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mandiPNE
@mandee

Posts: 1
Joined: Oct 05, 2018

Pudendal Nerve Entrapment/Neuropathy/Damage

Posted by @mandee, Fri, Oct 5 1:08pm

Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I'm very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want – for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.

REPLY

I have nerve entrapment but not in that area, I have multiple nerve entrapments in my leg and recently had surgery to decompress the entrapments and insert a peripheral nerve stimulator in the event I still have pain after I heal.

I wish you luck and you can message me anytime for support. All nerve enteapments suck and there isn't a lot of awareness of just how painful and functionally limiting they can be for day to day activities. Stay strong.

@ahayes

I have nerve entrapment but not in that area, I have multiple nerve entrapments in my leg and recently had surgery to decompress the entrapments and insert a peripheral nerve stimulator in the event I still have pain after I heal.

I wish you luck and you can message me anytime for support. All nerve enteapments suck and there isn't a lot of awareness of just how painful and functionally limiting they can be for day to day activities. Stay strong.

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I also have nerve entrapment from lower back to growth n and use ice bags that help I have Gabapentin for it but that doesn't work 24/7 we are all pain warriors here

I also got a nerve stimulator in my leg. It's a medtronic scs lead and IPG in my leg, off label FDA. Forgot to mention that in my original comment.

@ahayes

I also got a nerve stimulator in my leg. It's a medtronic scs lead and IPG in my leg, off label FDA. Forgot to mention that in my original comment.

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@ahayes, how affective is the nerve stimulator for you? Members on Connect have expressed a wide array of results, but some have found stimulators to be very helpful.

@JustinMcClanahan

@ahayes, how affective is the nerve stimulator for you? Members on Connect have expressed a wide array of results, but some have found stimulators to be very helpful.

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@JustinMcClanahan hi justin! Have any connect members had an off label peripheral stimulator (i.e. used an SCS stimulator in another area of the body)? Previous trials worked well with another system that's wasnt inserted in an open approach and wasnt stable/durable enough for me due to limited approaches to the area I needed stim in. I'm still waiting to see how this one works for me, as I am healing from decompression of all nerves in my lower leg. Had the medtronic put in during same case. Thus, nerves are pretty sensitive right now and cannot run stimulator yet. This was all done 4 weeks ago.

@ahayes am interested in your thoughts on it also

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