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Parkinson's Disease Support Group

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Discussions (64)
My husband has mobility issues
My husband (age 72) was diagnosed with Parkinson’s about 6 years ago. I feel his progression is slow even though he would say otherwise. He...
Support Group: Parkinson's Disease
Last active: Jun 29, 2025
Who do you ask when specialists only seem to speak within their box?
My favorite PCP just retired and I think I kind of overwhelmed my new one. Recently diagnosed with lymphoma and an ascending aneurysm, early stage...
Support Group: Parkinson's Disease
Last active: Aug 24, 2025
Multiple conditions and keeping track of all your medications
I am 71 and have been following diagnosis (seems like gussing to me) for about between 10 and 20 yrs. I take so many meds...
Support Group: Aging Well
Last active: Jun 24 7:46am
This is so confusing. Long COVID? Parkinson's?
My husband (74) was having dizziness & balance issues, brain fog, and crushing fatigue and then after quite some time, a mild tremor in his...
Last active: Aug 2 2:52pm
Difficulty Breathing & Autonomic Dysfunction w/ PD & Congestive Heart
My sweet mother (78 yrs young) has been hit with a myriad of health issues. It started with a Parkinson's diagnosis about 5 years ago....
Support Group: Parkinson's Disease
Last active: May 8, 2019
Reactions when you tell people you have Parkinson's Disease?
This is not a question so much as a chance to share experiences. My doctor warned me about the reactions I would get. I am...
Support Group: Parkinson's Disease
Last active: 3 days ago
Symptoms: Could this be Parkinson's?
I would love some input. I have a slight tremor/twitch in my head/neck that appears to have gotten slightly worse. Then in the last couple...
Support Group: Parkinson's Disease
Last active: Oct 15, 2018
Sinemet (Carbidopa-Levodopa) and nausea
Been on c/l for some weeks now...still at lower. dose with 1 25-100 tab am and 1/2 mid day and 1/2 dinner time. I have...
Support Group: Parkinson's Disease
Last active: Jul 29 3:23pm
Initial Effect of Sinemet
I am about a year into relevant PD symptoms: left hand tremor, weakness, tiredness, etc. Just now am at the point when I am agreeable...
Support Group: Parkinson's Disease
Last active: Jun 3, 2024
Recently diagnosed with PD, started levodopa
Has anyone else experienced muscle pain and a bit of a twist in their foot? I am experiencing this, especially when I get up in...
Support Group: Parkinson's Disease
Last active: Jun 8 8:28am
Diagnosed with PD, then antidepressants didn't work
@caluginbUntil I was diagnosed with PD, my depression was well managed with duloxetine (cymbalta). Now nothing seems to work: ketamine, TMS, neurofeedback. Currently on Vraylar...
Support Group: Parkinson's Disease
Last active: Jun 30 4:24pm
Does anybody have good results taking Azilect as a mono therapy?
Hi does anybody have good results taking Azilect as a mono therapy in early PD? Some say it also slows PD progression. I have moderate...
Support Group: Parkinson's Disease
Last active: Mar 3, 2025
Have you tested positive for synucleinopathy?
Anybody test positive for synucleinopathy and with small fiber neuropathy? Synucleinopathy is Neurodegenerative disorders with alpha-synuclein (α-syn) accumulation (synucleinopathies) include Parkinson's disease, Parkinson's disease dementia,...
Support Group: Parkinson's Disease
Last active: May 13, 2025
Controlled release vs immediate release
I am having controlled release levedopa/cabidopa 3 tablets a day, but a neurologist has changed it to immediate release . I was diagnosed just 1...
Support Group: Parkinson's Disease
Last active: Jul 9, 2025
Parkinson's and vital man a year ago
Husband has bad tremor in hand, has lost 38 lbs in a year, eats good. He walks humped over, doesn't pick up feet walking, some...
Support Group: Parkinson's Disease
Last active: Sep 1, 2022
Loss of smell and Parkinson's
I have been told by a neurologist that I have a Parkinson's tremor but not full-blown Parkinsons. I also have a total loss of smell...
Support Group: Parkinson's Disease
Last active: Feb 13, 2019
Parkinson's Disease
Hi, I'm new to this.I am 53 next week and I have PD 6 yrs now. Started with a slight tremor on my left hand,...
Support Group: Parkinson's Disease
Last active: Oct 13, 2025
Anyone have a cough related to PD?
I have been diagnosed with PD for about 10 years. Not much dyskinesia but lousy balance! I do have some dyskinesia, symptoms started with a...
Support Group: Parkinson's Disease
Last active: May 23, 2025
PD and back and/or glute pain and surgery
Hello I am new to this forum. I have a lot back issues including spinal stenosis, degenerative disc disease, osteoarthritis scholios bone spurs, degenerative disc...
Support Group: Parkinson's Disease
Last active: Oct 21, 2025
Is it Parkinson's or not?
In March, my neurologist did an assessment of some odd symptoms I've been experiencing, including a very slight tremor in my left hand, feeling like...
Support Group: Parkinson's Disease
Last active: Aug 26, 2025