Deep aching migrating pain in lowr legs/arms?

Posted by kberlyhouse @kberlyhouse, Oct 5 1:33pm

LONG 3 yr story made short: With the onset of COVID Nov 2020, I began experiencing deep migrating aching pain in my buttocks, lower legs and arms/hands. 4 months later after a dose of Ivermectin to treat what my PC diagnosed as Long Haul Covid, I woke up in such excruciating pain, couldn't walk, get out of bed/out of a chair by myself, and the radiating aching pain was awful (especially at night). 1 year later, after my 2nd bout of COVID, I couldn't raise my arms and my shoulders, neck and collar bones were attacked the same way. I'm an ACTIVE, FIT, HEALTHY 52yr old. Finally, after 2 years of bloodwork, imaging tests, MULTIPLE drugs trials and alternative treatments to find the answer, I was finally diagnosed with PMR. Prednisone is the only thing that has given me my life back. HOWEVER, prednisone does nothing for the deep aching, radiating, migrating pain in my legs and arms. In my 3rd year I have found that IV ketamine treatments and avoiding dairy, eggs, meat, and sugar have helped tremendously. This pain seems to be mentioned here and there in the PMR forums I'm on, but no doctor I've talked to recognize it as part of PMR. Anyone else experiencing this pain? I want to know what is causing it so I can address it.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@kberlyhouse, I'm wondering if you have multiple conditions. There are a lot of diseases that mimic PMR that you might want to check out the symptoms for each. Prednisone got rid of all of my pain within hours of the initial dose. The fact that you still have pain in the legs and arms does make it sound like it might be something in addition to PMR.

— Diseases that mimic polymyalgia rheumatica (PMR): https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica.

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@johnbishop

@kberlyhouse, I'm wondering if you have multiple conditions. There are a lot of diseases that mimic PMR that you might want to check out the symptoms for each. Prednisone got rid of all of my pain within hours of the initial dose. The fact that you still have pain in the legs and arms does make it sound like it might be something in addition to PMR.

— Diseases that mimic polymyalgia rheumatica (PMR): https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica.

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Thanks so much for that info! Very helpful. We have already ruled out most of those with testing but My doc is now testing me for ankylosing spondylitis. I don’t really seem to have the symptoms for that but waiting for a test result.

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