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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (87)
PMR symptoms? Still searching for answers
I have only been dealing with PMR since February and started on Prednisone 12.5mg mg. I am now on 9mg and my joints in my...
Last active: May 6 7:29am
Prednisone tapering: How did you do it pain free?
I started Prednisone on 2/6/26 after being diagnosed with PMR. My starting dose was 12.5mg which gave me great relief but not totally. My PCP...
Last active: Apr 19 6:51pm
Progression and Regression?
My still formally undiagnosed "PMR" started as thigh pain in January '24. Since then, I've gone the exhausting route of seeing rheums, ophthalmologist, my GP,...
Last active: Aug 1, 2024
Change of diagnosis
At my rheumatologist appointment today, considering blood tests and xrays done after the first appointment 4mths ago, and an examination of hands and feet (Hands...
Last active: Sep 12, 2025
I’m newly diagnosed with PMR and I am not taking well to Prednisone..
In September of 2025 I was hit suddenly with all the symptoms of PMR. I did have the carpal tunnel syndrome while pregnant, many years...
Last active: Jan 25 6:48pm
How to reduce synovial cysts
With the onset of PMR I developed a number of synovial cysts--many being on my hands. They are quite painful. Any recommendations for reducing their...
Last active: Sep 14, 2025
PMR progression
Have had PNR for over a year . Took predisone for about that amount of time.!recently put on kevzara . Now my hands are swollen...
Last active: Jun 26, 2025
Pain areas move around
I’m fairly new with PMR. I take 15 mg of prednisone daily when I wake up in am I find different areas of my body...
Last active: Dec 27, 2024
PMR and fingers swollen and painful
I was diagnosed with PMR June 2024. I have been tapering off prednisone since then. In August my hands began to swell, painful to make...
Last active: Nov 12, 2025
Anyone else have strange neurological symptoms with PMR?
I’ve had PMR for 3 months. In the last month my hands have become shaky and I am always dropping things. Fingers feel a bit...
Last active: Jan 22, 2025
PMR or PREDNISONE
I’ve been recently diagnosed with PMR (April 2024) and currently trying to rule out GCA. I have a question. I’m having a hard time differentiating...
Last active: Apr 25 5:47pm
Low blood sugar on prednisone
Has anyone experienced shaky hands and low blood sugar while on prednisone? I'm tapering from 25 (now on 23mg) and this has happened from the...
Last active: Feb 18 2:49pm
shakiness in limbs
Hello - My mother has PMR and she was wondering if anyone has shakiness in their extremities during light exercise. My mom has shaky hands...
Last active: Feb 9, 2025
What a ride it has been ...for me at least!
I started my ride on this PMR train in August, and I have been on a whirlwind tour since. I feel it's the old "One...
Last active: Nov 11, 2023
Reducing Pednisone
I have been on 15 mgs of Prednisone since May. Recently my doctor had me reduce it to 13 mgs for 2 weeks and now...
Last active: Oct 8, 2025
Trembling and shaking, no energy - PMR?
Must husband was diagnosed with PMR in May after suddenly going blind. He spent seven days in hospital. Once released he started on 55mg prednisone...
Last active: Sep 28, 2024
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: May 19, 2025
Swollen feet, ankles, legs & knees
I had PMR a few years ago & it affected my arms and hands. After being on Prednisone for a year it cleared up. Last...
Last active: Jul 1, 2024
Multiple triggers aka when the chickens come home to roost
I am 71 and was officially diagnosed in April, 2023. Reading these posts as well as research articles has been really helpful. It seems there...
Last active: Jun 3, 2023
Weaning off long term use of prednisone.
I started taking prednisone 10 mg 12-13 years ago for PMR and am now at 3 mg. Now my Rheumatologist says it looks like I...
Last active: Jul 23, 2023