Neuropathy Support Group

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Comments (323)

Hello I had the exact same experience! Had foot surgery and that started my nightmare of...

https://connect.mayoclinic.org/comment/1026548/

Discussion: Seeking support, new to this nightmare

Support Group: Neuropathy

Posted: Mar 3, 2024

I take 1800mg of gralise a day. I also take AMITRIPTYLINE. It knocks me out about...

https://connect.mayoclinic.org/comment/888039/

Discussion: Can Gabapentin make neuropathy pain worse?

Support Group: Neuropathy

Posted: Jun 30, 2023

Yes my fingers and lips but I have had PN for about 15 years.I only take...

https://connect.mayoclinic.org/comment/782600/

Discussion: All over neuropathy

Support Group: Neuropathy

Posted: Dec 8, 2022

My Dr had me on gabapentin, didn't do much and caused swelling and rash. Dr stopped...

https://connect.mayoclinic.org/comment/795966/

Discussion: Coffee and Neuropathy

Support Group: Neuropathy

Posted: Jan 12, 2023

For pudendal Pain I use amitriptyline with pregabalin (max allowable dose) and when needed clobetasol ointment...

https://connect.mayoclinic.org/comment/623470/

Discussion: Pudendal Nerve Entrapment/Neuropathy/Damage

Support Group: Chronic Pain

Posted: Aug 5, 2021

Thank you for the reply and for the article. The only treatment that worked were combinations...

https://connect.mayoclinic.org/comment/671363/

Discussion: Career Prospects for People with Neuropathy

Support Group: Neuropathy

Posted: Jan 16, 2022

@madmouse43 Hi. I take 30mg (3x 10mg) of Amitriptyline at night and it helps me sleep....

https://connect.mayoclinic.org/comment/969692/

Discussion: Anyone using Amitriptyline HCL for Neuropathy instead of Gaba or Lyric

Support Group: Neuropathy

Posted: Nov 24, 2023

@kyc117 I took amitriptyline years ago because of pain from clenching my teeth, because of work...

https://connect.mayoclinic.org/comment/323127/

Discussion: Amitriptyline use for neuropathy

Support Group: Neuropathy

Posted: Sep 26, 2020

Trshdub, amitriptyline can cause low sodium which would cause muscle cramps, but may not be operative...

https://connect.mayoclinic.org/comment/1447671/

Discussion: Neuropathy and leg cramps

Support Group: Neuropathy

Posted: Nov 26, 2025

A Neurologist diagnosed my neuropathy as polyneuropathy and he requested a light chains blood test for...

https://connect.mayoclinic.org/comment/858171/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2023

Hi everyone. I am writing for my mother. She is 76 and has diabetic neuropathy. The...

https://connect.mayoclinic.org/comment/623807/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 6, 2021

The Neurologist has been very helpful. I have been on the Gabapentin since 6/18, 5 months...

https://connect.mayoclinic.org/comment/243841/

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Nov 12, 2019

I’ve tried all of the above,with little or no relief. My podiatrist had a cream compounded...

https://connect.mayoclinic.org/comment/950867/

Discussion: Wise Men Healing Balm for neuropathy

Support Group: Neuropathy

Posted: Oct 20, 2023

Hi, I developed a condition called erythromelalgia mid COVID. Spent a year on the medical merry...

https://connect.mayoclinic.org/comment/1206532/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 8, 2025

I have SFN and autonomic neuropathy (idiopathic) and also have ear pain and constant tinnitus. My...

https://connect.mayoclinic.org/comment/675992/

Discussion: Ear Tinnitus and Pain with Neuropathy

Support Group: Neuropathy

Posted: Jan 29, 2022

I appreciate the information. So far I have been lucky that my PN only very rarely...

https://connect.mayoclinic.org/comment/969749/

Discussion: Anyone using Amitriptyline HCL for Neuropathy instead of Gaba or Lyric

Support Group: Neuropathy

Posted: Nov 24, 2023

I so hope that you will find some help at Johns Hopkins. They have a very...

https://connect.mayoclinic.org/comment/242963/

Discussion: Ear Tinnitus and Pain with Neuropathy

Support Group: Neuropathy

Posted: Mar 23, 2019

Thank you, Colleen! My name is Anna and i have been battling symptoms of neuropathy since...

https://connect.mayoclinic.org/comment/156703/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 30, 2018

How did I find those meds ? I am a veteran and receive my care from...

https://connect.mayoclinic.org/comment/708488/

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 15, 2022

I started on Amitriplyline 25 mg but didn't like the sedation effect when I woke, so...

https://connect.mayoclinic.org/comment/1157569/

Discussion: Taking amitriptyline for neuropathy?

Support Group: Neuropathy

Posted: Oct 15, 2024

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