Amitriptyline use for neuropathy

Posted by kyc117 @kyc117, Sep 26 3:53pm

My neurologist prescribed Amitriptyline for me as sleeping has been difficult at times. I have to say it’s been working and I have no side effects. I don’t take it every day. I kind of know now when to take it…if my symptoms are bad during day. Still waiting on nerve biopsy test. It’s been 5 weeks now. Started a new job which keeps me so busy, keeps my mind off things. I wish you all my prayers daily.

Liked by rwinney, HankB

@kyc117 I took amitriptyline years ago because of pain from clenching my teeth, because of work stress. Once I left that toxic job, I no longer needed it.

It's one of a long list of meds I've tried more recently, for sfpn, but it didn't help me with my pain. The only medication that's been helping consistently is morphine sulfate contin. It certainly doesn't do the whole job, probably because it's such a low dose, but it takes the edge off. The reason I know it's helping my long term pain is that I tapered off it a while back, and it quickly became clear that my pain is a lot worse without it. Each of us responds in our own way to medications, so there is no one size fits all pill. I hope amitriptyline continues to help you. Let us know the results of your nerve conduction study if you're comfortable doing so.

Jim

REPLY

@kyc117, There is another discussion started by @steeldove that you may want to take a look at.

Use New Article About Treating Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/use-new-article-about-treating-peripheral-neuropathy/

Liked by kyc117

REPLY

My rheumatologist prescribed amitriplyline for me too. I used it for six weeks and yes, I slept better. but during those six weeks I had three separate visual hallucinations.. so be aware… of course I seem to react to most drugs. Now all I can take without getting sick is Benadryl…

REPLY
@maryflorida

My rheumatologist prescribed amitriplyline for me too. I used it for six weeks and yes, I slept better. but during those six weeks I had three separate visual hallucinations.. so be aware… of course I seem to react to most drugs. Now all I can take without getting sick is Benadryl…

Jump to this post

Thanks, @maryflorida for posting your experience with amitriptyline. We all learn when we all share.
Be content and at peace.
Chris

REPLY
@maryflorida

My rheumatologist prescribed amitriplyline for me too. I used it for six weeks and yes, I slept better. but during those six weeks I had three separate visual hallucinations.. so be aware… of course I seem to react to most drugs. Now all I can take without getting sick is Benadryl…

Jump to this post

@maryflorida How are you doing I am going by to ask Dr about this The gabapentin just isn't working all the time maybe I need something else Benedryl always puts me to sleep so I use it at bedtime when needed

REPLY

This is probably irrelevant to your situation but I have polyneuropathy and I take 600 mg gabapentin 3 times a day. If that does not control the pain or if I have break through pain I take 1/2 of a 25 mg tramadol. I don't like taking an opioid. I used to depend on tramadol exclusively for pain. Then under the supervision of my pain specialist I tapered off almost all of the tramadol and the gabapentin controlled the pain almost completely. But I gradually had to take some tramadol as needed, usually at bedtime or if I overdid exercise. It turns out I usually take 1/2 25 mg tablet once or twice a day. Everyone's experience is different and I am late to this blog so I know very little and understand less.

REPLY
@catharbert

This is probably irrelevant to your situation but I have polyneuropathy and I take 600 mg gabapentin 3 times a day. If that does not control the pain or if I have break through pain I take 1/2 of a 25 mg tramadol. I don't like taking an opioid. I used to depend on tramadol exclusively for pain. Then under the supervision of my pain specialist I tapered off almost all of the tramadol and the gabapentin controlled the pain almost completely. But I gradually had to take some tramadol as needed, usually at bedtime or if I overdid exercise. It turns out I usually take 1/2 25 mg tablet once or twice a day. Everyone's experience is different and I am late to this blog so I know very little and understand less.

Jump to this post

@Catcando Its never too late to the blog to share your experiences. Thank you for participating. We need all the help we can get.
Be well,
Rachel

REPLY
@lioness

@maryflorida How are you doing I am going by to ask Dr about this The gabapentin just isn't working all the time maybe I need something else Benedryl always puts me to sleep so I use it at bedtime when needed

Jump to this post

Actually I am not doing well right now. Most meds make me sick. Last week we discovered that the hydrocodone is now toxic for me. My pharmacist said this can become toxic, so to take one tylenol to see which is causing the headache, nausea and dizziness. I did, and the tylenol is not doing anything bad for me, only some slight dizziness. So tomorrow I call the doctor. Not much is left for me to take. Lots of pain all over my body today, so will move around some, make beds, etc., and then rest a little. Tried to back support belt that helps when it is my low back. But mostly all over pain, moving from one place to another. Many people suffer, so I can do it if I have to.

REPLY
@catharbert

This is probably irrelevant to your situation but I have polyneuropathy and I take 600 mg gabapentin 3 times a day. If that does not control the pain or if I have break through pain I take 1/2 of a 25 mg tramadol. I don't like taking an opioid. I used to depend on tramadol exclusively for pain. Then under the supervision of my pain specialist I tapered off almost all of the tramadol and the gabapentin controlled the pain almost completely. But I gradually had to take some tramadol as needed, usually at bedtime or if I overdid exercise. It turns out I usually take 1/2 25 mg tablet once or twice a day. Everyone's experience is different and I am late to this blog so I know very little and understand less.

Jump to this post

Please tell me about tramadol. Doest it put you to sleep?

Liked by lioness

REPLY
@maryflorida

Actually I am not doing well right now. Most meds make me sick. Last week we discovered that the hydrocodone is now toxic for me. My pharmacist said this can become toxic, so to take one tylenol to see which is causing the headache, nausea and dizziness. I did, and the tylenol is not doing anything bad for me, only some slight dizziness. So tomorrow I call the doctor. Not much is left for me to take. Lots of pain all over my body today, so will move around some, make beds, etc., and then rest a little. Tried to back support belt that helps when it is my low back. But mostly all over pain, moving from one place to another. Many people suffer, so I can do it if I have to.

Jump to this post

@maryflorida I'm sorry to hear your on such pain Before I was diagnosed with fibromyalgia I head in pain all over have you ask Dr about this or had the 18 point test done I have 11 of 18 and finally found a supplement that helps me now with neuropathy makes more pain On days I'm relatively better then other days I do chair exercises they aren't to strenuous sure help . When in pain got shower helps I take Tramadol 50 only before bedtime it relaxes me so my muscles relax I can take another if needed .Since it's an option listen to your Dr and don't take more then she/ he prescribed Email me for anymore info. Have a better day.

Liked by HankB

REPLY

I haven't tried Tramadol as yet. I am on blood thinners so my choices are limited. What kind of supplement do you find helpful? Yes the rheumatologist did the 18 point test, but I don't recall hearing the answer from her. Just that I have fibromyalgia. I have wanted a punch biopsy but she did not know where or how to do it; she recommended that I see a surgeon. ?? I can't spend the money for surgery that seems unnecessary. Years ago another doctor did a skin biopsy in my finger and it was done right in the office.
My husband is sick and runs up our medical bills often so I don't want to spend any money left on myself unless it is absolutely necessary.
Ok.. since no medicine since Friday, I do wake up in a lot of all over pain. Today I ate some oatmeal and then took a Tylenol. It is helping "some" but still in pain. Will call my doc tomorrow, but what is even left for me I don't know. I will ask him about Tramadol too. Thank you.

Liked by HankB

REPLY

@maryflorida. The medicine that helps me is the supplement is Fibrorelief from the Fibromyalgia treatment group Type it on and will come up When the pain is relentless I take Tramadol I don't have any side effects from it . Usually I take before bedtime but if needed during day .Ice,Hot showers or heating pad ,Epsom Salt soak in tub ,I can't get up if I'm down so just sponge bath with it It will take time before you have enough in your system so patients is needed Dr.s are skeptical about opioids but if he knows you will use it accordingly hopefully he will prescribe it

Liked by HankB

REPLY
@maryflorida

Actually I am not doing well right now. Most meds make me sick. Last week we discovered that the hydrocodone is now toxic for me. My pharmacist said this can become toxic, so to take one tylenol to see which is causing the headache, nausea and dizziness. I did, and the tylenol is not doing anything bad for me, only some slight dizziness. So tomorrow I call the doctor. Not much is left for me to take. Lots of pain all over my body today, so will move around some, make beds, etc., and then rest a little. Tried to back support belt that helps when it is my low back. But mostly all over pain, moving from one place to another. Many people suffer, so I can do it if I have to.

Jump to this post

@maryflorida So sorry to hear about your unrelenting pain and inability to find relief! There’s got to be something this esteemed group will come up with.

REPLY
@maryflorida

I haven't tried Tramadol as yet. I am on blood thinners so my choices are limited. What kind of supplement do you find helpful? Yes the rheumatologist did the 18 point test, but I don't recall hearing the answer from her. Just that I have fibromyalgia. I have wanted a punch biopsy but she did not know where or how to do it; she recommended that I see a surgeon. ?? I can't spend the money for surgery that seems unnecessary. Years ago another doctor did a skin biopsy in my finger and it was done right in the office.
My husband is sick and runs up our medical bills often so I don't want to spend any money left on myself unless it is absolutely necessary.
Ok.. since no medicine since Friday, I do wake up in a lot of all over pain. Today I ate some oatmeal and then took a Tylenol. It is helping "some" but still in pain. Will call my doc tomorrow, but what is even left for me I don't know. I will ask him about Tramadol too. Thank you.

Jump to this post

@maryflorida
Mary, have you thought about a pain pump? There is a discussion on Connect about it:
https://connect.mayoclinic.org/discussion/pain-pump-i-have-one-how-about-one-for-you/
You very likely may be familiar with that discussion, but just in case. The person who started it said his pumps Dilaudid into his system, not sure if that would be something that you could tolerate. Hank

Liked by rwinney

REPLY
@jesfactsmon

@maryflorida
Mary, have you thought about a pain pump? There is a discussion on Connect about it:
https://connect.mayoclinic.org/discussion/pain-pump-i-have-one-how-about-one-for-you/
You very likely may be familiar with that discussion, but just in case. The person who started it said his pumps Dilaudid into his system, not sure if that would be something that you could tolerate. Hank

Jump to this post

@maryflorida
Another question, have you already explored medical marijuana for you pain? Or CBD oil. Or Kratom? I'm just trying to brainstorm other possibilities for you. Please forgive me if I'm covering old territory you've already crossed. Best, Hank

Liked by lorirenee1, rwinney

REPLY
Please login or register to post a reply.