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Parkinson's Disease Support Group

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Helpful Suggestions
My husband did the BIG program and I believe it helped. Unfortunately, not long after, he was admitted to a care facility due to falls...
Support Group: Parkinson's Disease
Last active: Mar 22 9:09pm
Parkinson’s and chemotherapy
I am a 68-year-old woman and was diagnosed with PD in 2021. I have right hand tremors and I’m not on any meds. Recently (April...
Support Group: Parkinson's Disease
Last active: May 29, 2025
Focused Ultrasound for Parkinson’s
Has anyone or does anyone know of anyone who has gone under High Frequency Focused Ultrasound to stop their tremors and has had either positive...
Support Group: Parkinson's Disease
Last active: Oct 9, 2025
Are there are any young onset Parkinson's patients in our group?
I was wondering if any young onset Parkinson's might be in our group? I was diagnosed 20 yrs ago as having Essential tremors at the...
Support Group: Parkinson's Disease
Last active: Jun 3 2:10pm
Has anyone taken Stalevo?
Hi! I’m new here had Parkinson’s for about four years. I feel that my neurologist just doesn’t listen to me. Levadopa/carbidopa just doesn’t work for...
Support Group: Parkinson's Disease
Last active: Dec 10, 2024
PD tremor and cell phone use problems
My husband is frustrated snd discouraged by the tremor causing problems with touch signals on iphone. My daughter helped us by getting to section jn...
Support Group: Parkinson's Disease
Last active: Sep 13, 2025
Slight body tremor - Parkinson's disease?
so I have this sensation at random times during the day that I have a slight body tremor which I feel but can not see...
Support Group: Parkinson's Disease
Last active: Jan 5 9:26am
Young onset diagnosis and mold toxicity
Hi! I was just diagnosed 1 week before my 50th bday. 6 months ago, I was diagnosed with mold toxicity. I’ve read that mold is...
Support Group: Parkinson's Disease
Last active: Mar 24, 2025
Parkinsons and SSRI question
So yes, I am going to message my neurologist on Monday and hope she gets back to me in the not too distant future. I...
Support Group: Parkinson's Disease
Last active: Oct 18, 2025
Parkinson's with loss of balance, nauseous
82 years old. Diagnosed with Parkinsons Dec,/23. Mild tremors on left side is worst it has been to date but this morning I had a...
Support Group: Parkinson's Disease
Last active: Nov 9, 2025
So I’ve been diagnosed… DAT scan confirms PD
DAT scan confirms what we already suspected. The dr’s office staff told me and set up an appointment with the Dr. problem is the appointment...
Support Group: Parkinson's Disease
Last active: Feb 17 5:17am
Newly diagnosed with Parkinson
I’m newly diagnosed with Parkinson, and waiting to get accepted by Mayo Clinic for a second opinion. I am a current heart patient at Mayo’s...
Support Group: Parkinson's Disease
Last active: Aug 30, 2018
Finding Out About Having Parkinson’s Disease
In 2008, at an office visit with my Primary Care physician at the Fredericksburg, Virginia, VA Clinic, I asked her why hands shook to the...
Support Group: Parkinson's Disease
Last active: Sep 17, 2022
Symptoms of PD, seeking answers. Anyone experiencing the same?
Just turned 65, been going through problems for some time, memory problems, tremors especially in hands / jaw , falling down, muscles stiff especially on...
Support Group: Parkinson's Disease
Last active: Jan 6 5:06pm
Has anyone suffered from dyskinesia or dystonia - toes curl under
I'm on Rytary 3 X's daily. I also use INBRIJA inhaler 3 to 5 times a day. I have researched the symptoms of Dyskinesia and...
Support Group: Parkinson's Disease
Last active: Aug 22, 2025
Have you had torso rigidity lessened or eliminated with DBS surgery?
I am currently being assessed for DBS surgery. The rigidity in my torso, which can be quite painful, is currently my most debilitating symptom. It...
Support Group: Parkinson's Disease
Last active: Jun 9 3:35pm
PD & concussion relationship: Know of doctor familiar w/this?
In 2011 I was involved in a car accident - the back of my head had three large bumps (concussion) and my SI joint was...
Last active: Apr 6 3:06pm
Leg freezing but no other PD symptoms
Does anyone just have freezing of your legs and no other symptoms of Parkinson? My husband was diagnosed in January of this year withParkinson gait....
Support Group: Parkinson's Disease
Last active: Mar 10 12:25pm
Looking Back - What Were Your Early Warning Signs of Parkinson's?
I'm 51 and do not (currently) have Parkinson's. However, I've been deemed to be "at high risk of developing PD" due to having something called...
Support Group: Parkinson's Disease
Last active: 4 days ago
Experiences with Azilect (Rasagiline) as a monotherapy
Hi! I’m new to this group. I was recently diagnosed with early stage Parkinson’s (tremor dominant). I have left side tremors in my hand/arm and...
Support Group: Parkinson's Disease
Last active: Aug 4, 2025