums . 35 replacement joint surgery in hands every time a replacement broke dr who develop them put in...
Last active: Nov 5, 2023
What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)
Our kids live out of state and haven't seen their dad since he developed giant cell arteritis (GCA). I'm headed down for a visit this...
Last active: Apr 15, 2024
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
Last active: Nov 26, 2023